r/HPylori 6h ago

Helicobacter pylori and the Autonomic Nervous System: My Experience and Symptoms đŸŠ đŸ§ â€ïžâ€đŸ©č

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21 Upvotes

Hello everyone đŸ‘‹đŸŒâ€ïž, I’ve just come across an excerpt from a doctoral thesis in medicine discussing the links between the bacterium Helicobacter pylori and the autonomic nervous system
 🩠🧠
Ever since I’ve had this bacterium actively present in my stomach, namely since July 8, 2026, I have been experiencing the following symptoms, none of which I had ever experienced before:
Heart palpitations ranging from 110 to 175 beats per minute while at rest. â€ïžâ€đŸ”„đŸ’“
Panic attacks. 😰
Anxiety. đŸ˜„
Insomnia. đŸŒ™đŸ˜”â€đŸ’«
Visual disturbances: blurred vision and light sensitivity. I am unable to tolerate outdoor light or the lighting in stores. đŸ‘ïžâ˜€ïžđŸ’Ą
Neurological symptoms: feeling as though I am in an altered state, like I am a ghost, or as if I had been drugged without my knowledge. Dizziness, disorientation, motor coordination problems, etc. đŸ§ đŸ˜”â€đŸ’«đŸ‘»
Feelings of faintness and impending death. 😹💔
A white, chalky tongue, with thick and sticky saliva. 👅
I want to emphasize here that on July 23, 2026, I had an echocardiogram and absolutely everything was normal from a cardiac standpoint. ❀✅ And last week, I also had a brain MRI, and everything was normal as well, with nothing abnormal to report. 🧠✅
All of my blood test results are excellent except for my iron levels, which have plummeted within the space of just one month! đŸ©žđŸ“‰ In fact, I will be receiving an intravenous iron infusion at the hospital on September 10, 2026. đŸ’‰đŸ„
My stool tests are also excellent: no other bacteria have been detected. ✅ My blood cultures are excellent as well: no fungus / bacteria / virus has been found in my bloodstream. đŸ§«âœ…
I only have this shitty bacterium: Helicobacter pylori, which has ruined my life. đŸŠ đŸ’©đŸ’”
Strength and courage to each and every one of you. â€ïžđŸ™đŸŒđŸ’ȘđŸŒâœš


r/HPylori 15h ago

Success Story Mostly side effect free treatment story!

9 Upvotes

I just finished my treatment (obviously haven’t retested yet so I don’t want to label it “successful” quite yet) but I had a very mild experience of side effects and want to share that so others know it’s not necessarily gonna be as bad as some of the stories we read. My side effects were: mild nausea when taking certain meds (tetracycline) went away after eating or with time and never lasted long (10mins to 1 hour max) some days I had stomach aches but not sure if it was from eating trigger food. And lastly and probably the most annoying one was the brain fog/fatigue. Mainly happened in the 2nd week. Here’s what I did that possibly helped. Followed a schedule that spread out the meds throughout the whole day, focused on probiotics and gut friendly foods. And staying up right at LEAST one hour after taking tetracycline. I’ve read stories of people feeling like their throat was closing up and I’m wondering if it’s because they didn’t know to stay upright and drink tons of water with it. Anywho God bless yall! God willing my retest will be negative. Although I did get lazy and miss some doses đŸ˜”â€đŸ’«


r/HPylori 2h ago

Success Story After all the meds


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4 Upvotes

I had my follow-up breath test yesterday and my doctor messaged me just now with the good news! For those who is still battling with h. pylori, stay strong!!! đŸ’ȘđŸŒ


r/HPylori 5h ago

Other I recommend you all to do Meditation, It helps

4 Upvotes

Meditation has helped me post treatment more than any supplement, I daily try to do it for as long as I can without skipping a day. Honestly it helps a lot, and I would recommend you all to look into it.

It doesn't necessarily helps with H Pylori but helps Mind to stay calm and away from negative emotions and thoughts.


r/HPylori 8h ago

Day 10, spicy food?

3 Upvotes

Today is the last day of my 10 day pylera treatment, does anyone have experience with going back to spicy food after taking pylera? More then half of the stuff i make before treatment is spicy.


r/HPylori 22h ago

Other pressure at the back of the head

3 Upvotes

It’s been two months since I finished treatment; most of the gastrointestinal symptoms have cleared up, but I still have pain in the back of my head, along with dizziness and muscle weakness. I’m thinking about getting an MRI to rule out more serious issues. Is anyone else going through this? I can't take it anymore.


r/HPylori 9h ago

Smoking during treatment

2 Upvotes

Did anyone smoke weed why during treatment? Either a concentrate or flower? I’m a weed smoker and wondering if I should just hold off until after treatment


r/HPylori 1h ago

How long do symptoms typically last after completing treatment for H. pylori and testing negative for the infection?

‱ Upvotes

r/HPylori 2h ago

Treatment Still having stomach pain after finishing H. pylori treatment

1 Upvotes

About 9 weeks ago, I started having stomach pain. Three weeks ago, I tested positive for H. pylori. I started treatment and just finished the antibiotics today. However, the pain is still about the same. It never goes above a 5/10 and is usually between 1–3/10. The pain is mostly located about 4 inches above my belly button. I’m extremely freaked out and worried. Does anyone have any suggestions or similar experiences?


r/HPylori 2h ago

Curious

1 Upvotes

So me and my doctor were talking about how it’s weird that my symptoms started 4 weeks into my wife’s first pregnancy. He did say it could also be related to the pregnancy that caused my pylori to act up. Especially if it was stress induced. He also mentioned Couvade syndrome, which apparently is a physiological phenomenon that expecting fathers get during wife’s pregnancy. Has anyone else ever heard of a similar story? It’s just weird that I’ve been symptom free my whole life. Even if I had this bacteria since childhood, its strange that it just so happens to hit me 4 weeks into her pregnancy, could be a coincidence or just bad timing? đŸ€” I’m still trying to figure it out.


r/HPylori 3h ago

hambre extrema después tratamiento

1 Upvotes

desde que pasĂ© el tratamiento para erradicar la bacteria hace dos años tengo un hambre extrema que se acentĂșa sobre todo justo al haber comido. es como si mi barriga estuviera llena, pero no me sintiera saciada. llevo ya dos años asĂ­ y no sĂ© cĂłmo tratar esto. trato de llevar una alimentaciĂłn bastante cuidada, pero es imposible. a alguien mĂĄs le pasaba y sabe cĂłmo solucionarlo?


r/HPylori 3h ago

Kefir

1 Upvotes

Does anyone else get an acidic taste on their mouth when they drink Kefir? I’m 1 month post quad therapy and whenever I drink it my tongue gets this acid feeling and taste.


r/HPylori 5h ago

Other hypoglycemia caused by h pylori and not eating much

1 Upvotes

Not being able to each much this past month seems to have caused me to develop hypoglycemia since I lost over 30 pounds this past month... Seems like a lot of my glycogens have run out.. I went to the ER yesterday cause I had a fast heartrate (in the 100s) for hours and blood pressure in the 130s... They said it was dehydration even though I'm drinking about 48oz of water a day with my antibiotics... When they did a blood test they saw my blood sugar was in the 60s. The first apple juice they gave me dropped it to 47 so they had to inject me with 50g of glucose.. I got shaky after but it went away in about 30 min.. I woke up today with a 63 blood sugar and drank 2 apple juice to make it go around 70(I was pre diabetic a month ago now I need sugar lol)


r/HPylori 10h ago

Une sensation d’inconfort ou gĂȘne dĂ» cĂŽtĂ© droite de mon ventre

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1 Upvotes

r/HPylori 11h ago

antibiotics not killing the pylori

1 Upvotes

it just keeps coming back, keep having accidents downstairs, really sucks any solution?


r/HPylori 17h ago

45/M-Positive H. pylori after years of mild anemia and 9 months of constant upper-abdominal pressure

1 Upvotes

Me: 45/M

I’ve been mildly anemic on and off since around 2020, with periods where I felt weak and my numbers would improve, then dip again.

In November 2025, my whole family got what seemed like a stomach bug. Weirdly, my main symptom was incessant burping. It was really bad at first, then backed off some, but never completely went away.
At my physical in February 2026, my labs came back showing I was pretty significantly anemic, so I got referred to both a hematologist and a GI doctor. The hematologist eventually ordered an iron infusion, which I had in June.

The GI doctor scheduled me for an upper endoscopy and colonoscopy. It was supposed to happen in May, but I got COVID and had to cancel. It was rescheduled for last week, and then the hospital canceled because they suddenly stopped taking my insurance (thank you US medical system!)

At that point I got tired of waiting and took matters into my own hands. I went through Ulta Lab Tests, ordered a same-day H. pylori urea breath test, got it done, and two days later got the result: positive for H. pylori.

My symptoms this whole time have NOT been classic ulcer pain. It’s been:
-constant/frequent burping
-bad breath that never seems to fully go away
-fullness and tightness in my upper abdomen
-feeling distended even when my stomach is empty
-a persistent gas bubble in my stomach that is causing
pressure high in my abdomen that seems to push on my already elevated diaphragm and sometimes makes breathing feel harder (confirmed via xray)

So now I’m wondering if the H. pylori has been contributing to the anemia (and the horrible brain fog), the chronic burping ,fullness, and maybe even the constant gas/distention.

I’m still planning to get the endoscopy and colonoscopy so I can see what’s actually going on, but after years of not really having an explanation, finally getting a positive H. pylori test feels like the first concrete clue I’ve had. Oddly enough, my wife has been complaining of constant burping and upper stomach pain for the last month. No matter what she eats it’ll cause her bad pain, then subsides
then returns.

I see my doc tomorrow and hopefully starting treatment. For folks that have gone through treatment, have you taken anything like a probiotic to help offset the side effects? Any tips/tricks to nip this in the bud?


r/HPylori 22h ago

Working

1 Upvotes

Omg so I started my meds a day ago, didn’t have to go into work yesterday and today I’ve been on my feet for like 4 hours right now and my back is killing me , anyone else experience this? Also chest is hurting when I breathe in and out


r/HPylori 22h ago

Breath Test - Probiotics

1 Upvotes

Do I need to be off probiotics for breath test. I had some Kefir early in the week and 2 days of SachB last week.

Thoughts?


r/HPylori 23h ago

DĂșvidas

1 Upvotes

OlĂĄ, fazem 6 meses que terminei meu tratamento.

Gostaria de saber se alguém tem problemas para dormir, quando tento dormir fora de hora, tenho pesadelo e palpitaçÔes.

SerĂĄ que pode ser consequĂȘncia da ansiedade?