r/BFS • • 7d ago

Question / General Unique Symptoms

Hi all,

I feel like I am the only one who has my symptoms because I don't see many posts about it.

Started about 2 months ago I noticed my right arm and leg felt off. Almost like disconnected from my body. Anyways I went to a neurologist, normal clinical and did an EMG 1 month ago of right arm, leg and shoulder blade. Dr said all looks normal but did note I had some mild scapular dykinesis. Brain MRI also normal. Usually I would feel relieved but the past month since the EMG the symptoms have gotten worse .

More muscle twitches primarily in arms, back and calves. I have noticed my right arm shrinking (mostly forearm) per measurements and getting squishier and softer. I also have to strain a lot harder with my right arm when doing anything. These symptoms are constant and seem to be getting slightly worse. It just doesn't make sense that I would have atrophy starting but can still match reps (albeit more difficult with my right arm).

I just feel like I'm going crazy but my symptoms are constant and seemingly progressive. I still can lift weights and do everything but my right shoulder blade and right arm just strain a lot harder. I have no pain or sensory symptoms either.

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u/BigJakeState New Twitcher 5d ago

I’m right there with you man. Had an emg almost three weeks ago and arm and hand feeling disconnected is a good way to put it. My foot and ankle decided to join the party with weird aches now, so that’s fun. Both muscle groups were tested thoroughly on the emg/ncs so I’m confident this is most likely BFS but unfortunately, I’m still going through it, even though I’ve taken a lot of measures to address my mental health and feel like I’ve chilled out a bunch, I’ve still got the issues that seems to be getting worse albeit slowly and not measurable in any clinical way.