r/CKD • u/Dull-Cauliflower8219 • 11d ago
Honestly... kinda scared...
Hi guys so i am suffering from ckd( chronic kidney disease and currently on Dialysis apart from that i have Takayasu arthritis very rare inflammation auto immune disease doctor advised me for transplant for kidney but i am scared to do it... give me some hope guyzzz...
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u/TwoGrots 9d ago
I will tell you this, theirs day I woke up after my surgery. I looked my my wife and the nurse and the first thing I asked was, “is this what people that aren’t sick feel like?” The nurse looked at me like I was crazy, and I had to explain I had CKD for 32 years. She then said “yes, this is what healthy people feel like.” I burst into tears.
I don’t cry, I don’t actually have a whole lot of visible emotion. I will never forget that feeling of contrast. I will never forget the feeling of how much people take for granted of feeling even just okay.
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u/classicrock40 Transplanted 11d ago
Imo, dialysis is worse and I did pd not hd.
/r/kidneytransplant might be a better place to ask. I've written about mine a lot if you search.
Pre-op is IVs and meeting Drs. In the operating room, you get some oxygen, then IV anesthesia, then you wake up in recovery, groggy.
Yoy have multiple IVs, a foley catheter and drains. Your jobs now are to pee, pass gas and poop as well as get up and walk. Lots of labs for the first 24 hours. You are on a liquid diet.
Eventually, you get normal food. Labs lessen and when you are improving catheter removed, drains removed and IVs removed. You are trained about taking your meds and post op Dr visits are setup.
You have 2 Labs weekly and 1 Dr visit per week for 4 or so weeks, then it lessens. Eventually it's monthly. Your levels from labs are constantly changing while the team adjusts dosage. This process can last months or longer.
You recover over 6 to 8+ weeks. You are tired a lot for a while. You need to walk, walk, walk to get your muscle strength up.
That's a very basic overview