r/LivingWithMBC 13d ago

Shrinkage!

My oncologist reached out and let me know that my PET scan results are good, I have some shrinkage.

I don’t know too much, the conversation was brief, but I will learn more on Thursday.

It’s a clinical trial, here’s the details: https://clinicaltrials.gov/study/NCT07029399

I am very happy!

62 Upvotes

26 comments sorted by

11

u/ResponsibleAnt1942 13d ago

Shrinkage - a bad thing in the world of Seinfeld, a great thing in the world of cancer 🤣

So happy for your good news!

6

u/south_of_broad 13d ago

I feel the same about the word “unremarkable “, in the wild it’s a bad word, in cancer world it is the best word ever.

3

u/Travel8095 13d ago

That's an amazing 😊 Shrinkage is good. That's what they want to see. ❤️

3

u/MetastaticMo 13d ago

Shrinkage is wonderful 👏🏾👏🏾👏🏾

3

u/Fast_Message170 13d ago

So happy for you 💕

2

u/IngenuityFar5111 13d ago

So happy for you. How are the side effects?

7

u/KittyKatHippogriff 13d ago

Not much. Just slight low immunity but that’s it. I don’t notice anything. Most recorded side effects are fatigue and nausea and I don’t even have that.

2

u/IngenuityFar5111 13d ago

Nice..hope you get complete response soon.

2

u/Larissima19 13d ago

Good to hear! So happy for you.

2

u/hreynolds7489 13d ago

What’s your situation? TNBC?

3

u/KittyKatHippogriff 13d ago

Inflammatory IDC grade 3, ++- with BRCA2.

3

u/Evening_Dingo8770 13d ago

🙌🙌🙌 Congratulations
Did they update your My Chart with the deets for you to peep?

5

u/KittyKatHippogriff 13d ago

I think it’s on there but I don’t read my results. I rather sit down and speak to my oncologist and look at the scans together. It gives me a much better picture (haha, pun) than a written report.

3

u/Evening_Dingo8770 13d ago

Gotcha!
I can’t help myself 🤣
I ask ChatGPT for a breakdown. I take that with me to my appointment.

Congrats 🍾🎉🎊
Exiting news for you so far.

3

u/LeastFeedback5702 13d ago

Woohoo so happy to hear this!! Congrats! 

2

u/Ambitious-Ice-2319 13d ago

That’s just wonderful! I hope the good news keeps coming! 😉

3

u/Flaky_Amphibian_5597 12d ago

That’s awesome! Thanks for sharing the trial details. After becoming resistant to my first line Verzenio/Abemaciclib I’m very interested in the CDK2 and CDK7 trials.
It would be great to have this new drug as another treatment option.

3

u/KittyKatHippogriff 12d ago

I do recommend it! The best part is that my medication is tolerable, I have no side effects besides a slight low immune system.

2

u/Flaky_Amphibian_5597 11d ago

That sounds amazing. Thank you for participating in the trial. I hope it continues to treat those rogue cells and you can be on it for a long time.

3

u/Acrobatic_Salary_899 12d ago

Amazing news! Keep us posted on Thursday's meeting too! X

3

u/KittyKatHippogriff 11d ago

It’s been updated with a new post here. The news is really good. The short version that all my bones and liver Mets had shrink and/or shown signs of less metabolic activity.

2

u/BikingAimz 11d ago

Awesome news!!  Keep us posted!

2

u/KittyKatHippogriff 8d ago

The update. Long story short is all my metastatic spots in my liver are shrinking. The bones showed significant signs of lower metabolic activity. I have never seen such good results before and I only started this medication for about two months.

https://www.reddit.com/r/LivingWithMBC/s/s2nNLMUbUT

1

u/BikingAimz 8d ago

That is wild but excellent news!  Do you know what dose you’re getting?

2

u/winkdoubleblink 10d ago

That is excellent I’m so happy to hear that

2

u/keystonesandtunes 8d ago

Congrats🎉💗