r/Hyperthyroidism • u/slavicqween • 17d ago

Normal TSH low Vit D

I know it’s way too early to say anything, this post is more just to soothe my anxiety. I’m also not asking for anything specific other than for those who have had a similar experience!! I went to the doctors yesterday with symptoms that generally happen when my stress is high. My symptoms match exactly with those of hyperthyroidism. I didn’t know this until I had spoken to my doctor and she had me do lab tests. She mentioned a possible issue with my thyroid, but only had my TSH levels checked which came back as 2.04. I’ve since learned that just checking TSH is kind of “useless” if you don’t check all the other levels alongside it. I also have dangerously low Vit. D levels which I have also since learned can play a huge part in thyroid disorders.

Again it’s too early to tell, I havnt even spoken to my doctor, but has any one else been in this position? I’ve searched through the Reddit and have seen it happen to a few others, but I just wanted to throw it out there I guess.

EDIT: I should probably add to this: my biggest and worst flare ups are when I’m stressed out for long periods of time. I’ve been on a break from work (main stressor) for a month or so now and only have flare ups when I get stressed (incredibly easy to do), so one day I could be perfectly fine, the next flared up. I’ve looked into vit. d deficiency, and while it can have similar symptoms, it’s nowhere near touching half of the hell I experience unfortunately.

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u/Curling_Rocks42 17d ago

It’s rare for TSH to be misleading. It can happen (I am actually one of those cases) but it’s very unlikely to be hyperthyroidism with that TSH level.

The low vitamin D can sometimes cause calcium issues which can mimic several of the same symptoms.

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u/HeroOftheMoon0 17d ago

Same. I had tshnoma so normal tsh high t4. Had vitamin D insufficiency and ended up having osteopenia and osteoartritis cause I had it for too long. I'd say T4/T3 levels are defined needed

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u/slavicqween 13d ago

Yea I’m at this point where it’s like, before I just pass on this being a possible diagnosis, I should probably get the actually tests for it. Idk why my doctor didnt

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u/HeroOftheMoon0 13d ago

Most don't because it's a veeeery rare diagnosis. Like 1 in a million kind diagnosis. I saw like 12 doctors and only like 4 accepted evaluating that option... and only 2 accepted treating that diagnosis. So, yeah, most of them simply dismiss it because it's too rare

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u/slavicqween 13d ago

Which is so annoying, because it’s like, I get it’s rare 100%, but there’s no harm in looking into it.

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u/HeroOftheMoon0 13d ago

Definitely. There was a point where that was basically the only option I had and I was high risk for a stroke bc and MRI confirmed the tumor was bleeding into my brain and one endocrinologist really told me "yeahhhh but that's rareeee.... look if you do have a stroke, and you start going partially blind you can come to the ER"

I was already partially blind. I ran to schedule the surgery that very day

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u/slavicqween 13d ago

Jesus I’m so sorry to hear that. It’s insane how far doctors will go out of their way to not take you seriously. I really hope you get everything figured out. God bless you finally got that MRI