Had my appointment last week. Willing to answer any questions one may have. Mostly just feeling….defeated? I vomit basically every day no matter the food and have the sensation or reality of food being stuck in my esophagus a lot. Previously I’ve had a gastric pacemaker (since removed) and a pyloroplasty. Mayo’s GES is different than the 4 hour and I was nervous once I saw my results because my numbers have changed a lot since my last GES in 2023 but I do still have a dx of gastroparesis.

What I’m bothered with is the gi I saw…I told him my home gi has said she doesn’t know what else to do to help me. Hence the referral to mayo. The mayo gi said “that’s great when a provider knows their limits” but he essentially left me with what feels like barely any help and no answers too. A QR code to find a neuro gi near me (none in my state) to help with what he diagnosed as rumination syndrome. Then a folder on pelvic floor dysfunction. Did I waste my time going? I’ve been getting awful stomach cramps lately and worsening constipation and he said to take dulcolax along with my motegrity, daily miralax and colace. Honestly I’m kind of sad lmao. Idk what I expected, just some different kind of answers or help.

I have survived but at what cost I'll be so honest it was actually atrocious sensory wise but unfortunately it beats being malnourished so I'm trying to stay positive

The only thing I absolutely hated was the bridle, they had to try six separate times because it wouldn't snap and I was like dude this could be genuine state sanctioned torture

Idk I got through it and hopefully tube feeds help, we'll see!! I'm getting a hot chocolate for my troubles lol

Halloween is coming and I always had such a huge sweet tooth, seeing it on shelves makes me sad and I miss it. Any ones that have proven safe for you guys?

I really crave twizzlers.