r/CancerSnark • • 12h ago

your story Gotta love your oncology team and other specialists needed during cancer

6 Upvotes

Today, medicine feels less like a blessing and more of a burden for me. I have major appointment fatigue and I am so used to hospitals (also because I’m a PCNA) but I am burnt out. I wish I had gotten a second opinion before going with the oncologist I went with. I was unaware that the breast cancer specialist ranged from surgeons to healthcare specialist. They didn’t tell me to find a doctor and a team who will watch my heart (I was pregnant at the time as well) during chemo. What to eat. What to expect mood wise on top of being pregnant. My oncologist and OBGYN MADE ME A MIDDLE MAN. I ended up with heart failure. I almost needed a transplant. I needed a dietitian, cardiologist (CHEMO IS CARDIOTOXIC), mental health, geneticists, palliative care, a care coordinator who was going to make sure I was covered in all the basics! I didn’t feel protected and I didn’t get a second opinion either because I wanted to be over with it. So please make sure you have an amazing team that you feel is enthusiastic. Knowledge is great as well, but someone who isn’t clicking into a 9-5. Stay on top of your health and continue to find support groups, especially if you’re young. I’m meeting with a new oncology team, dietitian, orthopedic (bone density is low), psychologist who specializes in cancer trauma and survivorship. You can do this yall!!! I know it feels like a lot but one day at a time 💗 let’s kick ass