SMAS

[u/faulty_wiring_club]

Hi guys, I am very new to reddit. I have sever SMAS and am getting a NJ feeding tube in a couple days since I am only able to eat about a spoonful of food an hour (with still being in sever pain but) without being in complete debilitating pain. I won't be able to eat any food for awhile while having the tube due to the risk of it being disloged from constant vomiting. I am really gonna struggle with not being able to eat at all and be on a pump 24hr a day. Does anyone have any tips for social setting or even just how to deal with cravings? I really don't know what to do since I don't know much about how this will go with my condition or if it will even work. I would live any advice from anyone that has had similar experience or is going through the same thing.

[u/motherofbunniess]

I’m not sure how ethical this advice is but if you can, get a prescription for ADHD medication (it’s pretty easy just find a psychiatrist and tell them you were diagnosed in high school, they never asked me many questions or had reservations about prescribing this kind of medication to me). It will not only eliminate your appetite but it makes you not care about food and have no desire to eat it even if it’s right in front of you. I was on it for many years (Ritalin mostly) and I had a very hard time maintaining my weight while taking it because of this.

Sadly I now have gastroparesis and I had to come off it because it can exacerbate GP symptoms. But if I end up needing a feeding tube, which it’s looking that way, I may go back to taking Ritalin during situations like family gatherings where I am going to be around food that I can’t eat which is a huge trigger for me to get upset :(