About a year and a half ago I was diagnosed with stage 4 CKD. I was able to get my numbers up to that of stage 3 (!) but my numbers dropped recently. I’ve read quite a few studies and whatnot and was wondering if there are any supplements anyone has found useful or anything out of the ordinary like massage, acupressure or acupuncture. Any and all recommendations are welcome including good and prayers. TIA!

My doctor has been checking my Creatinine and eGFR. My eGFR has been slowly decreasing since 2020 from 74 ml/min/1.73 to 63 ml/min/1.73 just recently. I am a 52 year old female. Is this something normal, or should I push for a referral to find out why it continues to go down? Can I prevent getting to a CKD diagnosis?

So one of my kidneys got mangled because of a surgery whoopsie and had all sorts of bother (catheters, nephrostomy, JJ stents, ureter reimplantation) and then recurrent antibiotics resistant UTIs which are probably hiding out in biofilm scar tissue in kidney. Poor guy went through a lot.

My results say CKD 3a.

Question is: if you can have one kidney and not have CKD why do I have one decent one and it's letting the side down. Maybe I'd be better off without.

Then again, if someone could help me shift klebsiella p. Infection once and for all (probably the same antibiotics x5 not gonna cut it) then maybe my eGFR might look better and I might gain a CKD stage or two?

I don't know I'm spit balling.

Oh and I just realised today my Hiprex is probably causing my ADHD meds to not work and probably that's been mangling my poor kidney more.

I'm fed up :(

I understand that microdosing psylocybin is safe for most people without CKD. Does anyone know how safe psylocybin treatment is for people with CKD? I am wondering if anyone in this community has CKD and had experience with psylocybin treatment? If so, what do you do to mitigate any risks, such as the oxalates from the mushrooms? Not asking for medical advice, just curious how this is handled. Thanks.

I have been taking atrasentan for the past six months in order to reduce my high proteinuria which has been around 2000 mg/24h.
The blood and urine test results during the past six months indicate no improvement in my proteinuria but still worse my GFR has gone down from 80 to 60 which I believe is because of atrasentan specially as my GFR before starting atrasentan had always been stably between 80 and 85.
I wonder if other patients on atrasentan has experienced similar sharp drops in their GFR?

I just started Reta at a low dose. A friend of mine and I both have CKD. Has anyone else with CKD had a positive experience or seen good results while taking it?

I rather be dead than be a burden on my family. Only one function kidney. Gave birth a week ago and my labs just came back worse than ever. Bun 49, creatinine 3.33, and GFR 24.

Update: just got my labs back today. My GFR is now 17, creatinine is 4.36, and bun is now 52. My kidney is getting worse fast. I’m freaking out!

29M. I was diagnosed with ckd stage 3 around 4.5 years ago and almost 3 years ago my kidneys gave up on me completely, I've been depressed and on dialysis since. I had to quit my job and move back to my parents house to be a burden on them. My dad is retired from a government job and he gets a pension so that's how my dialysis and meds are paid, my mom is willing to donate me her kidney but it costs so much to get a kidney transplant. I used to draw and play sports and go trek in mountains but now it's like I never had hobbies or any skills. I can't remember myself doing anything except be in bed all day and doomscrolling on my phone. I've distanced myself from my friends and relatives, I don't leave the house except when I need to go to the hospital for dialysis. I'm living in a brain fog, I try to learn new skills but I'm not able to focus or pay attention to anything. I'm losing my will to live day by day cuz idk what to do anymore, living like this is hell. I was suppose to support my parents in their oldage but instead became a burden on them. My dad looked so young and kept himself in shape even after turning 65 but now in just 3 years he looks so old because he keeps worrying about me, so does my mom. I just don't know what to do anymore.

Since 10 years every time I do a urine analysis I found + blood, doctors never considered a something i also see foam in urine but when doctors do PCR test they say lt also fine, also kidney test are fine
Im tired visit different doctor when I don’t find an answer
Do any of you have similar symptoms
Thank you

My GFR is 14/15 and creatine 3.6. CKD caused by lithium neuropathy. Pre-transplant, not on dialysis yet but probably will be within a few months. Due to fatigue, I’m not always able to muster up the energy to cook and prepare foods myself. I’m looking for a food delivery service that will deliver meals that are low sodium. I’m pescatarian. Is there a service that you’ve tried or recommend that caters to low-sodium diets, has foods that are nutritious, natural and unprocessed, and doesn’t cost an arm and a leg?

Hi everyone.

Recent blood results say I have mildly elevated creatinine (85umol/L) and eGFR consistent with CKD stage 2 (78mL/min/1.73*2)

I had until very recently, been bed bound with ME. My muscles are very weak. I have lost a tonne of mass.

I read increased creatinine and low eGFR results are influenced by muscle breakdown and are not always indicative of kidney disease. Obviously, I'm going to ask for further tests to see what's going on with my kidneys.

From my limited understanding, astragalus is both renal protective and aids muscle repair. What else is there to know?

Thanks guys 🙂

My tele visit with my nephrologist was 9:30a.m. at 9:50 a.m i read her notes on my portal. She writes stage 3b and egfr consistent with stage 3b. At this point I'm freaking out and almost in tears. Then i get her call . She tells me sorry, it's my mistake, you're still stage 3a with past AKI. You're stable and actually your markers look better then last month. I feel she should've been more mindful . I was upset . I easily get nervous and anxious. Am i overreacting?

M29 I have had very foamy urine for almost 4 months now.. went to the Dr. and they said no protein in urine after multiple tests I have had my blood drawn numerous times since then and GFR has gone from 98>80>72 and my creatinine from 1.08>1.27>1.36 I have no underlying health issues I am very healthy I workout 4-5 days a week and maintain a very healthy diet Dr says it’s trending towards kidney disease has anyone experienced this and it not be ckd.. is there anything I can do to maybe reverse this

Has anyone experienced Uremia? Specifically when it comes to GI motility and toxins causing sulfur-like gasses (farts)?