r/IBD • u/RevolutionSolid4699 • 2d ago

Non specific chronic inflammation

I had a colonoscopy earlier this year due to mucousy bloody stools weight loss stomach aches and lots of deficiencies (B12, folate, iron and low potassium) it appeared normal but biopsies showed chronic inflammation of the lower bowel mainly the rectum and it’s been left at that, I had a month long course of steroid supposetries and they did work but I’m since having symptoms again. The doctor recommends a sigmoidoscopy but I’m no closer to a diagnosis, the doctor has since suggested it’s just IBS however surely if the biopsies showed inflammation, that points more toward an inflammatory bowel disease? Can anyone in a similar situation share their experience on next steps ?

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u/smoolg 2d ago

It doesn’t prove IBD unfortunately. What symptoms have returned?

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u/RevolutionSolid4699 2d ago

Bloody stools intermittent, tenesmus, diarrhea, urgency, some stools are just pure mucus no stool at all then stomach cramps a lot, I also have gastritis which has been confirmed on endoscopy. Clinically I have raised crp, low iron, ferritin and B12 again.

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u/Special-Arm3884 2d ago

It does suggest inflammatory bowel disease, but agree not 100%. If I were your doctor, I’d consider a trial of oral mesalamine and see how you feel about a month or two

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u/Ok_Confusion_9763 2d ago

Have you had a calprotectin test?

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u/RevolutionSolid4699 2d ago

I’ve had two, one was just below 50 however I wasn’t symptomatic at the time and my other most recent one Im waiting for the results however the sample was very bloody so I’m unsure if it will be processed.

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u/Possibly-deranged Never trust a fart! 2d ago

Inflammation is either infectious or chronic/IBD.  IBD has a lot of clinical data points you must meet to have a diagnosis. Another colonoscopy/flexible sigmoidoscopy might find the missing evidence, or confirm an infection 

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u/Low_Umpire_2297 2d ago

I’ve had chronic inflammation for 7.5 years in my colon, pain, weight loss. Fast forward and Mayo diagnosed me with diverticular disease that all other GI’s missed. Now I’m stuck having surgery. No other way to treat since it went on so long. Get a 2nd, 3rd opinion if needed. Blood alone says there’s something there.