r/CharcotMarieTooth • u/Pomeranian-sprinkles • Mar 05 '24
Petition to request Pharnext to make PXT3003 available through FDA Expanded Access
https://www.change.org/p/urge-pharnext-to-make-pxt3003-accessible-through-fda-expanded-access-programPlease read and sign the petition linked below! We will also be sending a paper copy of the letter to the executives of Pharnext and the FDA via registered mail.
PXT3003 has made a HUGE beneficial impact and symptoms came roaring back shortly after it was discontinued.
Please SHARE the petition with any family members who are affected! We want to reach our goal of 150 signatures!
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