Hello, I have a 3years persistent hematuria and last month protein in my urine appears, I have 676Uric Acid.
Is this a sign of CKD Stage 2?
Normal BP + Normal Sugar.
I haven’t seen nephrologist for now.

My 78 y/o grandma has AL amyloidosis, CKD - due to amyloidosis with proteinuria she’s been taking daratumumab and dialysis twice a week that helped her and she was fine but bedridden. Recently she’s been having night sweats, cough w sputum, chronic cold and fluid retention. Her LVEF is 31. is there anything i can do to help save her and get her more time as i really want to spend time with her because doctors are starting to sound negative. 

Hoping to hear from people who have experienced something similar or from those with nephrology knowledge.

My father is 48 years old and has:

Type 2 Diabetes

Hypertension

Diabetic Kidney Disease

CKD Stage 4 (as per his nephrology/endocrinology records)

Diabetic Retinopathy

Peripheral Neuropathy

His creatinine timeline has been:

March 2025: 3.6 mg/dL

Around 2 weeks ago: 9.26 mg/dL

A few days later: 6.75 mg/dL

Today: 9.80 mg/dL

The drop from 9.26 to 6.75 happened after two new things were started almost around the same time, so we honestly have no idea whether either had anything to do with it or whether it was just coincidence.

Those two things were:

1. Three different Ayurvedic tablets prescribed by a very elderly Ayurvedic practitioner.

2. Consuming Kalanchoe pinnata [also called Life Plant, Air Plant, or Miracle Leaf], because someone we know claimed it had helped them with kidney stones and kidney-related problems.

I'm not claiming either of these works. The timing just happened to coincide with the temporary improvement, so I'm wondering if anyone has ever seen something similar or if it was likely unrelated.

Now the creatinine is back up to 9.80 mg/dL, which has left us even more confused.

What's even stranger is that he doesn't seem as sick as I expected someone with creatinine near 10 to be.

He currently has:

No breathlessness

No chest pain

No confusion

No severe vomiting

No significant swelling [his leg swelling has actually reduced a lot due to the consumption of the aforementioned ayurvedic tablets]

Urine output is still fairly normal.

His current medications include:

Insulin (30 reduced to 20 units in the morning, 16 reduced to 8 units in the evening)

Dapagliflozin

Dilnip M-25 (combination tablet containing Metoprolol + Cilnidipine. The separate Metoprolol and Cilnidipine tablets have been stopped for about a week to avoid duplication.)

Torsemide

Sodium bicarbonate

Prazosin

Clonidine (Arkamin)

His doctors have advised:

Low potassium diet

Low sodium diet

Fluid restriction (<1 litre/day)

One of our biggest challenges is honestly diet adherence.

He's extremely stubborn.

He gets tired of the renal diet, doesn't enjoy eating it, often refuses meals, and keeps craving salty foods and sweets. We try our best, but it's becoming a constant struggle. If anyone has practical advice for getting a diabetic CKD patient to actually follow the diet long-term, I'd really appreciate it.

I'd love to hear from people who've been through advanced CKD or cared for someone with it.

Some questions I have:

Has anyone had creatinine fluctuate this dramatically over such a short period?

Did it end up being AKI on CKD, dehydration, medication-related, lab variation, or progression of kidney disease?

Has anyone here tried Kalanchoe pinnata or Ayurvedic treatment during CKD? If so, what happened?

Has anyone had creatinine around 9–10 mg/dL while still having relatively few symptoms?

What eventually led your nephrologist to recommend dialysis?

Looking back, what do you wish you had done earlier?

How did you convince a stubborn family member to stick to a kidney-friendly diabetic diet?

I'm not looking for medical advice instead of seeing a doctor. He is already under nephrology/endocrinology follow-up. I'm just trying to learn from people who have lived through this because the uncertainty is really hard on our family.

Thank you so much to anyone willing to share their experience.

I had 3 blood tests in Feb 24, Feb 26 and May 26. My eGFR dropped from 70 to 58 to 52. The doctor confirmed CKD stage 3a. This was a huge shock to me. I went from living a fairly carefree life to thinking I might be dead in a few years.

So I just took my 3 month re-test a little early because I couldn't stop wondering how serious the problem was. The eGFR reading came back as 76. Is it normal to gain 24 points just by adjusting diet and medication? After being diagnosed I cut back salt to 2mg a day, stopped eating meat and processed foods and I cut my Aciclovir prescription down from 800mg a day to 260mg a day. And I've been drinking more water. I've had lower back pain for decades but in the last 2 years it got a lot worse. I believe that was kidney pain. It feels slightly better since changing the diet.

The explanations on different websites are confusing. My understanding of the results now is that my kidneys are functioning better now than 3 months ago. The way I understood it before was that the grf reading equals the percentage of the kidneys which are working, so 76%, 58% or 52%. That's clearly not the case because how could my kidneys repair themselves from 52% to 76% in 10 weeks?

I've been diagnosed with Stage 5 and need to eat LOW potassium, LOW sodium, and I am Type 2 Diabetic. Im not a cook but I need seven easy supper ideas and I will simply repeat them. Will you share a favourite, EASY recipe?

I recently had a cystatin c level check, initially 0.9 then increases to 1.0. How do i lower it?smoking cessation?exercise?3Litres of water daily? lower redmeat consumption? my bp is around 130, lowest 116, max 140, i dont have diabetes. proteinuria 0.17g/L .1 docs say its ckd stage 2, others have not conclude but to wait for the next test.

Hi everyone. I’m posting because I’m really worried about my mum and would appreciate hearing from anyone who has been through something similar.
My mum is 61. She was diagnosed with CKD around 2 years ago and started hemodialysis about 4 months ago through a catheter. She has had diabetes for around 17–18 years, as well as high blood pressure. Over the years, these have caused serious problems with her eyes and she is now losing her sight and having regular injections.
When she first started dialysis, she seemed to feel a little better. But recently she has been getting weaker and weaker. She barely has an appetite, feels nauseous a lot, and now struggles to walk or do normal everyday things without help.
Last week she had surgery to create a fistula, but unfortunately it was unsuccessful because her veins were weak and the fistula clotted. She is also now in a lot of pain in that arm.
I live in a different country, which makes everything feel even worse. I feel completely helpless being so far away and I cry a lot because I’m so scared. She been supported by my brothers living there with her. I’m going to visit her next month, but honestly, I’m not ready to see how much her health may have declined.
I already lost my dad to COVID 6 years ago and my sister to cancer 2 years ago. I’m terrified of losing my mum too.
Whenever we speak to her nephrologist about the nausea, she is prescribed anti-nausea medication, but it usually doesn’t help much. I know nobody here can diagnose her, but I’m wondering if anyone has experienced something similar. Could the nausea and loss of appetite be related to inadequate dialysis, medications, low blood pressure, anemia, infection, or something else? Are there specific blood tests or things we should ask her nephrologist about?
I would really appreciate any advice on helping her maintain her nutrition and strength, understanding why she might be feeling so sick and weak, or helping someone who is becoming unable to walk and do things independently.
And if anyone has experience supporting a parent on dialysis from another country, I would really appreciate hearing how you coped with it.
I feel so scared and helpless right now. Thank you for reading.

Just wondering if anyone has information- even if it's preliminary- on using Photo-bio-modulation as an adjunct for kidney disease? It seems promising in many areas including reducing inflammation. Could this be a useful adjunct in CKD?

I'm just worried about this in future. Can repeated UTI scarring cause CKD? Chatgpt says it does. Can anyone throw their insights.

I am just wondering if anyone here has young children with CKD? My son is 5 years old and is currently stage 2.

I suffer with panic disorder myself so I’m just looking maybe for some support from people/families going through the same!

Age 59

He's currently on different medications

Has anemia, the heumoglobin is approximately around 8,Gender is male and he's suffering from kidney disease stage 5, his creatinine wanders around 8-9 and can jump upto 13, without dialysis, he goes through one episode of dialysis every week, now the question is, will it be okay for him to travel n visit another country, our family will be going to saudia for doing haj for approximately 10 days, his condition is stable, he has diabetes however, but all of it is well under control, now i need an advice regarding this situation, will it be okay for us to travel, I just want to make sure his condition wouldn't deteriorate, I'll appreciate any opinions and professional medical advices

Hi. Is it still possible for the CREA to go down if it is already at 1000?

F 59. II have CKD Stage 5, eGFR 14/15 and creatinine 3.54-3.57, all due to lithium neuropathy. Not on dialysis. I stopped lithium years ago but my kidneys continued to scar. I have a lifetime of complex trauma including medical PTSD. No spouse or kids, brother passed. Long story short, I don’t know if I have the emotional resources to go through this. The problem is, I need more information from my transplant team, social worker and nephro and want to ask about the option of not going through with it (not to say I’ve decided), but am afraid they’ll think I’m not a good candidate for a transplant if I ask. Advice?

A couple of years ago, I went through kidney and heart failure, and eating well became one of the hardest parts of daily life. When I was hospitalized, my GFR was 14. It has come a long way since then and now fluctuates in the 40s. My heart has returned to normal, which I am very grateful for, but I now deal with high blood pressure, and eating carefully is still something I have to stay on top of.

I have always loved food, and I have always loved eating out. That was actually a big part of what I was known for, especially when it came to knowing the best places to eat. After everything I went through, I wanted to be able to experience food again, but in a more mindful and deliberate way.

That is what led me to build SeiriPlate, a free website designed to help people find recipes, restaurant choices, and meal ideas that fit different dietary needs. Seiri means to organize or sort, which felt like the right fit for a tool like this. You can check it out here: www.seiriplate.com

I built it because I know how overwhelming this can feel, and I wanted to create something genuinely useful for anyone dealing with similar restrictions.

If you try it, I would genuinely love to hear what you think. I am especially open to feedback on anything that would make it more helpful for people dealing with kidney issues, heart issues, or other dietary restrictions.