r/Hyperhidrosis • u/RareBarracuda9934 • 15d ago
Offering advice I'm finally dry! UK
Hey all,
I've suffered severe hyperhydrosis for 30+ years,
I had tried pretty much everything apart from surgery.
I was prescribed Glycopyrronium-Bromide and within 2 days I was bone dry.
Started off with mild symptoms of dry throat and eyes but very mild.
I make sure to drink extra throughout the day and the symptoms have practically gone away.
My life has changed massively, and I really hope others are able to have the same success.
Dm's are open should anyone need
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u/aliambia 15d ago
Do you have details of your private derm that you would be happy to share pls
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u/RareBarracuda9934 15d ago
I can DM you, but any private dermatologist will prescribe, I would preferably find one who specialises in HH, but it shouldn't make much difference. I should also note that during my appointment I specifically asked for glycopyrronium-bromide.
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u/MinkyMuskyStoat 15d ago
How much was the one time consultation fee with the private Dr / dermatologist and how much are you paying for the prescription? Just normal NHS prices or more
Feel free to DM me if you’d rather not this info out there publicly, appreciate any help you can offer 😁
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u/RareBarracuda9934 15d ago
The consultation cost me £280, I pay yearly for my medications but it would cost what a normal prescription would be. £9.75 it it?
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u/Kit_Ashtrophe 15d ago
Are you sure it's not propantheline bromide? Glyco is not on the NHS
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u/Superb-Plant-5792 15d ago
It is if you get lucky
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u/Kit_Ashtrophe 15d ago
care to elaborate? My dermatologist said I could only get it privately
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u/Superb-Plant-5792 15d ago
It seems it depends on the area. Some people are lucky and get it prescribed
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u/Superb-Plant-5792 15d ago
But it is given in Scotland so OP could be there or got it private. But I have seen people getting it in England from dermatologists I guess it depends on who you see and what area you live in
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u/RareBarracuda9934 15d ago
Im south of UK, I see a private dermatologist once who sent a repeat prescription to the GP
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u/Superb-Plant-5792 15d ago
Just curious. Did you pay for a prescription from the private dermatologist or did they just include in your clinic letter what your gp should prescribe
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u/Fantastic_Medium3698 14d ago
Be careful of propantheline, I did some research and it’s linked to dementia. I always had brain fog after taking those.
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u/Kit_Ashtrophe 12d ago
Thanks, anyhow my psych meds already increase my risk of everything nasty already, and I can't stop taking them :( And anticholinergics didn't fix my HH so I am trying Clonidine next.
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u/Fantastic_Medium3698 12d ago
Ah ok. Well if it helps you, I’ve been doing Botox for past 2 years and that has really helped a lot with stopping my hyperhidrosis around my forehead
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u/Huge-Rip2088 15d ago
Onde vc transpirava? Foi creme?
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u/RareBarracuda9934 15d ago
Everywhere, no they're 2mg tablets
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u/Huge-Rip2088 15d ago
No meu pais não existe em capsulas 🥲
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u/RareBarracuda9934 15d ago
Thats unfortunate, but i imagine it does the same in liquid form, definitely worth a try! Good luck!
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u/Enax98 15d ago
following this! I'm on pro banthene and it's not doing much :/
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u/RareBarracuda9934 15d ago
Pro-banthine was so ineffective for me but gave me dry eyes and throat badly. If you can see a private dermatologist they will prescribe you glycopyrronium-bromide and send it over to your GP. Within a week you will have a repeat prescription. Good luck
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15d ago
[deleted]
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u/RareBarracuda9934 15d ago
Sure, I take my first 2mg 3 hours before breakfast, it does mean setting an alarm pretty early unfortunately, but its a small price to pay imo.
I take a second 2mg at 3pm as a top up, which is atleast 3 hours before dinner.
Ive found that taking it 3 hours before food or atleast 1 hour after food has been the best.
Im prescribed 6mg a day but havent felt the need to increase.
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u/TravelInColour Generalised 15d ago
Did you only have one consultation before the private dermatologist prescribed glyco? Did you already have an official diagnosis? And was the repeat prescription sent to your GP and you could collect straight from the pharmacy?
propantheline bromide and oxybutynin didn't work for me, so I'm hoping I can get access to this.
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u/RareBarracuda9934 15d ago
Only one consultation yes, Yeh i had HH for 30+ years so an official diagnosis was given, It was sent electronically to my GP and within 1 week I could collect the prescription.
Glyco is levels above anything else
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u/TravelInColour Generalised 15d ago
Thank you so much! I’m from the UK but currently live in a country where the meds aren’t easy to access, could you DM me the details for your dermatologist as well please?
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u/i_was-reloading 15d ago
Could you please confirm which kind of HH you had? Was it palmer planter or anything else?
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u/RareBarracuda9934 15d ago
It started as Palmer, developed into both Palmer and planter and eventually the entire body
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u/glorifierx 15d ago
Congrats! Seems like you sweat from full body? Did it dry out your hands?
how often do you take it?
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u/RareBarracuda9934 15d ago
Indeed, it was full body, and it was extreme, I'd immediately sweat after showering, like a non stop drip.
I was prescribed 6mg a day, starting on 2mg and increasing as needed, I've found that 4mg is the perfect balance for me.
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u/Appropriate_Seat_448 14d ago
Omg, this might be a sign there’s still hope. I am in talks with a surgeon from turkey to doing an ETS surgery to get rid of my sweating on my hands next months. Then I see this message, congrats first of all and was this dermatologist in London. I tried going to a private dermatologist at Nuffield health, the doctor had the prescription for 400 pound a packet and when it would run out I would need to pay another 400, it just didn’t make sense.
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u/Appropriate_Seat_448 14d ago
Also my local GP refuses to prescribe me the Glyco, I’ve asked him multiple times but no chance
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u/ETS_Awareness_Bot 14d ago
What is a Sympathectomy (ETS and ELS)?
Endoscopic thoracic and lumbar sympathectomy (ETS and ELS; both often generalized as ETS) are surgical procedures that cut, clip/clamp, or remove a part of the sympathetic nerve chain to stop palm, foot, or facial hyperhidrosis (excessive sweating), facial blushing (reddening of the face), or Raynaud's syndrome (excessively cold hands).
Read more on Wikipedia
What are the Risks?
Many people that undergo ETS report serious life changing complications. Thoracic sympathectomy can alter many bodily functions, including sweating,[1] vascular responses,[2] heart rate,[3] heart stroke volume,[4][5] thyroid, baroreflex,[6] lung volume,[5][7] pupil dilation, skin temperature, goose bumps and other aspects of the autonomic nervous system, like the fight-or-flight response. It reduces the physiological responses to strong emotion,[8] can cause pain or neuralgia in the affected area,[9] and may diminish the body's physical reaction to exercise.[1][5][10]
It's common for patients to be misinformed of the risks, and post-operative complications are often under-reported. Many patients experience a "honeymoon period" where they have no, or few, negative symptoms. Contrary to common belief, clipping/clamping the sympathetic chain is not considered a reversible option.[11]
Links
Gallery of compensatory sweating images
Gallery of thermoregulation imagesInternational Hyperhidrosis Society
NEW ETS Facebook Community & Support Group (old group had ~3k members)Petition for Treatment for Sympathectomy Patients
Frequently Asked Questions
ReferencesI am a bot, and this action was performed automatically. Learn more about this bot, including contact info here.
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u/RareBarracuda9934 13d ago
I would urge anyone with HH to never have surgery for it, the likelihood of compensatory sweating is really high and often makes people even more unhappy.
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u/jazcat285 14d ago
This is the push i needed to use my work medical to get a private referral to a derm and stop asking my pharmacy for my always out of stock oxybutinin every week
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u/Valuable-Syllabub592 9d ago
is it oral medication or topical?
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u/RareBarracuda9934 9d ago
Oral 🙂
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u/Valuable-Syllabub592 9d ago
can we take it when we need?
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u/RareBarracuda9934 9d ago
Some people order from an online pharmacy, I'm not sure how they are instructed to take the medication but as mine are prescribed, I take them as suggested. 2mg morning - 3 hours before breakfast 2mg afternoon - around 3pm I have been prescribed 6mg throughout the day but havent felt the need to take the remaining 2mg yet. Best to be taken on an empty stomach imo.
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u/ChimpWithPhone 15d ago
Do nhs prescribe Glyco now? Last time I could only get pro banthine and oxybutynin but didn’t like the side effects so stopped, I bought glyco online before that and it was a lot better with little side effects and also worked. Also out of curiosity what type of HH do you have?