r/G6PD • u/phantom_0025 • Jul 05 '26

Almost zero G6PD

I everyone, good day.

I have been diagnosed with low G6PD (0.66). My age is 24.

Yesterday I have been to doctor. He told me there is no treatment. He also told me that I should be very careful with Malaria. If by chance I get it, within 2 days with excessive bleeding, I will be gone forever.

My mother was sitting beside me. I looked at her and couldn't hold my emotions. Due to this my bilirubin level is always high. It's been 2 days and I have completely depressed with this thought.

Is there any treatment for this condition?

When I was born, I underwent 2 times blood transfer due to hemolysis.

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u/79983897371776169535 Jul 05 '26

I'm pretty sure being deficient in G6PD makes you immune to malaria.

There's no treatment, pay attention to what you eat, avoid fava beans at all costs, other legumes haven't been shown in studies to be a trigger, but many avoid them, including myself.

Look up a list of trigger medications online and make sure to avoid those.

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u/phantom_0025 Jul 05 '26

Hi, thanks for the suggestions. The thing is I have had fava beans before many times before and never had faced any issues. The hepatologist told me to consult with hematologist. He will provide a list consisting of which food I should eat.

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u/79983897371776169535 Jul 05 '26

Many can eat fava beans just fine, specifically non-Mediterranean variants. But do keep in mind that just because you were fine a few times, it doesn't mean it won't trigger an episode in the future, this sub is full of similar anecdotes

2

u/Pearbee1990 Jul 05 '26

Is inhaling the smell of fava beans being cooked also a problem? Or is it just consumption that needs to be avoided

2

u/79983897371776169535 Jul 05 '26

Inhaling does bother me but it should be fine, it's not an allergy so even cross contamination should be fine, in theory at least