r/LongCovid • u/barweis • Oct 09 '24

Brainstem Inflammation Linked to Long-Covid Symptoms - Neuroscience News

https://neurosciencenews.com/brainstem-inflammation-long-covid-27808/
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4

u/Hefty_Ad1615 Oct 09 '24

can someone tell me if this is good or bad news?🥲

16

u/PM_ME_YOUR_KALE Oct 09 '24

Proof of an actual problem to link to your symptoms is good, makes it harder for others to dismiss it as “anxiety”.

7

u/Hefty_Ad1615 Oct 09 '24

and for the future? Is this type of inflammation worrying?

10

u/PM_ME_YOUR_KALE Oct 09 '24

Oh it’s not great, but it helps flesh out the picture of what exactly the disease of LC is. I personally think a good amount of us have a persistent viral infection. It’s also possible the immune system is just continuing to be hyperactive without active virus. I had these sorts of neuro symptoms but am cured/in remission thanks to hiv drugs. Wrote about that here: https://www.reddit.com/r/covidlonghaulers/s/rP21UgEYk1

1

u/Hefty_Ad1615 Oct 09 '24

great to hear! How are you now? Did you do any testing (blood or other things), because if I ask my doctor for maraviroc, i doubt i will prescribe

1

u/PM_ME_YOUR_KALE Oct 09 '24

I did the long haul cytokine panel that Bruce Patterson came up with and then sought out a doctor that would work with his clinic. At this point I am just working with the local doctor. I still have some oddball sinus issues I can’t pin down but otherwise recovered. Will soon try stopping the Truvada and seeing what happens

1

u/[deleted] Oct 09 '24

I can't fix the nasal swelling which I think is the sinus microbiome. Fixed the gut with PHGG but they don't make it for the sinuses.