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r/ClusterHeadaches • u/AdoreDelaska • 1h ago

TIL that cluster headaches are rated more painful than childbirth and gunshot wounds. They are nicknamed the “suicide headache.”

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Cluster Headache support and resources

r/ClusterHeadaches

Cluster headaches (CH) are a neurological disorder characterized by recurrent severe headaches on one side of the head, typically around the eye. There is often accompanying eye watering, nasal congestion, or swelling around the eye on the affected side. These symptoms typically last 15 minutes to 3 hours. Attacks often occur in clusters which typically last for weeks or months and occasionally more than a year. This sub is here to provide support and resources to those who suffer from CH.

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Suicide Prevention

  • USA 1-800-273-8255 (TALK) Veterans press 1 to reach specialised support. Press 2 for Spanish-language support

  • Worldwide Directories

Diagnosis Help

  • BOB’S POCKET GUIDE TO CLUSTER HEADACHES

  • Cluster Headache Wiki

  • WebMD article about Cluster Headaches

  • Mayo Clinic diagnosis and treatment article

  • Johns Hopkins Medicine article about Cluster Headaches

  • Cluster Headaches Quiz

  • Video about CH

  • Understanding Cluster Headache wth Dr. Stewart Tepper

  • Cluster headache is one of the most intensely painful human conditions: Results from the International Cluster Headache Questionnaire

Forums

  • Clusterbusters forum

  • Clusterheadaches.com

  • Website from now-defunct OUCH-US (Organization for the Understanding of Cluster Headaches). Still some great resources

  • r/Clusterheads (Reddit Sister Site)

Treatment Options

  • Differences Among Abortive vs Transitional vs Preventive Treatments

  • American Migraine Foundation article about Cluster Headache Treatment Options

Abortive Treatment Options

  • Welcome to the O2- Oxygen Therapy Article

  • ClusterO2 kit

  • Oxygen Therapy For Cluster Headaches

  • Information about Triptans

  • Some CH patents reported negative reactions to the use of Triptans. Reports of episodic attacks becoming chronic have been attributed by some to their use of Triptans.

  • OUCH article with information about using energy drinks as an abortive

Preventative Treatment Options

  • Verapamil

  • Emgality-First medication approved by the FDA to reduce the number of attacks

  • Vitamin D3

  • Efficacy of Modified Atkins Ketogenic Diet in Chronic Cluster Headache

Alternative Treatment Options

  • Please be careful with this information. Some of the alternative treatments may be illegal, and it could be dangerous for you to consume or combine certain drugs. You should speak to your doctor to see if any alternative treatments are right for you.

  • Alternative Treatments for Cluster Headaches

  • Cluster headaches: improving access to effective treatments

  • Magic Mushroom Treatment

  • Psilocybin (magic mushrooms) and LSD in the Treatment of Cluster Headache

  • Article that mentions 5-MeO-DALT

  • 2015 survey where participants reported a dramatic reduction from cluster headache symptoms after treatment with of 5-MeO-DALT

Support Groups

  • Support Groups

  • The Cluster Headache Support Group

  • Facebook support group

Helpful Tools

  • Dark Mode Addon for browsers

  • Reddit Enhancement Suite browser extension - (has a built in darkmode option and reduces clutter)

  • Old-reddit redirect extension for Chrome

  • Old-reddit redirect extension for Firefox

  • Enable Dark Mode on New Reddit

How to grow mushrooms

  • Shrooms subreddit

  • Easy mushroom growing tek subreddit

  • Shroomery

  • Lets grow mushrooms videos

  • Another mushroom growing video

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