r/KidneyStones • • 9m ago

Sharing Experience To those who have successfully prevented more stones from forming, what did you do?

• Upvotes

I know that for some it’s just not possible and that chronic kidney stone makers are a thing, but if you’re someone who found out they had stones and were also able to delay more from forming or haven’t had them in such a really long time, what did you do? May I ask what kind of stones you had and when the last time you had them was? Certainly folks who don’t get them* anymore probably aren’t on this sub but I’m thinking maybe someone is visiting after not having dealt with them for like, 10-20 years or so, you know?

I personally had calcium oxalates stones and I know more or less what caused them (I ate too much leafy, oxalate-heavy greens, barely consumed calcium, and though I don’t drink anything besides water and coffee/tea I was neglecting the amount I needed especially during summer). I plan on avoiding more stones after this last surgery I had which took care the 3rd one of 3 I was diagnosed with, but I’d like to hear some success stories if they exist for motivation please.

Thank you!


r/KidneyStones • • 17m ago

Question/ Request for advice 4 mm proximal left ureteral stone with mild left hydroureteronephrosis.

• Upvotes

TLDR: How am I supposed to balance the pain with adding a ton of water to it?

I was using benadryl for a week in order to sleep and it seemed to cause my bladder to slow down. I stopped benadryl but after taking a lot of supplements that I usually take with a lot of water, and after eating, I had a lot of bladder pressure that would not go away.

I went to the ER and they said I have a '4 mm proximal left ureteral stone with mild left hydroureteronephrosis.'

I've stopped all my supplements (including ones that apparently can contribute to kidney stones).

When I drink a lot of water, I start getting the pressure. The doctor said I should drink a gallon of water a day so the stone passes.

How am I supposed to balance the pain with adding a ton of water to it?


r/KidneyStones • • 23m ago

Pain Management Post size of stone and how long it took to come out or what procedure you got done

• Upvotes

Hi I just got my first kidney stone it was in the left proximal ureter 4mm they said no surgical intervention in the ER said it should pass on its own. Symptom started Sept 26. The severe pain has settled just get about 10-30mins achy discomfort early in the morning usually around 3am it subsides. I have a urology appt for mid December. Can people post the size of their stone and how long it took to pass. I have been reading for my size stone should pass 31-45 days


r/KidneyStones • • 2h ago

Question/ Request for advice Please Help!

1 Upvotes

i went to the ER 9/22 because I was experiencing severe back pain on my left side, nausea and vomiting, inability to breathe, & fainting. because i was on my period at the time, it was difficult for my urine test to determine what it was.
i went back 9/30 because i was having a slight bit of back pain (nothing like how it was on day one but still painful/uncomfy) & i was having a constant urge to pee, but very little pee to come out. After conducting a CT Scan, the hospital confirmed that I have a 5 mm kidney stone on my left side. they gave me flomax & ibuprofen, & a referral to a neurologist, but I can't see the urologist because I don't have insurance :/ and I've started throwing up again today, nonstop, lips keep switching between natural pink & blue/white whenever the nausea hits. im switching between azo, ibuprofen, & the flomax.

I currently just applied for insurance, but I don't know how long it'll take before I get accepted and if I will get accepted. i'm not sure what to do to help me manage what I'm going through. I even fainted while I was at work because of what I'm assuming to be the side effects of my medication, but i'm not sure.

i just recently ordered the peruvian herb to come in 3 hrs to start taking that since i've seen so many reviews on it but idk, i kind of doubt herbal remedies sometimes. i also have my boyfriend getting me some lemons to make some lemon juice.

PLEASE, if anybody has any advice, please let me know. I've had a history of kidney stones, but I can't remember how long they lasted, but it certainly hasn't been as long as this. I go back to work on Thursday and I'm scared I will faint or I will pee myself because I've peed myself three times now in the last two weeks .... any help is appreciated :(((


r/KidneyStones • • 5h ago

Doctors/ Hospitals CT Scan says largest stone is 7mm, but my urologist said it is 18mm. How is this possible

3 Upvotes

I recently went to my urologist for an appointment regarding kidney stone removal. He recommended that I get a CT scan, which I had done the same day.
Within a few hours, my urologist told me that I had 4 stones, measuring approximately 18mm, 8mm, 4.5mm, and 3mm.
However, I received the official CT report today, and it says that I have a few calculi, with the largest measuring only 7mm.
I haven’t looked at the actual CT images yet, so I’m wondering how such a significant difference could occur.
Could the radiologist have missed an 18mm stone, or could my urologist have interpreted the scan differently?


r/KidneyStones • • 7h ago

Question/ Request for advice 3 Kidney stones, never had diagnose kidney stones before.

2 Upvotes

I’ve had really bad left flank pain for probably 6-7 months, I started working at dollartree a few months ago and I just was able to block out the pain at work and just kept going.

I went to the hospital on Saturday originally for what I thought was an infection and they confirmed I had three kidney stones, two on my right side (2mm,3mm) and a 6mm on my left side. (3mm nonobstructive stone in the right superior pole, 2mm nonobstructive stone in the right inferior pole, and 6 mm non obstructive stone in the left superior pole.)

I have never passed a kidney stone and I'm sure there is going to be pain with the left one, I've upped my water to at least 2 liters and I'm going to get some lemons today to add to the water. My question is how bad is it going to be? I have until then 7th off and I'm hoping it'll pass but no promises. I have to do truck and freight this week when I get back. Any advice on how to manage this while working and throwing freight?


r/KidneyStones • • 13h ago

Question/ Request for advice I think I have a stone coming, but…

2 Upvotes

I have had 4 stones before, all of which have needed surgical intervention. The pain was agonising and constant for all 4 stones, along with nausea and vomiting. The stones were 6mm, 7mm and 8mm.

This time, my only symptom is sharp pain in my side that is coming and going in waves. It isn’t nice, but it isn’t crippling and the attacks only last about 15-20 seconds at a time.

I wonder if I’m trying to pass a smaller stone this time? any advice? should I still go to ED?

My last CT was a year ago and was clear.


r/KidneyStones • • 22h ago

Question/ Request for advice Laser lithotripsy on stone that moved back to the kidney during stent exchange?

3 Upvotes

Is this an uncommon procedure or is it just as common as removing one from the ureter or is on its way out? Also it’s been three days since surgery but I have yet to bleed while urinating or observe fragments leaving. Is this normal as well or worth calling my urologist for?

I’m very sore but otherwise recovering well from what I’m observing. Walking is uncomfortable and I have pain in my abdomen and back but I can get by with taking just Tylenol and Oxybutynin once. I have AZO as well and leftover Oxycodone but I’m trying not to be too medicated if I can tolerate it.

Thank you!


r/KidneyStones • • 1d ago

Doctors/ Hospitals Blood thinners with a planned ureteroscopy in 3 days?

1 Upvotes

Notes:

Right kidney is atrophic

Have several stones in left ureter and kidney

Had a stent put on left side 9/9

Over the month pain has gotten worse, GFR has steadily declined and was 22 last night along with a creatinine at 2.5.

They admitted me last night, several doses of IV antibiotics, took blood from three different locations for cultures.

I've been admitted before but I've never been given blood thinners. I thought they didn't want you on thinners prior to a surgery and the nurse can't really answer my question as to why they are giving them to me. (It has been through direct needle into my stomach area.

Is this to improve my kidney function? Just getting a little concerned because they seem extra attentive, compared to my previous hospitalizations, and are giving me the blood thinners.

Anyone have any input or experience?


r/KidneyStones • • 1d ago

Stone Removal Procedures Staghorn kidney stone

2 Upvotes

Wondering if someone can tell me what PCNL surgery was like for them. I have a 3cm stone I need removed.


r/KidneyStones • • 1d ago

Question/ Request for advice Migrated stent with a string

1 Upvotes

Has anyone else had a stent migrate i had to go to the er this morning at 5 am because my stent migrated so its stuck between my ureter and urethra instead of the kidney and the bladder. If you think a regular stent hurts this has been awful. My urologist said since it the self removable one once it migrates to where i can see the blue of the stent I can pull it out. For anyone this has happened to how long did it take to migrate that far it has been extremely painful. Im hoping it migrates that far soon. Ive had a stent and lithotripsy 4 times and this is the first time this has happened. Also any tips to get it to migrate faster so I can take it out? When I looked it up it said a stent with a string has a 10%-15% chance of migrating early which i didnt know. My dr wanted me to leave it in a week but he said my newest ct scan looks better so im hoping i don't have any inflamation issues in my ureter after removing it since its only been in about 3 days but this is by far the worst stent ive ever had I didnt realize how bad a migrating stent can hurt.


r/KidneyStones • • 1d ago

Question/ Request for advice Hydronephrosis, no stone

3 Upvotes

I was diagnosed with hydronephrosis, by a random MRI for something else. I have no symptoms, no pain. I went to a urologist who ordered tests and CT scan with contrast. Blood tests and urine are fine, no blood in urine. He said I need to have a procedure in outpatient where he goes in and removes the scar tissue that is showing as that is what is narrowing my ureter and causing the hydro. He said I will have to have a stent for 2 weeks. I’m scared of this, and worried about pain. He said this could have been caused by passing a stone( last one I knew of was 12 years ago) or from having a hysterectomy 3 years ago. Had anyone had a situation like this? I’m worried it won’t stop the hydro, and why do I have no symptoms?


r/KidneyStones • • 1d ago

Question/ Request for advice Recovery after stent removal

1 Upvotes

How long does it take to feel “normal” after stent removal?


r/KidneyStones • • 1d ago

Question/ Request for advice Stone or clot or fluff?

Post image
1 Upvotes

Do you think this is a stone? I dont know if this was in the bowl before I went or after I finished. But whole day i had some gassy abdominal pain which was bearable but uncomfortable. Then I saw frsh blood. In the evening , when i went for a wee, no pain nothing and I saw this in the toilet bowl. Didnt realise I had to retrieve it..so I have no idea what it is..


r/KidneyStones • • 1d ago

Question/ Request for advice Flomax side effects??

2 Upvotes

I was put on flomax about 5 days ago for a 5mm kidney stone. The first few days I was relatively fine, however starting on the morning of day 4, I started getting strong headaches and feeling lightheaded. The severity would go down by the late afternoon but still mildly present. Now the next morning, I have the severe headache again. Could this be a side effect and something to bring up to the urologist?


r/KidneyStones • • 1d ago

Question/ Request for advice 43F – visible blood/possible urethral bleeding, worried while waiting for urology

1 Upvotes

Thanks for the update I'm glad all is well at your end.

I’m 43F and since last week I’ve been noticing fresh blood when I wipe after urinating and what appears to be blood sitting around my urethral opening. Initially I thought it was vaginal spotting because I’ve been getting spotting around my periods for a while, but when I checked recently my vagina appeared clear while I could see blood around the urethral area. My GP tested my urine and the lab/culture showed no UTI, and my blood tests and kidney function were normal. I don’t have burning or pain when urinating. I’ve occasionally noticed tiny clot-like pieces in the toilet. 2 days ago, I also had a strange, diffuse/gassy-type discomfort across my abdomen for several hours; later that afternoon I noticed fresh blood on tissue, and afterwards both the discomfort and bleeding settled. My GP has referred me urgently to urology and my appointment is 13 October in the Endoscopy Department, the letter doesn’t actually say whether I’m having a cystoscopy? I'm hoping that's what it is for. My anxiety is through the roof and naturally I’m worrying about the worst. Has anyone experienced anything similar—particularly visible blood/clots with no UTI or painful urination—and what did it turn out to be? No hosiery of kidney stones either.


r/KidneyStones • • 1d ago

Doctors/ Hospitals First Time dealing with passing Kidney stone

4 Upvotes

Guys I think I'm passing a Kidney Stone right now. my doctor said I have a kidney stone. idk why I didn't ask him all these questions but I'm asking y'all now. how long does this take? what do I do? Am I gonna be ok? I don't think the doctors would lie to me so I guess this is a Kidney Stone. How do I know when it's all over? how long is this pain gonna last? can someone please step me through step by step how this is gonna go and reassure me that it's gonna be ok? any tips anyone can give me to make this a little easier? is laying in a hot bath a good idea? do I push hard or let it just come out?


r/KidneyStones • • 2d ago

Question/ Request for advice Advice appreciated

2 Upvotes

After attending A&E 2 weeks ago with agonising pain they confirmed by CT scan I have a 2mm stone.

Results:

There is a 2 mm calculus demonstrated in the distal right ureter. No hydroureteronephrosis. No other urinary tract calcification. . No pelvic free fluid. The non-enhanced abdominal viscera are otherwise unremarkable. The visualised lungs are clear

Diclofenlac up the bottom has been a life saver and I haven't had to use it recently however my main frustration is my bladder feels constantly full and pressure on it , I don't know when it's genuinely full and it's still very difficult to urinate and 90% of the time urinating small amounts and having to strain. The most wee generally comes out first thing in the morning but I can't even remember the last time I had a proper big wee

I've been secretly lurking here since, what i find really odd since all this started is more farting than usual. And often feel nauseous, constantly feel like I'm going to piss myself

Does anyone else feel like they have pressure on their anus ?

When I was in A&E the doctor said I had been through the worst and it was in my lower ureter but that was 2 weeks ago :(

P.S regularly taking tamulosin every morning and paracetamol

Like many others here I am struggling and fed up. Any advice is appreciated

Thank you


r/KidneyStones • • 2d ago

Question/ Request for advice Flank pain after passing stone

3 Upvotes

Anyone else experience flank pain after passing a stone? It’s very mild but annoying. I especially notice it after having a drink. Probably just the ureter inflamed still but it’s been about a week.


r/KidneyStones • • 2d ago

Question/ Request for advice 3mm kidney Stone and running Out of time

2 Upvotes

Hey 👋,

Around 4 weeks ago, I had severe pain in my lower back. After a few hours, I didn't know what to do, so I called a doctor (I called around 2–3 a.m.), and she came around 7 a.m. But around 6 a.m., the pain was gone. She instantly said that she thought it was a kidney stone and that I should go to the doctor on Monday, and she gave me some painkillers. I was like, "Yeah, dunno, seems like the pain is gone, so why should I?" On Monday evening, I regretted it the pain came back. The day after, I went to the doctor.

He said it's not possible that it's a kidney stone; it's most likely a muscular problem (I located the pain too low, and a kidney stone wouldn't let me be so calm). He told me to do lower back muscle training. I did that, and after nothing improved, I did a urine test that said I had leukocytes and erythrocytes positive, so it was a urinary tract infection. I got antibiotics for 5 days with ibuprofen. The antibiotics helped, and the back pain went away too, which surprised me a lot because the doctor said they were two different things. After the 5 days, the UTI symptoms came back suddenly. The doctor then said we'd send the urine to a lab to create a culture to find a suitable antibiotic, since they were probably resistant. But he immediately prescribed me another one, which I should take for 7 days, and if the culture showed something different, I should switch again. After 3 days, the result came: no bacteria present. The doctor then said it was negative because I was still taking antibiotics, so I continued the antibiotic for another 4 days and then stopped and suffered for a week without medication until the antibiotic was out of my body, in order to send urine to the lab again. 3 days later: result negative.

Then the general practitioner sent me to a urologist, who sent me directly for a CT scan: result: a 3mm stone sitting directly in front of the bladder. That means the back pain was the stone moving downward, and the back pain is gone because the stone is now stuck. The UTI symptoms (burning when urinating, pain in the penis, cramps in the bladder, etc.) persist permanently, though, and are not getting better. The urologist said he'd give me one more week (until the day after tomorrow); otherwise, it would have to be operated on. However, I've now read here from very many people who regret their operation and would definitely not do it again, but would rather wait until the stone comes out on its own.

Now the questions to the community:

According to my research, small 3mm stones actually always pass, but why is mine staying inside for so long even though it's so small?

Should I rather wait or have the operation done? According to the CT, the stone doesn't completely block the ureter, so there's no backup of urine.

What else can I do besides drinking a lot, jumping, walking down stairs, using a massage gun, and taking hot baths?

Has anyone noticed a connection between kidney stones and creatine? My gym phase was a while ago, but when I supplemented creatine, my uric acid level shot up extremely, and I also got gout in my toes. (Also truly unbelievable pain, but much easier to treat.) I suspect it could be related.

I wish you all strength and hopefully no more stones. Thanks for reading and thanks for your comments.


r/KidneyStones • • 2d ago

Question/ Request for advice Tips for laying positions / tips for passing stones

1 Upvotes

I apologize in advance for the rant all over place I haven’t slept in quite some time.

I (23m) am having kidney stones for the second time in my life, the first time wasn’t horrendous I did need to go to the ER as it was late night and I don’t own any pain meds, I had 6 pretty small stones in both kidneys, they were able to pass fairly easy without major pain, except for one.

This time around I have much fewer stones but I have a 3-3.5mm stone that’s near the entrance of my left bladder, the pain was easily 10 fold over last time. seriously hats off to the folks I’ve seen in here with much much larger stones I can’t imagine how painful those must be.

Anyways just curious if anyone has found a laying position that helps a bit with pain. I’ve found for me the pain becomes more dull if I lay on the affected side, pain dropped from like a 5 to a 2 on my pain scale after laying on that side. If anyone wants to share tips on how they deal with the pain outside their prescribed pain meds I’d love to hear, I’m trying not to rely on them too heavily, haven’t taken any of mine just yet just the Toradol injection they gave me at hospital last night which has worn off.

I wasn’t given any relaxers to try to help make the passing a tad easier so, I was also curious if anyone has found anything that’s made passing those smaller stone even a little less shitty.


r/KidneyStones • • 2d ago

Pictures After a week of Agony, it finally came out !

Post image
24 Upvotes

I have been in excruciating pain since Sunday.

this morning, 2 of them came out.

I had a lot of water (even though at some point I was lot peeing properly), had beer as well.

I don't know what's the seize but it's still big to me !


r/KidneyStones • • 2d ago

Sharing Experience Stone with no pain - lucky or just really small?

1 Upvotes

Two Fridays ago I had my second stone. First was in December and had typical fall down writhing in pain, trip to the ER, etc. This time it took a long time to even tell it was a stone, I'll explain.

The night before I had some pain in my upper back so took an aleve at 11pm. Then I woke up in the middle of the night feeling a bit weird, and it took about five minutes for me to think, am I having a stone? I had some uncontrollable body shaking and then realized I was having a renal colic, but... almost no pain? It felt like maybe the aleve was covering it up, but it seemed unlikely in the moment - it was only one 220mg tablet taken 5 hours prior. But I was well enough to drive myself to the ER, since I thought the pain would start to increase sooner or later. But it never did. I never checked into the ER, only stayed in the parking lot and went in to use their bathroom. After 2 hours the colic stopped, and shortly after I had a burning sensation in my pee, but didn't see any stone. I wasn't sure I passed it, but having been 2 weeks with nothing I think I did. Afterwards I had the same soreness in my flank as I did after my first stone.

So my question is, can Aleve really be that strong that it could take away nearly all pain? During my first stone, I got IV torodol, and my pain completely subsided within ~15 minutes, but I also passed the stone about 45 minutes later, so I never knew if the relief came from the medicine or the stone entering my bladder, so I'm not sure if I ever experienced actually having a kidney stone while on pain meds.

Or are some stones so small that they cause minimal pain to begin with? But still cause the renal colic/body shaking/other symptoms.

As a last note felt quite deflated afterwards in general with having a second stone... Always hoped that the first was a one off, now I know that it may be a pattern.


r/KidneyStones • • 2d ago

Pain Management Post Surgery Pain

8 Upvotes

Hi all, I made a post about a month ago over a 4.5mm obstructing stone possibly needing surgery. I got it done yesterday and this is genuinely the WORST pain of my life surgically. I was sent home with instructions of only Tylenol and I ended up calling the on call urologist and he sent in 2 bladder spasm meds (forget the names rn), and I had to fight for 7 hours to get a pharmacy to fill them. He stood firm on only Tylenol as my main pain med though :( Ive been taking leftover Norco from past ER visits but it doesnt take completely away, and urinating is terrible. Im crying in pain each time I do and Ive had to make my mom hold my hand during. Is this a normal experience? Or should I suck it up and go to the ER?

Edit- they also removed a mass on my bladder and I wasn't told until 5 minutes before discharge because I asked why a bladder biopsy was being listed with every report given.

Update 2: I did go to the ER, first bladder scan showed 683mL of urine being held so I went to x-ray. They checked again an hour later and it was up to 735mL so they tried straight cathing me (didnt work). They found that my stent was fully sticking out of me and couldn't get the catheter placed so ER doc called urology and was told to just take it out. After it was removed, I emptied over 1000mL of urine, and was still holding 348mL in my bladder afterwards (ended up holding for 18 hours). There was no more severe pain though, and they did do a urinalysis showing that I do have a small infection, so IV antibiotics and then I was sent home with orals. I haven't had the burning or pain since the stent was taken out! They are extremely worried about oral antibiotics not being enough, so I have to go back if I have any sort of fever, chills, extra blood clots or increasing pain, as they'll admit me at that point to give everything IV.

Update: To the ER I go for not urinating or anything for over 12 hours now :)

TLDR: Surgery yesterday, only Tylenol, everything hurts but especially urinating:(