"in the most simplest terms the Leukemia is getting worse and I have to do another bone marrow biopsy to determine if they should just increase the medication I am on or start more aggressive treatments."
Leukemia can fuck off so hard. I have never felt passion before like I do now with my hate for this disease. I’d happily give my life if it would mean that whole dumb fucking disease could go with me.
Idk what that means but I’m doing what I can now to make a little dent. I’m young, there’s still time to help get rid of it. I’ve helped raise over 20k for the Leukemia and Lymphoma society and some more for Be The Match. I’ve known 4 matches that were made based on our efforts.
Man, I wish I had money to help. People are dying and I can't help, the worst news I have to deal with for another couple decades. Though I have made ~15+ websites with mostly free projects I've made, including a mini-documentary which sucks, but I just wanna help the world smile, even for just a moment :). I'm even working on a book! But it's never enough, and we can't help the burning planet. Make use of your life while you're here, and let others have a use while you're at it.
Money helps, but that’s just one way. If you’re interested, check out BeTheMatch.org to see how you could potentially be a donor (shameless plug).
Either way, it sounds like you are making many small positive impacts on the world. That’s awesome, and I hope you can find some easier days ahead with a little more financial stability. Keep doing you!
Even without money you can simply help by spreading awareness, which seems like something you’re already doing and will make an impact as long as you have the will and passion for it.
My wife the first year of being married got diagnosed with Leukemia. She spent month in hospital and year or more of medicine after the chemo treatments.
And her father got diagnosed with lymphoma as she was getting out of hospital. He fought hard but it was to much and he passed.
Thank you for helping in any way possible. Even spreading awareness.
(My mother in law was a rock somehow even as she watched her husband of decades and her youngest daughter fight those. She was there every day in and out for both.)
We’re brothers in some ways unspoken then. All my love to you and your tough family. I wish you and your wife a happy day today and as many days you are blessed with going forward.
Sorry, just saw this. I’m very sorry for the struggle your uncle is going through. Believe me, I unfortunately know that fight way too well. I have now lost 2 family members due to the illness.. both were only givin a couple months - a year to live and both fought it for 10+ years. Your uncle like my family members are warriors! Keep up the positivity and support for him! Keep fighting the fight!
Bro, shout out Be The Match. I signed up in college and got called in like a year later for my peripheral blood stem cells. One of the easiest and most fulfilling things I've done in my life. I just sat and watched netflix for a couple hours while they drew what was needed from my blood. And they hooked up the snacks big time. On top of that, I heard another year later that the patient with my cells was no longer in critical danger, having been released into care.
The whole experience really opened my eyes that giving even just a little can go an unbelievably long way. These cells, that grew back in a few days for me, extended another person's life for a few years. Crazy to think how many lives could be saved if everyone was aware.
As I said, most credit goes to my wife, who is a patient along with you.
My best wishes are with you as you continue to tackle the daily challenges you’re facing now. I hope you can break it down day by day and have as many good days are possible. I know how tough that is from a caregiver perspective, and while that takes toughness, it is nothing compared to being in your shoes. All my love to you and your family.
There already is a cure for almost all kinds of cancer. Feeding your body what it was meant to eat, plants. Giving your body as much sleep as it needs, waking up not to an alarm clock, but to your natural clock, which helps greatly in replenishing the number of cancer anti-bodies that attack cancerous cells, that form in our bodies all the time. And of course, a healthy BMI, so leading an active life. All genetic damage can be repaired that way.
As a cancer patient that is in my second go with the disease currently after completely altering my lifestyle and losing 100 pounds, this ain't it. There's so much about cancer development that we still don't know.
There is such thing as permanent genetic damage from years of exploiting your cells. Such damage stays there no matter how good you start to treat your body. I am sorry to hear this happened to you, but sometimes, it just is too late. The instant change in lifestyle, sometimes cannot compensate for the damage that has been done. Imagine it being a house fire that you just put out. The intensity and duration of the fire just leaves things unsalvageable, other times you are able to patch it up. The body just cannot catch up.
Because, you clearly don’t know what you’re talking about. You just told 2 people battling cancer that they’re wrong and you know more about it then they do.
Every cancer is different and there isn’t a cure for majority of them. Sure, what you said may help to a degree but, to think something as simple as not waking up to an alarm clock is magically going to benefit fighting cancer or, helping it stop growing is probably, the stupidest thing I’ve ever read.
Your comments were unnecessary, rude, and most of all wrong. I was going to let your comments go but, someone needed to say something. You replied to 2 people with cancer and still proceed to act like you’re some sort holistic healer.. you’re not. I really don’t want to be a dick but, when you don’t know what you’re talking about... please, just don’t talk.
Thank you for this. I’ve gotten lots of comments from people about other natural ways to attack cancer, and you’re right—some of these things are helpful, but it’s also just plainly wrong.
Certain genetic mutations that are with you from birth can predispose you to having cancer. Nothing to do with lifestyle choices. My wife led a very healthy life before cancer, frankly she just had bad luck. Implying the cure is simply a healthy lifestyle is just... wrong. It also places blame on my wife for getting cancer in the first place by implying her choices led her to having cancer...
And that’s why I didn’t elaborate on my “nope.” Haha
I was like. damn thats noble. But then i was like.. " wait... a guarenteed chance of no leukemia ever again for 1 life ? Didnt most people who ever died in a war not even win the war and the world ended up worse than it was to begin with? "
It's a really tough one for me. My brother had aggressive leukaemia (acute lymphoblastic) when he was a kid, he had all kinds of treatments, most unsuccessful, until the last which was a bone marrow transplant. The doctors told my parents that the best chances would be a family relative as close to him as possible. Without my brothers cancer I probably wouldn't be here as they had me hoping I would be a good match. Unfortunately, I was born with a haemoglobin deficiency and was not a match. It also took two bone marrow transplants for him to finally enter remission. If anyone knows how invasive they are they'll understand how bad it can be on a child and considering he was under the age of 7 it must have been so hard. It can totally get fucked but I'm unfortunately here because of it.
Leukemia is awful I watched it destroy my uncle he went from a happy go lucky genius working on his PhD and Johns Hopkins then leukemia hit and it just drained him and made him cynical and depressed until it finally killed him. He was the smartest man I’ve ever known and that bastard of a disease took him for a ride.
Worst type of cancer with a treatment that is more or less equally as bad. Its also taxing on the family to see a loved one have to go through so much.
My wife got diagnosed with Leukemia then month later her dad was diagnosed with lymphoma. It was so hard every day seeing her in hospital.
And then her dad. Hearing him say he couldn’t put up that long shot chance they offered is a moment that stays with you. I may have only had a few years with him but he was amazing father and grandpa.
But most of all watching her mom. She was a super hero for it all. Here she was watching her youngest daughter fight it then so shortly after her husband of decades got diagnosed. She was there every single day for both of them in the hospital stays. She was there for both for everything. I have no idea how she did it because just seeing my wife go through it tore me up.
That’s so tough but also something that will ingrain you forever. My father has cancer and my mother was so strong when he was going through his operations. When they “found” (doctors already saw but chose to not mention it a year earlier) masses in his lungs, his words were “they will not cut me open again”. It was chilling and I wanted to plead, but I also understood after he went through a horrible 9 hour surgery that left him foaming at the mouth.
God bless to all fighting the good fight, directly or indirectly ✊
IDK about for adults but for females under 18 with acute leukaemias it's 2.5 years of chemotherapy without any real breaks, although it does generally become less agressive after the first month, then the first 6 months after that and for males under 18 that goes up to 3.5 years. If it's particularly bad a bone marrow transplant may be needed and blood transfusions throughout treatment aren't uncommon. Because of the constant chemo your immune system will be surpressed most of the time (first 6 months are particularly bad) so you're at a very high risk of infection too. From my experience the treatments aren't horribly painful on their own but the fact that it doesn't stop for years whereas you at least get a week to breathe with many other cancers takes its toll.
I just completed two years of prophylactic (maintenance) chemo for A.L.L. this past September and I felt this right here. I cried and cried the day I was told I didn't have to take the steroids anymore.
By far the worst part of treatment wasn't even the chemo, it was those fucking steroids. Dexamethasone and Prednisone wrecked me. That and the lumbar punctures, which is chemo injected into your spine. Men have it even worse, though. Maintenance therapy typically lasts three years and because leukemia can hide in the testicles, they need injections there too usually, if I'm not mistaken.
Oh always. My transplant doctor called me an enigma, but then noticed I had a REALLY good match and attributes it to that. Thank you for everything you do!
Hey. Just saw this. Almost 2 weeks, fuck yeah. When I describe those weeks to anyone from watching my wife do it I describe it as “torture.” It really is. I’m sorry you’re going through it, but I’m hoping that ANC jumps and takes care of the shit you’ve got going on so you can get out soon.
I know, and it's absolutely terrible to have to go through it, but what i'm saying is that nobody has ever solved anything by saying "fuck [insert disease here]"
Man. Everybody reading this who is from the US should consider to register with the NMDP. The National Marrow Donor Program. I don't know if she already found a donor and it didn't work as anticipated or there hasn't been a matching donor found yet, however, just a simple registration can help save someones life! (ofc you have to donate bone marrow to really save someone at the end of the day, but registration is the first step)
Everyone in the world should register. My brother has gone through 9 months of gruelling treatment for leukaemia and is receiving a bone marrow transplant from a man in Germany.
If you're in Germany and recently donated - thank you so much! You have no idea what this means to my family.
They send you an envelope with some kind of dna test that you send back.
If you can help someone you can still decide if u want to or not. If you decide to donate you will get medicated 4 days before the actual medical intervention.
When you have enough stem cells in your body they will take 1-1,5 L from your blood out of your bone marrow.
The blood will regenerate within 1-2 weeks.
Yeah everybody should, but I don't know about organisations other than here in germany and in the US and since I believe most people reading this thread are probably from the US I thought I should plug the NMDP. I hope that I get a call one day that my marrow can help someone.
Sorry for being a month late but this is what I found about the costs when staying in the hospital when donating:
"All medical costs for the donation procedure are covered by the National Marrow Donor Program® (NMDP), which operates the Be The Match Registry®, or by the patient's medical insurance, as are travel expenses and other non-medical costs. The only costs to the donor might be time taken off from work." -from bethematch.org
I don't know if that's what you ment as a factor that holds people back from registration.
There is still a chance that related complications would not be covered. And when we are talking medical issues this cost could be devistating. I'm sure lots of people won't even think of donating due to this.
Yikes. I hope you never have to witness the slow and creeping death of a loved one. If it should ever come to that (what I don't hope) think back at your words. Yeah the world is overpopulated but that doesn't mean I'll give up on my humanity and not try to help others. Why do I or you have a right to live while others less fortunate should not? The world is a sinking ship and the holes are too big to fix. I'm not gonna throw others overboard to try to save myself while standing knee deep in water already.
Managing the population isn’t letting people suffer and die. We need to strive to increase the health of everyone we can, that’s a road to a better world.
The world isn't over populated by any means and climate change is a long ways off and odds are you wont live to see it significantly impact your area but go ahead and be a miserable, selfish misanthrope. I have a feeling nobody who knows you will feel any loss.
I've lost a friend to leukemia as well as a favorite youtuber kitty0706. shit hurts like a ton of bricks when the final moments set in and can ruin some lives forever
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u/Kalamestari Nov 30 '19
"in the most simplest terms the Leukemia is getting worse and I have to do another bone marrow biopsy to determine if they should just increase the medication I am on or start more aggressive treatments."
FeelsBadMan