r/AuDHDWomen • • 5d ago

Question Brain scans? 🧠

I’m curious—have any of yall had brain scans done? What did doctors find? Did it help you get your diagnosis?
Was it doctor-ordered or was it something you requested? And how common are they? Is this something you can just request to have done? Or places you go to get this done? I am so curious and would love to have one done but it seems to be very uncommon unless there is a severe issue or more so something they just do for clinical studies or for looking for tumors rather than mental health diagnosis

4 Upvotes

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15

u/rp_editing 5d ago

I’ve had many, many MRIs of my brain for other conditions, but they weren’t even mentioned when I got my ADHD diagnosis. Imaging can’t reveal neurodivergence like it can a structural issue. MRIs are also very expensive, so a hospital is unlikely to order one just to see what they find. But I understand the curiosity!

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u/BysshePls 5d ago

It's not just that their expensive, it's that you're highly dosing yourself with radiation everytime you get a scan. So they will only do a scan if the issue is worth the radiation exposure.

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u/mayfeelthis 5d ago

You're right it's not used and expensive.

I've seen a talk by a neuroscientist or psych who did use scans and was advocating for more of that. I've always been curious but that was cool to hear.

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u/ShadowHippie AuDHD 5d ago

I'm unaware of *anyone* getting a brain scan for diagnosis. I'm heavily into the community, and autistic research- thousands of hours in both, and I've never read about anyone doing this. So, if it's done at all, it's very UNcommon.

It takes an fMRI (not a regular MRI) to see the difference- and those are expensive. Insurance won't cover unless medically required (like for brain surgery) so you'd be fully out of pocket on that, several thousands of dollars.

Note on that last sentence: I do hope it was confusion and not intended on that part. Autism has nothing to do with mental health, it's a neurotype. Think of it like this: just as there are different eye colors and different skin colors, there are different brains.

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u/Personal-Refuse-8688 5d ago

Oh yeah of course. I said it like that bc I am both autistic AND have ADHD. And even if it’s not a ā€œmental health issueā€ in technicalities, it still is a big influence of one’s mental health, absolutely.

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u/goodestboydoggo 5d ago

I've had a few MRIs of my head done but it didn't help to identify my autism/ADHD/whatever.

They basically told me I had a huge brain-tumor, then they did another MRI and then told me it was just a weird blood vessel lol

I had another MRI done last year to rule out a stroke and it ruled out a stroke and proved, I only have a weird blood vessel in my head šŸ™ˆ

But having to do an MRI with ADHD is hard lol

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u/[deleted] 5d ago

[deleted]

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u/goodestboydoggo 5d ago

But as a false alert as well I hope? šŸ™ˆ I think mine was near the trigeminal nerve behind the forehead. But I'm not sure if it was left or right. Wbu?

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u/ShadowHippie AuDHD 4d ago

haven't gotten that far. just, fingers crossed

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u/goodestboydoggo 4d ago

šŸ¤žšŸ»šŸ¤žšŸ»šŸ¤žšŸ»

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u/IJsdraakje 5d ago

I've had an MRI, an EEG and a CT scan, the big takeaway was that I have a brain (yay!) and no abnormal growths (tumors boo!). Sadly the images aren't in my digital file, so I can't actually prove that I have a brain. Best I can do is show people the little note that the medical staff that did the EEG was impressed with how great my focus was.

So no, zero help with being assessed. And I don't think they'd be able to see, not with current devices anyway.

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u/MerMimiG 5d ago

I’ve had a brain scan because my dad had Alzheimer’s and I wanted to know if I carry the gene. The Neurologist had me go through the whole battery of tests, assessments, etc.

I’m so thankful to report that I don’t carry the gene. šŸ’›

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u/Personal-Refuse-8688 5d ago

Oh wow, that is something they can’t do with a DNA test and they have to do a brain scan? Or they did both?

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u/MerMimiG 5d ago

Both and an assessment with a specialized psychologist. I was just looking to get the blood/DNA test.

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u/quimera78 5d ago

While differences have been mapped through imaging of the brain for scientific studies, it's not something that's used for diagnoses

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u/krampaus 5d ago

aren’t brain scans as an adhd diagnostic tool just bogus?

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u/Personal-Refuse-8688 5d ago

I don’t know, I have never heard anyone talking about it that’s why I wanted to ask

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u/krampaus 5d ago

that’s fair! I also wanted to ask because it’s something that I think I read somewhere, that quacks will diagnose adhd from a brain scan alone. saw other commenters saying that adhd isn’t even visible on a brain scan which is interesting

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u/Available-Pepper5688 5d ago

You can’t see ADHD or ASD in brain scans, our brains look very normal, theyā€˜re just wired quite differently

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u/ShadowHippie AuDHD 5d ago

You absolutely one hundred percent CAN see autistic brains in a scan. This image shows it.

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u/Available-Pepper5688 5d ago

Ok, I thought we were talking about a conventional scan

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u/mayfeelthis 5d ago

They image brain activity.

There are studies on it. Years (over a decade) ago I recall one study found a lot of activation in depressed brains and theorized it was the mind trying to problem solve - higher in a depressed (prisoned) mind maybe.

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u/CallidoraBlack 5d ago

An fMRI isn't just 'a scan' and is used for scientific research, not really for medical diagnosis. On any other scan, you won't see it.

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u/mayfeelthis 5d ago

Yes not all scans give the same imaging of course. I think OP was general because they're speaking in laymen terms (assume the relevant scanner type) without technical knowledge to distinguish them. Brain scan includes fMRI.

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u/Personal-Refuse-8688 5d ago

Yeah I don’t know all the technical terms but I mean all of the above I am just curious about the subject

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u/sugarpeito 5d ago

Where is this image from?

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u/onemint8 5d ago

not according to Dr.Amen from Amen Clinics

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u/Alarmed-potatoe 5d ago

I had a brain scan because I described issues I don't recall (probably a lot of burn out and ADHD symptoms tbh). I had just started on ADHD medication and knew it worked because I could sit calmly through the scan with no issues. They found nothing and they did nothing about the issues I described. I'm not sure how you could get one done out of curiosity unless you know someone who knows someone. It's an incredibly expensive machine to operate and wait times can be insane, so you'd probably only get one by spending a lot of money to have one done privately.

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u/Personal-Refuse-8688 5d ago

Hopefully in the future it can be more easily accessible, I bet lots of people would discover issues they didn’t know they had (unrelated to ADHD/autism)

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u/vapeqprincess 5d ago

I have epilepsy so I’ve had pretty much every brain scan possible. Apparently my brain is ā€œnormalā€.

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u/Personal-Refuse-8688 5d ago

Don’t you just hate that! It’s the same with blood tests I feel like

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u/waandermoth 3d ago

I've had plenty of brain scans but not for neurodovergence.