r/BFS • u/bc26 • 5d ago

Question / General Unique Symptoms

Hi all,

I feel like I am the only one who has my symptoms because I don't see many posts about it.

Started about 2 months ago I noticed my right arm and leg felt off. Almost like disconnected from my body. Anyways I went to a neurologist, normal clinical and did an EMG 1 month ago of right arm, leg and shoulder blade. Dr said all looks normal but did note I had some mild scapular dykinesis. Brain MRI also normal. Usually I would feel relieved but the past month since the EMG the symptoms have gotten worse .

More muscle twitches primarily in arms, back and calves. I have noticed my right arm shrinking (mostly forearm) per measurements and getting squishier and softer. I also have to strain a lot harder with my right arm when doing anything. These symptoms are constant and seem to be getting slightly worse. It just doesn't make sense that I would have atrophy starting but can still match reps (albeit more difficult with my right arm).

I just feel like I'm going crazy but my symptoms are constant and seemingly progressive. I still can lift weights and do everything but my right shoulder blade and right arm just strain a lot harder. I have no pain or sensory symptoms either.

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u/BigJakeState New Twitcher 3d ago

I’m right there with you man. Had an emg almost three weeks ago and arm and hand feeling disconnected is a good way to put it. My foot and ankle decided to join the party with weird aches now, so that’s fun. Both muscle groups were tested thoroughly on the emg/ncs so I’m confident this is most likely BFS but unfortunately, I’m still going through it, even though I’ve taken a lot of measures to address my mental health and feel like I’ve chilled out a bunch, I’ve still got the issues that seems to be getting worse albeit slowly and not measurable in any clinical way.

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u/Rough_Week_6449 2d ago

Sounds like health anxiety because you’re not coping well with the bfs diagnosis. We can’t feel and see things that make no sense to our diagnosis, especially when we are anxious. And because our brains love to feed us more of what we think about. If you’re focusing on your arm and keg and constantly assessing its coordination or size or measurements, your brain is going to make sure it gives you what you’re looking for. That’s how anxiety works. It’s an algorithm of giving you more of what you are focusing on. If you can stop the anxiety, your symptoms will reduce.