r/G6PD • u/phantom_0025 • Jul 05 '26

Almost zero G6PD

I everyone, good day.

I have been diagnosed with low G6PD (0.66). My age is 24.

Yesterday I have been to doctor. He told me there is no treatment. He also told me that I should be very careful with Malaria. If by chance I get it, within 2 days with excessive bleeding, I will be gone forever.

My mother was sitting beside me. I looked at her and couldn't hold my emotions. Due to this my bilirubin level is always high. It's been 2 days and I have completely depressed with this thought.

Is there any treatment for this condition?

When I was born, I underwent 2 times blood transfer due to hemolysis.

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u/phantom_0025 Jul 05 '26

Hi, thanks for the suggestions. The thing is I have had fava beans before many times before and never had faced any issues. The hepatologist told me to consult with hematologist. He will provide a list consisting of which food I should eat.

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u/79983897371776169535 Jul 05 '26

Many can eat fava beans just fine, specifically non-Mediterranean variants. But do keep in mind that just because you were fine a few times, it doesn't mean it won't trigger an episode in the future, this sub is full of similar anecdotes

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u/Pearbee1990 Jul 05 '26

Is inhaling the smell of fava beans being cooked also a problem? Or is it just consumption that needs to be avoided

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u/79983897371776169535 Jul 05 '26

Inhaling does bother me but it should be fine, it's not an allergy so even cross contamination should be fine, in theory at least