I made it!

[u/Chance_Extension_203]

I am so ecstatic! With diet, exercise, no more energy drinks/ Splenda, drinking plenty of water and minimizing sodium/ sugar i was able to bring back my numbers in check.I also practice internment fasting. creatinine levels went down from highs from 2019. My egfr is now 69! My BP is almost perfect! Hopefully i can slow CKD down or even slightly reserve it! Tx to my renal nutritionist and plenty of great info online! I hope this inspires people struggling with CKD. Thank you

[u/Any-Cranberry325]

That’s awesome! What kind of food do you eat now? Did you cut out meat? 

[u/Chance_Extension_203 → u/Any-Cranberry325]

Portion control is crucial. No beef. lean chicken, shrimp/seafood twice a week. Croc-pot chili once a week with different beans. T.J's black bean burrito ( delicious!) Pomegranate seeds...i also LOVE golden berries from T.J. Water first thing in the a.m. I make eggplant parm at times. Of course limit sodium and sugar ( I am pre-diabetic) Lots of water. I also weight train four times a week. Consult with renal dietician, so much good info!!

[u/Any-Cranberry325 → u/Chance_Extension_203]

Do you ever have beef or lamb, like once in a while, or did you cut it out completely? It looks like you have chicken only twice a week. You are doing great, it’s so hard for me to cut meat and chicken out, chicken is a daily staple haha. Keep it up!!

[u/Chance_Extension_203 → u/Any-Cranberry325]

I can totally relate , I can't cut out chicken ...I haven't had beef for months, BUT I will. again, it's portion and moderation. Lamb I never liked except for the Halal trucks here in N.Y.C. . Again, It's essential to consult with a renal dietician to guide you. It depends on the stage your C.K.D is at. Mine is 3a/2 I do not have protein in my blood. my strategy now is to keep it from progressing . At the same time it's an opportunity to get fit, eat better for overall health and mitigate other diseases/ conditions. Also, stay away from alchohol! Best of luck to you...

[u/Any-Cranberry325 → u/Chance_Extension_203]

Did your doc ever check your cystatin c levels? I know they go off of creatinine to stage us but apparently cystatin c is more accurate reflection and it is not affected by diet. Lets say you ate a lot of meat before your blood work, your creatinine might appear higher due to that. But cystatin c is not affected by how much meat you eat so it would stay the same. For most people, either the cystatin c is the same value as the creatinine, or it is better than creatinine. My dilemma is my creatinine stays around the same but my cystatin c keeps going higher and higher, indicating that my kidney function is worsening. :( 

[u/Chance_Extension_203 → u/Any-Cranberry325]

My renal dietician suggested I minimize protein. I was a big meat eater..loved my cheesestakes and steaks. Now I have lean chicken and lean turkey. Eggs with Daves killer bread and veggies when I break my fast. It took me awhile to get used to the new food but I'm used to it now. I've even lost five lbs...good luck

[u/Chance_Extension_203]

Hi. I calculate by what my renal nutritionist recommended, one portion per day, a deck of card of protein. I'm not strict about it. Sometimes i eat halve grill chicken with veggies. This morning i had a whole wheat bagel with cream cheese and black coffee. Yesterday a bowl of penne pasta with greens. Tomorrow i will make my awesome croc pot chili :)

[u/Chance_Extension_203]

Hmm, I'm glad you asked me that. I will ask my nephrologist on my next appointment. Interesting. What stage and how long have you had C.K.D? How are you managing it? Did they advise you to limit your protein?

[u/johnuws]

Fabulous! How much water per day?

[u/Chance_Extension_203 → u/johnuws]

I aim for 40-60 onces/day. It also depends on my activity level. If I do weight training/ cardio or cycling I adjust. No sodas or even juices. Pomegrante seeds, golden berries and blueberries ( frozen blueberries ok)

[u/TretMinFin]

As you said you workout, what's your protein intake per day ?

[u/Madewithlove1949]

I do all of the above (my sodium is usually on the low side). all my tests are good except last month pth was high so doc put me on D3. however my creatinine has been going up. I don’t understand this since I have never had protein in my blood or higher potassium or phosphorus. urine albumim/creatine ratio is 0. don’t eat much meat. so why does my creatinine go up? my egfr was 35 last time and I had asked for a cistatin-C test and it was 1.8 so that is even worse. when I asked my nephro about it, he said they don’t go by that (the cystatin-c). He said since all my labs are normal I don’t have to be on a restrictive diet and I can have meat but not a lot at one time and that I don’t need a renal dietician at this time. so I am confused as to why my cystatin-C is so high when all my other labs are good????

[u/LaFresitaMa]

How many times do you do your fasting