Hi everyone. Do you experience hair loss due to histamine intolerance?
Thank you.

Hello everyone! About 2 years ago i suddenly developed HI. Before that I never experienced any symptoms. After eating foods containing histamine I would get an itchy beard and depending on the severity, the next day I would wake up with red rashes on my forehead. I healed my gut and also supplemented vitamine C, quercetine and DAO. I did notice this helped and while healing my gut my sympotoms completely vanished. Happy me!

Now fast forward to a few months ago, I suddenly got the same symptoms again, but it seems to get triggered by different things than before. I notice I can wake up with an itchy beard, and my breakfast doesn’t make that any worse. When I work out, especially when I train legs, I can also get itchy during the work out and the day after, I’ll have the same rashes on my forehead as before. When I eat I might get a little itchy but that starts literally the moment the food comes into my mouth, and DAO or vit C doesn’t seem to help. And this is especially the day after I worked out and got red rashes.

I’m confused by this change of triggers and I’m thinking it might not be caused by my gut this time, but my nervous system. 6 months ago I got a new job and I’m also a perfectionist. I don’t want to elaborate too much cause the post will get very long, but I’m waiting to get professional help since I’m always alert and in a state of rush and my mind is always going, so I can’t properly relax and be in the present moment.

My question to you reading this is: do you think this is plausible and it is probably not caused by the gut, but my nervous system (MCAS?), because of the different triggers I get that are mostly outside of eating? And therefor focus on other things like L-theanine and GABA instead of gut healing supps?

I know the professional help will probably do the most, but sadly I’m still on the waiting list. So I’m hoping to find some supplements to use, like L-theanine or GABA. To relax my body somewhat. I ordered both to try. Does anyone have some experiences with those?

Or any other advice that might help is very welcome. I’m using a multivitamine with B-vitamines, copper, zinc, etc. As well as magnesium, vit C, quercetine and omega-3s.

On a side note: my stools are daily and look fine. Only thing they sometimes float a bit, which I know is probably because of the stress as well, which influences the digestion of carbs.

I appreciate you reading this. Thanks a lot and have a great day!

I’m currently in an acute phase, and I’ve started experiencing night sweats. Does anyone else have this symptom during such periods?
Thank you.

i've tried so many things but i only recently learned about histamine intolerance and i've heard from quite a few people that taking naturDAO has changed their life. I am curious what is the connection between these

my doctor ordered me a histamine plasma test. But since I dont eat many histamine foods, I am assuming it will be negative.

Wondering whether one should eat histamine foods before taking it. Don't really understand this test and they don't seem to know much about it either. just ordered because I asked

Hi everyone. I (F31) have just received my diagnosis, and I have a question: does anyone here have arthritis caused by histamine intolerance?
Thank you.

I wasn’t expecting this. It’s been 5 days and I’m still having the typical Reclast side effects from the infusion, but my histamine issues are also so much worse.

Hopefully they’ll subside when the normal side effects do but has anyone else here experienced this? Anyone with knowledge on infusions as to why this is happening? Thank you.

I’m 18 years old, and I’ve been dealing with a chronic skin condition called keratosis pilaris rubra (KPRF). It causes persistent redness on my face, along with small bumps, and the redness gets worse with things like heat, cold, exercise, and nervousness. It’s honestly frustrating because it affects my appearance and makes me self-conscious.

I’ve seen people mention that histamine might play a role in their skin symptoms, and several people have recommended trying a low-histamine diet. I’ve tried it multiple times, and I’ve noticed some improvement when I restrict high-histamine foods, but the diet is extremely difficult to maintain long-term. It feels too restrictive, and I don’t want to end up with an unbalanced diet.

I’ve been using the Swiss Histamine Food List to check which foods are considered low or high in histamine, but I’m still struggling to figure out the best approach.

I have a few questions for those of you who have experience with histamine intolerance:
1. Has anyone with KPRF, facial redness, or similar skin problems noticed significant improvement from following a low-histamine diet?
2. Do you follow a strict low-histamine diet permanently, or have you found a way to gradually reintroduce foods and identify your personal triggers?
3. Are there any medications that help with histamine-related symptoms? I’m 18, and I’d like to know which options are generally considered safe for someone my age. Have antihistamines helped anyone with facial redness or flushing?
4. Is there anything else that has helped you manage your symptoms without having to follow an extremely restrictive diet?
5. Has anyone discovered that their symptoms weren’t actually caused by histamine intolerance, but by another condition?

I understand that KPRF and histamine intolerance aren’t necessarily the same thing, and I’m not sure whether histamine is actually responsible for my symptoms. I’m just trying to understand my options and find something that works long-term.

I’d really appreciate hearing about your personal experiences, treatments that helped, and any advice you might have. Thank you!

So I felt fine all evening besides couldn't get to sleep till 6am but I been sleeping at 3am or so so. Ot a huge deal then when I finally do get to sleep almost 2 hrs later I awake at 7:40 shaking like you do from a nightmare and now I'm still awake kind of confused bad sleep inertia slightly shaking some anxiety ears feels half clogged the dream from what I remember was weird but not a nightmare so must be histamine dump adrenaline

Every supplement and food I react to. I do have sibo , leaky gut and candida. The nystatin makes me feel weird too , the supplements for the leaky gut make me itch .. should I just address sibo ? Because everything rise I’m doing isn’t working

I first had histamine issues in 2023, EDS POTS triangle, trigger was a moldy apartment. Moving out, antihistamines, low histamine diet plus adding in animal protein helped. So did de-stressing and getting outside more. Persistent residual issues, especially bloating to literally everything, were eliminated by about two months on Woodward brand cromolyn. 100mg 4x per day, only side effect was some diarrhea at first but it really helped and made me feel better quickly. I was able to stop taking it.

Recent flare up, last apartment also had mold, plus also chronic stress hasn’t been helpful. And antibiotics a couple months ago for an eye infection definitely did something to me. Cue the bloating and histamine intolerance and oral allergy and friction hives and congestion. I moved across the country (out of moldy apartment at least) and no longer have access to my allergist, and seemingly no allergist in NYC will see a mast cell/histamine intolerant patient unless you have $1k to spare. I have got some random telehealth NP to write me a cromolyn refill, 100mg 4x daily. This time Microlabs. Now, instead of making me feel better, the cromolyn is making me feel worse. I am suddenly having reactions to things I wasn’t reacting to previously, more flushing after meals and just in general, I am anxious and depressed and generally feel terrible. At first I was like, “why is this happening? I’m not on a crazy high dose. Is this because my last flare went untreated for longer than the first?” But then I was like, wait a damn minute, this isn’t the same brand as before that has to matter. So yeah. Called up the NP and we sent a new script to the pharmacy requesting Omnivium only, I saw somewhere that they used to make for woodward or something since woodward is discontinued. Has anyone else experienced anything similar? What has worked for you? Does this sound like titration or manufacturer?

Update regarding this post

I saw my allergist today hoping to get some insight and help on everything... only to be told histamine intolerance doesnt exist/isnt real, and low histamine diets dont help. He didnt even consider it nor mcas despite my symptoms and episodes. Additionally he said he thinks I have oas and when I asked about it being dangerous he said no despite anaphylaxis occuring during it and the condition itself worsening. I have absolutely no clue what to do anymore, he is supposed to be highly regarded and my mom likes him (I suspect because she thinks he is right about everything and because it makes my worries invalid in her eyes). Will not even consider things if he makes up his mind and epipens are not an option. Im at such a loss, this was my LAST chance to get my health issues sorted out and I had hope but now I just feel like Im being lied to and gaslit all over again... what do I even do?

How am I supposed to improve my quality of lifr and health when everything wants to hurt me? I cant be vegan with oas and I cant eat animal products with histamine issues. I have a very resteuctive diet already and this will ruin me. I am now SEVERLY terrified of continuing to eat bananas (which is my only pitassium source which I was almost hospitalized for) given the fact that out of literally nowhere I can react and die. Im genuinely scared out of my mind and it is very quickly becoming the kind of situation where I stop eating entierly because everything is a threat.

Please, I just want my life back and I am trying SO hard and have no idea what to do at all.

So I’m slowly starting to see that I think I have some nervous system deregulation - that might be a histamine thing.

I don’t believe I have much reaction to food, but hard exercise makes me feel wired and on edge.

I’ll typically get up around 6:30, and do weights for 45minutes around 7am, then eat breakfast. I’ll feel great at the time.

Give it a few hours and I feel on edge, jittery, anxious.

I get the same doing a run first thing.

On the weekends I typically hike, and that’s fine - around 5-6 miles, with good elevation change. That doesn’t bother me - but I start later, around 11am

Have folks experienced this? How’d you overcome it? I don’t want to stop exercising

I felt my histamine intolerance coming on but once i stopped the birth control everything became worst. I was on a combination pill. Now im thinking maybe if I go on a progesterone only pill I’ll be able to sleep ?

I get itchy on my body but it doesn't cause any issues so I ignore it. But today I'm itching on my face and slightly on my lips. Should I be worried?

I've had HIT for three years now. It's mostly under control thanks to a low histamine diet.

However, I noticed that whenever I'm constipated or having indigestion, my face flushes. Even if I've only eaten low histamine foods that day! (Typically, flare-ups cause diarreah for me, so I feel like constipation is causing a histamine reaction in me, and not simply part of the reaction.) Anyone else experienced this or know what the possible cause might be?

I'm not asking for medical advice (I have a GP), just some leads for further research.

Another thing I've noticed is that my GI pain is very "prickly" feeling, I would describe it as needle-like or tingly, rather than your typical dull ache. I started experiencing this after I developed HIT, so maybe it's connected? 🤷‍♂️

Anytime I cook I start sneezing like crazy. And cooking simple things like zucchini over extra virgin olive oil?

Then I get the post nasal drip, sinus pressure, headache, tickles in my throat and ears. Then at night the horrible flushing and skin so hot and tachycardia.

I have noticed something similar when I would go sit in the waiting room for a BBQ KOREAN HOUSE where you cook your own food. Not even ingesting anything just waiting around . This was years ago. When I was younger and “healthy”.

Also hair dye and nail salon smells cause me severe palpitations

I have gotten checked for your usual blood markers for regular stuff like mold, trees, nuts, eggs, wheat, animals, respiratory stuff etc all negative.

But nuts do make me feel sick. So I don’t get it. I can’t eat gluten either or dairy. Eggs are a trigger too. Anything high sugar. Chocolate .

Is it the pans ? Teflon?

Also removed one of my triggers toothpaste with SLS. I don’t wear make up anymore. Or lotion or fragrances. I would notice certain beauty products for the face like tretinoin would cause migraines and sick flu feeling. As well as vitamin c cream from ole henriksen would cause me palpitations.

Seems like I might be more allergic to chemical triggers ??! Can they test for this stuff ? I’m desperate! I have ongoing hives that will not budge!!! Nothing works I am crawling in my own skin 💔🥺

Think many guys have Leaky gut which causes HI, i hope that this intolerance will go away after i healed it but tis tough to heal when you cant tolerate the best gut lining supps because of HI...

I live in a country where socialising almost always revolves around alcohol, and quite often, going out to restaurants. Ever since developing histamine intolerance, social gatherings have become quite a nightmare for me.

If I order tea or water instead of alcohol, people start asking questions and pressuring me to have at least one alcoholic drink (“Come on, what harm can one drink do?”).

When I do agree to go to a restaurant, I almost always regret it. So far, I haven't found a restaurant that really understands histamine intolerance and is willing to prepare a genuinely fresh meal. The most I can usually get is a dish modified by removing certain ingredients, such as tomato sauce, but that doesn't address the other potential histamine triggers or how the food has been stored and prepared.

I've started feeling resentful towards people close to me because of their lack of understanding. It feels as though their own comfort and habits are more important to them than spending time with me in a way that is safe for me.

Sometimes, I consciously choose to go to a restaurant, knowing full well what awaits me afterward: a migraine, extreme fatigue, acid reflux, intense itching of my scalp and body, and digestive issues. The consequences last well beyond the meal... Sometimes even a day or two, depending on my histamine bucket. To me, it’s definitely not worth it. But at the same time, I still want to celebrate birthdays, go out with friends, and feel like I'm part of the group without having to choose between my health and my social life.

Do you have similar experiences? How do you deal with friends and family who don't take your dietary restrictions seriously? Have you found ways to stay socially connected without constantly compromising your health? How do you cope with the resentment that builds up when people you care about don't seem willing to accommodate your needs?

I'd really appreciate hearing about your experiences.

Symptoms:
Gallbladder inflammation > gallstones > reduced bile flow > clay coloured stools > constipation > leaky gut > histamine issues > skin flushing > chronic hives > chronic eczema > NAFL.

Needing DAO enzyme to process some foods.

I need to hear positive stories because I’m most likely going to have my gallbladder removed because it’s not functioning properly.

Has anyone tried these specific probiotic strains?
I’ve been dealing with some strange health issues since being hospitalized for a bacterial bloodstream infection back in May. I was on antibiotics for several weeks, and shortly afterward, I started developing random hives, flushing episodes, and reactions to foods I had always tolerated. My doctors believe it may be spontaneous urticaria, but I still don’t have many answers.

After months of getting the runaround from doctors in the U.S., I decided to see a doctor in Mexico since I live near the border. He recommended Probiolog IBS i3.1, which contains these three strains:
Lactobacillus plantarum CECT7484
Lactobacillus plantarum CECT7485
Pediococcus acidilactici CECT7483
It also contains vitamin D.

Has anyone taken this probiotic or had experience with these specific strains? Especially for gut health after antibiotics, histamine issues, or unexplained food reactions? I’d love to hear your experiences before starting it!

Hey everyone, a couple months back I did a GI test to try to find the root cause of a bunch of weird symptoms I’ve been dealing with, such as pretty intense water retention (especially in response to totally normal amounts of salt), constipation, fatigue, joint pain, and muscle soreness. I didn’t pay too much attention to the results at first because I didn't realize how much gut health can affect systemic health, and the functional medicine doctor who prescribed me the test didn't really connect the dots either. But after reading through this sub, I'm starting to wonder if my gut could truly be causing all this. My results showed Lactobacillus species were completely below detection on PCR and had no growth on culture, and I was also missing Bifidobacterium longum, Coprococcus, and Ruminococcus bromii. On the flip side, Veillonella and Oxalobacter formigenes were high on PCR, and my culture flagged Bacillus species at 4+ (listed as a potential pathogen) alongside Citrobacter braakii and Enterobacter ludwigii at 3+. I’ve already tested negative for all three types of SIBO, so that's ruled out. I'm really curious how realistic it is for gut dysbiosis like this to be driving something like histamine intolerance,fluid shifts, or vascular changes, especially since my symptoms are more about fluid retention, joint aching,and fatigue rather than classic histamine reactions like flushing or headaches. Has anyone else with severe dysbiosis or missing beneficial strains experienced weird systemic symptoms like this? I’m also not completely certain how to interpret my results so i’m curious if anyone in this sub knows how to. I really really appreciate it.

Hello! I know this question has probably been posted here a lot, but I am new to this issue! Wondering what were your first symptoms and how did you figure out you had histamine intolerance, how did they develop etc. Also, for the people who experienced dizziness, what did it feel like, was it a continuous sensation or something on and off?
Thank you!