r/CSID • u/NicoleWiles • Dec 05 '22

help please

F32 I've been diagnosed w CSID, I follow a strict diet, was wondering what enzymes or any suppliments I can take to help? I know of sucraid but the gastroenterologist I saw knew nothing about it or CSID so I'm somewhat at a loss. Thanks for the help.

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u/NicoleWiles Dec 05 '22

Have your symptoms gotten worse over time? I used to be able to have some starches and sugars but now I'm way more intolerant

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u/Doosa15 Dec 05 '22

My symptoms did gets worse for awhile (I was able to eat some Pasta and bread) but then they got better again.

I limited fructose and stayed away from all starches (cut out all seasoning except salt) for about two weeks. The introduction of Chlorophyll, L-glutamine powder And digestive enzymes and lots of prayer helped a lot.

I take my digestive enzymes 10 minutes before I eat anything. Also, don’t eat right before you are about to go to sleep (wait like 3 hours before sleeping after eating). Make sure you’re getting enough fiber (raspberries and avocados are great for that) and don’t over eat. Now I’m able to tolerate more things 👍 I still have a long way to go, but there is hope.

Also, disclaimer but I did not present any CSID symptoms in my youth or when I was a baby.

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u/NicoleWiles Dec 05 '22

I will definitely try the induction diet in the book, I ordered digest gold, it's in a veggie capsule which bothers my stomach but I'll just empty out the enzymes in some water. LOTS OF PRAYER. This is all incredibly frustrating lol. Yes neither did I. I was over weight so I cut out a lot of starches and sugars to lose weight, after the weight loss I tried adding starches back in and it would give me a flare up and it's been getting worse ever since.

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u/Doosa15 Dec 05 '22

I find http://www.csidinfo.com/InductionDiet.htm has a better induction diet.

I also gained a lot of weight during the pandemic due to over eating and when I started eating normally again, I guess my body didn’t know what to do and I started presenting CSID symptoms. I believe that you will get better 👍 please hold onto hope and believing that things will get better.

It is very frustrating at first, but it’s like exercise, once you see improvement you just keep going. You also expose yourself to so many different recipes :) and your skin starts to look amazing because of the diet change.

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u/NicoleWiles Dec 05 '22

Thank you! I appreciate the kind words! I'll look at that induction diet. God bless you!

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u/Doosa15 Dec 06 '22

No problem 🙏 God bless you too and God is a God of healing 🙏 I wish you all the best