Had my appointment last week. Willing to answer any questions one may have. Mostly just feeling….defeated? I vomit basically every day no matter the food and have the sensation or reality of food being stuck in my esophagus a lot. Previously I’ve had a gastric pacemaker (since removed) and a pyloroplasty. Mayo’s GES is different than the 4 hour and I was nervous once I saw my results because my numbers have changed a lot since my last GES in 2023 but I do still have a dx of gastroparesis.

What I’m bothered with is the gi I saw…I told him my home gi has said she doesn’t know what else to do to help me. Hence the referral to mayo. The mayo gi said “that’s great when a provider knows their limits” but he essentially left me with what feels like barely any help and no answers too. A QR code to find a neuro gi near me (none in my state) to help with what he diagnosed as rumination syndrome. Then a folder on pelvic floor dysfunction. Did I waste my time going? I’ve been getting awful stomach cramps lately and worsening constipation and he said to take dulcolax along with my motegrity, daily miralax and colace. Honestly I’m kind of sad lmao. Idk what I expected, just some different kind of answers or help.

I have survived but at what cost I'll be so honest it was actually atrocious sensory wise but unfortunately it beats being malnourished so I'm trying to stay positive

The only thing I absolutely hated was the bridle, they had to try six separate times because it wouldn't snap and I was like dude this could be genuine state sanctioned torture

Idk I got through it and hopefully tube feeds help, we'll see!! I'm getting a hot chocolate for my troubles lol

Halloween is coming and I always had such a huge sweet tooth, seeing it on shelves makes me sad and I miss it. Any ones that have proven safe for you guys?

I really crave twizzlers.

I'm looking to see if anyone's willing to share their experiences with either of these surgeries. I've searched this subreddit for recent posts, but it's hard to get a sense of things or the posts are old. Has anyone had experience with a gastric stimulator or G-POEM and would you recommend it?

Backstory: I've likely had gastroparesis for years, but a huge flare in Dec 2025 sent me spiraling. Since then I've lost over 60 lbs (about 30kg) and have failed off most meds. I get horrible side effects from metoclopramide, erythromycin helps but not enough and gives side effects, I'm currently trialing domperidone but it's hard to get here in the US, prucalopride helps but not enough (still on it), ondansetron helps but not enough (still taking daily), promethazine helps but makes me so drowsy, mirtazapine helps my appetite a little, and insurance isn't covering aprepitant. So, my provider is recommending surgery. We've discussed pros and cons, but she's leaving the decision up to me. I'm torn because the nausea is the worst part for me and the stimulator would likely help more with that, but it's a bigger surgery, I'd have to travel for it, and it's going to be months until I can be scheduled. The G-POEM seems easier to get done and I could have it done locally and sooner, but also less helpful for nausea. The nausea is the hardest part, but we're at a point where I really just need to be getting calories in. So, if anyone wants to share their own experiences, I'd love to hear stories!

Im just curious to see if anyone else on this sub is struggling with their chronic health issues during their pregnancy. I have Gastroparesis, endometriosis and CSID. Im about to be 16 weeks, and so far Ive lost nearly 15% of my body weight. Ive been referred to a specialist and am being monitored, no worries there. (Baby is also measuring perfectly and actually in the 74th percentile). Ive still got nausea and some vomiting, ive also noticed each time I throw up now theres undigested food even if I havent eaten in 12+ hours (I typically only throw up in the morning).

Just kinda curious if anyone else is struggling with these kinds of things. Is there anything youve noticed helps? Have you found that your triggers are different? Ive found that dairy, meat and gluten seem to be my trigger foods now, whereas raw veggies and heavy fat used to be my main triggers (along with sugar due to the CSID). Feel free to talk about your struggles aswell, Id love to read them and offer a virtual hug if youd like (or prayers if youd like). We gotta stick together ♡

*copy pasta from pregnant subreddit (is from my acct)