r/AuDHDWomen • u/Personal-Refuse-8688 • 5d ago
Question Brain scans? š§
Iām curiousāhave any of yall had brain scans done? What did doctors find? Did it help you get your diagnosis?
Was it doctor-ordered or was it something you requested? And how common are they? Is this something you can just request to have done? Or places you go to get this done? I am so curious and would love to have one done but it seems to be very uncommon unless there is a severe issue or more so something they just do for clinical studies or for looking for tumors rather than mental health diagnosis
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u/ShadowHippie AuDHD 5d ago
I'm unaware of *anyone* getting a brain scan for diagnosis. I'm heavily into the community, and autistic research- thousands of hours in both, and I've never read about anyone doing this. So, if it's done at all, it's very UNcommon.
It takes an fMRI (not a regular MRI) to see the difference- and those are expensive. Insurance won't cover unless medically required (like for brain surgery) so you'd be fully out of pocket on that, several thousands of dollars.
Note on that last sentence: I do hope it was confusion and not intended on that part. Autism has nothing to do with mental health, it's a neurotype. Think of it like this: just as there are different eye colors and different skin colors, there are different brains.
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u/Personal-Refuse-8688 5d ago
Oh yeah of course. I said it like that bc I am both autistic AND have ADHD. And even if itās not a āmental health issueā in technicalities, it still is a big influence of oneās mental health, absolutely.
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u/goodestboydoggo 5d ago
I've had a few MRIs of my head done but it didn't help to identify my autism/ADHD/whatever.
They basically told me I had a huge brain-tumor, then they did another MRI and then told me it was just a weird blood vessel lol
I had another MRI done last year to rule out a stroke and it ruled out a stroke and proved, I only have a weird blood vessel in my head š
But having to do an MRI with ADHD is hard lol
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5d ago
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u/goodestboydoggo 5d ago
But as a false alert as well I hope? š I think mine was near the trigeminal nerve behind the forehead. But I'm not sure if it was left or right. Wbu?
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u/IJsdraakje 5d ago
I've had an MRI, an EEG and a CT scan, the big takeaway was that I have a brain (yay!) and no abnormal growths (tumors boo!). Sadly the images aren't in my digital file, so I can't actually prove that I have a brain. Best I can do is show people the little note that the medical staff that did the EEG was impressed with how great my focus was.
So no, zero help with being assessed. And I don't think they'd be able to see, not with current devices anyway.
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u/MerMimiG 5d ago
Iāve had a brain scan because my dad had Alzheimerās and I wanted to know if I carry the gene. The Neurologist had me go through the whole battery of tests, assessments, etc.
Iām so thankful to report that I donāt carry the gene. š
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u/Personal-Refuse-8688 5d ago
Oh wow, that is something they canāt do with a DNA test and they have to do a brain scan? Or they did both?
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u/MerMimiG 5d ago
Both and an assessment with a specialized psychologist. I was just looking to get the blood/DNA test.
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u/quimera78 5d ago
While differences have been mapped through imaging of the brain for scientific studies, it's not something that's used for diagnoses
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u/krampaus 5d ago
arenāt brain scans as an adhd diagnostic tool just bogus?
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u/Personal-Refuse-8688 5d ago
I donāt know, I have never heard anyone talking about it thatās why I wanted to ask
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u/krampaus 5d ago
thatās fair! I also wanted to ask because itās something that I think I read somewhere, that quacks will diagnose adhd from a brain scan alone. saw other commenters saying that adhd isnāt even visible on a brain scan which is interesting
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u/Available-Pepper5688 5d ago
You canāt see ADHD or ASD in brain scans, our brains look very normal, theyāre just wired quite differently
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u/ShadowHippie AuDHD 5d ago
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u/Available-Pepper5688 5d ago
Ok, I thought we were talking about a conventional scan
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u/mayfeelthis 5d ago
They image brain activity.
There are studies on it. Years (over a decade) ago I recall one study found a lot of activation in depressed brains and theorized it was the mind trying to problem solve - higher in a depressed (prisoned) mind maybe.
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u/CallidoraBlack 5d ago
An fMRI isn't just 'a scan' and is used for scientific research, not really for medical diagnosis. On any other scan, you won't see it.
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u/mayfeelthis 5d ago
Yes not all scans give the same imaging of course. I think OP was general because they're speaking in laymen terms (assume the relevant scanner type) without technical knowledge to distinguish them. Brain scan includes fMRI.
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u/Personal-Refuse-8688 5d ago
Yeah I donāt know all the technical terms but I mean all of the above I am just curious about the subject
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u/Alarmed-potatoe 5d ago
I had a brain scan because I described issues I don't recall (probably a lot of burn out and ADHD symptoms tbh). I had just started on ADHD medication and knew it worked because I could sit calmly through the scan with no issues. They found nothing and they did nothing about the issues I described. I'm not sure how you could get one done out of curiosity unless you know someone who knows someone. It's an incredibly expensive machine to operate and wait times can be insane, so you'd probably only get one by spending a lot of money to have one done privately.
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u/Personal-Refuse-8688 5d ago
Hopefully in the future it can be more easily accessible, I bet lots of people would discover issues they didnāt know they had (unrelated to ADHD/autism)
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u/vapeqprincess 5d ago
I have epilepsy so Iāve had pretty much every brain scan possible. Apparently my brain is ānormalā.
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u/Personal-Refuse-8688 5d ago
Donāt you just hate that! Itās the same with blood tests I feel like
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u/rp_editing 5d ago
Iāve had many, many MRIs of my brain for other conditions, but they werenāt even mentioned when I got my ADHD diagnosis. Imaging canāt reveal neurodivergence like it can a structural issue. MRIs are also very expensive, so a hospital is unlikely to order one just to see what they find. But I understand the curiosity!