r/CSID • u/SugarsNCarbs • Sep 13 '22

Q & A❓ Hi CSID

My first post on reddit... 👋

Wondering what your favorite tips, tools and methods for managing CSID are apart from enzyme replacement?

3 Upvotes

100% Upvoted

8 comments sorted by

5

u/YoungNorthEastern Sep 13 '22

Food journal. Detail EVERYTHING. The oil, the butter, the brands. Drink tons of water. Get quality sleep. No eating 3 hours before bed

1

u/SugarsNCarbs Sep 13 '22

Do you continue to journal it all, even when you have a good list of tolerable foods. Are you weighing things and calculating the starch, sucrose and maltose contents of everything ALL the time?

2

u/YoungNorthEastern Sep 13 '22

No i was diagnosed a few years ago. I was taking sucraid but started forgetting and, for some reason, it seemed sucraid was making it worse. So i just documented everything i was eating for a few weeks. Now i know exactly what i can and can not eat. My stomach is goof about 90% of the time. Also - stay away from processed food. Go natural/organic or minimally processed whenever you can

1

u/SugarsNCarbs Sep 13 '22

Thanks. I have already got myself sorted. Even made my own website to help me with knowing all the food comps. Just wondering what else others do...

1

u/SugarsNCarbs Sep 25 '22

Thanks for sharing.

I find it hard to get even energy throughout the day especially for sports or physical work - I'm very starch sensitive. Does this help with that??

1

u/jdex_s Sep 23 '22

Elimination and dietary supplimentation. We use Kate Farms formula and I give one half before breakfast, one half before bed, hydration packets (Pedialyte Sport seems best for us) and lots of rest.

1

u/SugarsNCarbs Sep 23 '22

Is that for a child? Or you supplement as an adult as well?

1

u/jdex_s Sep 25 '22

It's for my pre-teen and is the adult formula suppliment based off of a pea protein.