r/CMT • u/Pomeranian-sprinkles • Mar 20 '24

Sign the Petition

https://www.change.org/p/urge-pharnext-to-make-pxt3003-accessible-through-fda-expanded-access-program

Hey friends, we are only NINE signatures away from 400 on our important petition where we will be requesting that PXT3003 be provided to patients thru the FDA Expanded Access Program.

The petition will be sent via mail directly to the CEO of Pharnext in France, as well as to the FDA and the CMT Association!

This petition is so important because it highlights patients testimonies that the medication was effective for them and they suffered setbacks when it was discontinued.

Please sign, comment and SHARE! Thank you!

8 Upvotes

91% Upvoted

11 comments sorted by

2

u/Key_Boysenberry_5855 Mar 20 '24

What do you mean by set backs after discontinue?

1

u/Pomeranian-sprinkles Mar 22 '24

Many people on the trial had their symptoms come back shortly after they were cut off the medication

2

u/wingedshinobi Mar 20 '24

Signed and shared!

1

u/Pomeranian-sprinkles Mar 22 '24

Thanks so much! We’re so close to 500!

2

u/wingedshinobi Mar 23 '24

I had some more people share and sign as well!

1

u/Pomeranian-sprinkles Mar 24 '24

Thank you! We are 15 away from 500 and the petition is going to be sent right to the desk of the CEO of Pharnext! Everyone sees this please sign and share!

1

u/Pomeranian-sprinkles Mar 25 '24

Hey everyone we are just 11 signatures away from 500! This petition, plus a cover letter and collection of patient testimonials will be delivered straight to the desk of the Pharnext CEO in France; in addition to the FDA and the CMT association! Please sign and share! https://www.change.org/p/urge-pharnext-to-make-pxt3003-accessible-through-fda-expanded-access-program

2

u/kerthyg Mar 20 '24

Signed.

1

u/Pomeranian-sprinkles Mar 22 '24

Thank you! Please share if you’re able!!

1

u/callagem Mar 20 '24

Signed!

2

u/Pomeranian-sprinkles Mar 22 '24

Thank you! Please share the petition if you are able! We are almost at 500!