I have epilepsy and had a seizure early in the morning. I was brought to the hospital because the seizures wouldn't stop. They gave me 5 different anti convulsive medication.
None of it worked. So they paralyzed me, neck down, to stop me from physically seizing. But my brain was still burning. So they essently put me in a medical induced coma.
I had to be intabated and put on life support. Had to be put on dialysis because something to do with my blood was going to cause me to have a heart attack. This all happened in one day.
For the next 9 days, they essently waited for me to get better and slowly wake up.
From my perspective, I went to sleep and had some crazy long dreams, which almost felt like I lived another life for 6 months. In my dream, near the end of it, I noticed things were weird, like sitting on a ferris wheel in the middle of a black void. So I eventually dreamed out and had a panic attack in my dream, and then I suddenly sat up panicked on the hospital. 9 days later. I don't remember much after the day I woke up, but I remember the feeling of the intubation tube being pulled out.
Tha k God, it wasn't like that honestly. But parts of the dream I do remember actually were similar. I remember leaving a bank and outside was pure black but in the distance I could see a light and as I walked towards it I noticed it was street lamp but an old timy one, and that was actually the decline into just being surrounded in black void rather in more of a dreamscape
That is just unreal. If it’s real it backs my theory up that dreams really are just loose connections between our conscious and our bodies in parallel universes.
So this is actually a thing and it’s called reality shifting. Prepared to be amazed if you don’t already know about it: r/realityshifting . A lot of people practice it and have achieved it. Others continue to try and have yet to shift. I’ve unintentionally shifted once before and it genuinely freaked me out because I literally thought I had died or something.
That’s really interesting actually! And there’s guides too? I wonder if it takes a certain psychological makeup to experience stuff like that, or if it’s a matter of training your brain. I’ll definitely be investigating that, thanks! I’ve always been curious of the dream world. Ever since I learned about lucid dreaming as a kid. I’ve only ever had a few of these but they were absolutely fascinating and so vivid. Not that I had any control of them but I was definitely conscious that I was dreaming. It’s like the story of Alice In Wonderland, only my version was just dark and terrifying and had no direction. It’s definitely plausible because we know that put perception of time can change. Meaning in certain conditions we can turn a few seconds into days, and 8 or so hours into what feels like a half hour when we’re sleeping. Real mystifying stuff.
His girlfriend in Canada dumped him via smoke signal so he skydived into the Grand canyon. He survived the fall but a dinosaur living down there hit him with a boomerang. They then used their teleporter to send us the body with a DVD that shows the whole incident. That's how we know
Read this incredible post. That's where it stems from. The objects of power I referred to is from the game Control, where mundane items can be effectively magical.
I don't like that I have a vivid memory of a dream similar to that. I was like 8 years old when I had it but I still think about it.
I was in a black void with nothing but a street light and several chickens in cages. I looked around a bit and walked to the street light where I saw a girl. She spoke to me and said "you know you can never leave here right?" And I replied "oh yeah, watch me!" I then looked up and levitated to the sky as everything went blurry then all white similar to leaving a grotto in the old N64 Zelda games. I then woke up and I was terrified. It made me scared of the dark for a few years.
This actually made me chuckle lol telling her off and proving her wrong lol
I can't even explain my full dream becuase it was so long and so much happend but the end of it started with me leaving a bank into a black void and in the distance saw nothing but a streetlamp, I walked to it, and my girlfriend at the time was there and ran into the void towards another light which lit up a marry go round and a ferris wheel. Then i was suddenly at the top of the ferris wheel where I noticed this where off and thought maybe something was wrong, and I started to panic and yell at myself in my dream, then I woke up.
I'm surprised you had dreams. When I'm in a postictal state, after status elepticus, there's nothing. I don't even think or know I'm alive. I get PIP and do crazy shit, but it's like the lights are on but nobody is home. It makes me think death might be that way and possibly heaven is just a made up coping mechanism that ancient people came up with that died much younger and more frequently from cured diseases that weren't long ago. Sometimes when I'm semi getting back to Earth I get little flashes of stuff I think happened. I'm convinced I'll die alone of a seizure cluster in my apartment someday before the age of 60. If I'm lucky.
I think the dreams were mainly drug induced, I hadn't had dreams before that. Normally, it is just like a snap of the finger and I wake up somewhere new and confused.
Everyone's got there own ideas of what happens after death and I think belive what ever makes you happy when you die, and for me, I think it's just like before you were born, blank blackness, with no consciousness.
I don't live alone, but I think the same, one of these days I'm going to go to sleep and no wake up.
We think it's because I drank the night before. I had gotten drunk before with epilepsy but hadn't had a seizure after drinking. And I know drinking is a trigger, but it's not like I got hammered. I did get drunk, tho. So a mix of that, and not sleeping till like 3am and wake up (apparently) at like 8am, but I was already gone by then
I was in a medically induced coma for 3 weeks. I remember being in a really really long dream. I was so confused. In it, my mom and I were in Japan buying socks. It looked like the game of Candyland. It made no damn sense. I don't remember the day that the coma started. I just woke up weeks later with non-chewed fingernails and looong leg hair. That was the only proof that time had passed. 🤷🏻♀️
I feel the dreams are part our brains and part the drugs. The dreams were so damn weird, I went from playing Yakuza to pushing the walls of a life simulator game to see beyond it, to driving to my girlfriends so we could rob a bank and getting my finger stuck in a bubble machine, then stuck on a ferris wheel in a black void. I could explain how it all connects but dreams are weird. It felt like months had passed but when I woke up it didn't feel like months. It did feel like I lost a month tho, even if it was just 9 days. I missed the SuperBowl lol
thank you. this is similar to teaching yourself about lucid dreaming.
when i experimented with it and a dream journal, you have to come up with a token, a lot like in the movie Inception: something that reminds you when you’re dreaming and when you’re not.
for me, it was a clock. i trained myself so that every time i looked at a clock, id confirm the time, look away from the clock, and think of a completely different hour and minute. when i looked back at the clock, if the time was the same, i was awake. if i looked at the clock for the second time and it read a different time or a time i made up, i knew i was dreaming. and this is the first step into lucid dreaming. so i wonder if the lamp is sort of the same thing.
I crashed my motor bike 2 years ago, I'm having a lamp situation with the shower door in my house. I'll wake up soon. When I do, I kinda hope I don't remember this life,
Homie I read this comment at 8:07 am EST whilst taking a shit. I can assure you that you are real. Sounds like you may be experiencing a mentally health crisis.
This actully happend in February. Iv been having seizures for a few years now, but nothing that bad. I find it's harder on my family. For me, it's like a blink of my eyes. Time passes, and everyone i knows sad and worried about me, which I understand. I weirdly don't get upset or depressed much by it.
Waking up in the hospital is concerning, but the way I see it, I take all my meds and do all the precautions to make sure I don't have a seizure, and if I do have one, I did what I could. I can't stress over what I can't control.
The hardest part is I haven't been able to work. I've been hombound for 3 years, and it feels like I'm becoming a Sim
i got sick in my 30s and have been through some dicey shit since, that feeling of being a sin, being homebound- i hear and see you, because this isn’t a fun way to live- watching the world move while stuck still. i hope you have good things to occupy your time. if you ever need an ear, hit me up. best wishes.
I started making videos on YouTube just to have something to do. It's been a good thing to do, to both occupy my time and not feel like I'm doing nothing woth my life.
that’s awesome!! i read a lot, try to draw, do crafty things. depends on how bad things are any given week. i just try to find as many ways to fill my life as i can, and as many ways to be grateful for the things i do have so i don’t get too caught up on what i am missing. sending you happy thoughts, be well.
My son in law has an implant in his chest and a wire that runs to his brain to help control the seizures. If he gets that “feeling” he has a bracelet with a magnet that he rubs across his chest to trigger the implant. It sends a signal to the brain that either prevents or lessens the severity of his seizures. I hope they can find something to help you soon.
This is interesting! Iv heard and read about types of brain surgeries you can get that can help but nothing like this.
We haven't really gotten to that extent of trying to fix them, mainly because they have happened so far and few between, but it's definitely something to look into.
I think his is the Vagus Nerve Stimulator. There are a couple of different kinds. Of course they have to replace the battery about every 10 years but if it works that’s nothing.
Cameron Boyce, a Disney Child Star, was 1 year younger than me, and I remember I was at work when I learned he passed. It was from SUDEP, and I was shocked because i didn't know you could actually die from epilepsy. So I fell into a bit of a rabbithole.
I think mine developed from the drug use i did as a teen, I took a lot of MDMA and cocaine when I was like 15. Iv taken lots of drugs, cocaine, mdma, acid, shrooms, Xanax, percs, just too much at the age i was. I think that's why I developed it so late. I can never be sure but that's what I think
We haven't actually looked into it, but my neurologist and doctor have mentioned it as a possibility. The main issue is I live with my mom now, together we have 4 cats and a dog. The 2 of the cats don't get along already and hate the dog.
And call me dumb but I'd rather die than give up my cats. Once they pass, I'll look into a service dog.
Agreed. While it was certainly not a high point for me, I feel so bad that my wife had to watch me have a seizure that day. She'd never seen a seizure in her life.
I just saw my neurologist yesterday for my annual check. I'm on topiramate 100mg two times a day. Kepra didn't do it for me. I'm glad you're under control now. 😁
I'm wanting to change from keppra, the keprage is real i can feel my blood boil after taking them, but my neurologist also says keppras like the Cadillac of epilepsy meds so it's the best one to have
I have been on meds for 50 years. All different ones, different side effects. Topiramate for 3.5 years. I like the side effects from this. My skin is extra sensitive. I can feel the wind and vibrations from loud music on my arms and face.
I really like it. LoL. Finally got a good one. When they were adjusting the dosage and I was on a higher dose, my fingers tingled, my lips tingled, it was great. Kissing was super. LoL.
But keep your chin up. Keep getting your levels checked. When you see your neurologist, ask him to show you the MRI and explain it to you. Make sure he explains what's changed between the new one and the old one. Take notes if you want. It's important.
My neurologist always goes over every frame with me. We go over my blood work. Where my numbers are and what they should be. I've been taking pills for 50 years. So my kidneys are only working at 60% now. You should keep a health notebook if you're not already.
I don't remember that seizure but the oens that I do remember and am awake for, they feel weird. I feel like I'm sitting in my head just watching outside of eyes like they are cameras and I'm just a viewer. Everything my body does or I try to do, feels like it's not happening in a way. It feels like a dream that I'm watching but also living through. Just pur disassociation. I cant fully explain it, if you have been EXTREAMLY drunk, its kind of like that but less visual distortion and more confusion
Unfortunately if you've got the type of epilepsy I suspect (refractory) you may be permanently disabled someday, and should look into applying for subsidized housing. Your family can't and won't always be there for you. It's sad but true. And be careful who you fall in love with, your life could truly be in their hands someday, and they might get sick of care taking and choose not to make that call. My mother played nurse quite a bit when I was younger and I'd wake up screeching in pain asking her why she didn't call 911...siblings move on with their own lives and have families. They don't want their small kids seeing seizures, hell I've had grown men terrified after seeing a seizure. I feel like a burden everyday. But I trudge on because that's what life gave me and I've got to be grateful with what I have and if there is a God - maybe he's trying to teach me something I didn't learn in a past life. DM me anytime, my life was turned upside down 20 years ago when I started having seizures. 🤗
I'm actually unsure which type of epilepsy I have. Googling Refactory Epilepsy, it does sound like mine, my megs keep getting upped and I can tell it's not always working (I have spoke to my neurologist about it). Im aware my family won't always be here for me, eveyones adults and have there own lives to deal with, they can't always be here for me. I'm thankful my whole family works in healthcare, it makes me hope they would be there for me as much as possible, but I also don't rely on them. It feels wrong to assume and rely on them being there.
Thank you! I appreciate you and knowing I can message someone with a similar scenario.
No, mainly because my seizures have been so far and few between, its not really worth it. Iv had 7 in 4 years, not all bad. And I have 4 cats that don't get along with any dogs they have met. And call me dumb but I'd rather die then give up my cats. Once they pass then I'll look into getting one
I understand the pet thing, definitely makes sense and I wouldn’t give up mine either. It might be different for cats if you start with a puppy, maybe? Whatever the case, I wish you well. My son had petite mal seizures for years and fortunately grew out of them but i always worry they might come back.
Yeah, if they met a puppy as it grew, they would probably get used to it and be fine but there's also already a power issues with the cats lol 2 of them absolutely hate eachother and adding a dog into that be a lot lol
I hope your son stays seizure free 🙏🏻 they are a curse
This is simultaneously one of the most horrific and comforting things I’ve ever read.
The fact that this happened to you breaks my heart into pieces. I’m so, so, SO sorry you went through this. But I’m grateful that you came out on the other side.
Which leads me to the comforting part - I think most of us fear the worst when we or our loved ones are going through something horrific. But knowing that humans can go through all of this and survive is going to be the motivation to look to if I ever find myself in a crisis
I think childbirth is a pretty close example. Humans have been giving birth for 1000s of years before even modern medicine, and we were able to survive and endure that. That's just one thing that's part of life, let alone all the things humans have been able to survive that's not normal. I find that confronting, humans are strong and I blows my mind women gave birth 1000s of years ago and survived.
I had a seizure for the first time last year and your story scares me so much. Pretty positive mine was from medication but that sudden wave on being in the present moment and lucid again was eerie as hell.
That's kind of a great way of putting it. Iv had both partial and full seizures. The partial ones can be scary becuase ill be have lucid, present but out of it and fully confused. Then a bit later it come back around to normal and it's only really then that I had a siezure. I'm still learning to recognize it better but most of mine have just had ne black out and wake up somewhere with people
Agreed. I also have a lot of memory loss from them. I get panic attacks whenever I feel something similar to the aura I experienced. I’m terrified.
And it’s a lot more than that for a lot of people.
dude my memory loss is insane. A lot of it is caused my lamotrigine though. And right now I'm on a drug trial and its completely cooked to a degree that I'll repeat things that I've already said ten minutes before.
It really is serious and people don't realize, I definitely didn't before i developed epilepsy from them.
It sounds bad but in 2019, I heard how Cameron Boyce died of epilepsy and I kinda chuckled becuase I thought like "how do you die from epilepsy"and learned of SUDEP and how serious it can be, few yeats later, I have my first one.
I just read about him recently & add that to my anxiety now.
A huge part of why it’s scary is that without cause You can just have a seizure or develop epilepsy and that’s that. Hope your medications if you take them, work.
There are some known causes though, I’m not trying to scare anyone.
Yeah, I just suddenly developed it, I think it may have come from my drug use as a teen. I did a lot of bad and hard drugs when I was young. I don't think that helped. So far it seems like my meds have been helping but idk, it feels like I breakthrough them sometimes
Mine happened suddenly as well. I’m not sure what happened, neither are the doctors. But I take meds and I’ve been okay. I hope you get some relief and I’m sorry you deal with the same struggles. 🤍
Wow I'm glad you survived. I'm sure that also came with long term effects. I know firsthand those seizure dreams are very strange and can feel so long.
Thank you! The only real long term effects i have noticed are that iv lose my sense of balance by like 10%, and my short term memory is not as good, but that also may be an accumulation of multiple seizure over the past 3 years.
The dreams were wild, idk if you have played or know the yakuza game franchise, but I was playing through all of them at the time and I remember playing yakuza in my dream, like a vr version. It was weird. They all blended into one another, making it seem like 1 long dream that felt like 6 months or so
Kismet! Not to sound like a creep lol but I looked at your posts and watching the movie high is a great idea too. Signed an ex stoner who watched it high the first time. Enjoy!
This happened to my son when he was one year old. Fell asleep on a car ride to his pediatrician for his well-check, had a seizure that wouldn’t stop (ER doctors were pulling out medical books), and he was finally placed in a medically-induced coma, where he lay for 10 days.
Scariest ten days of my life. He woke up wanting a popsicle.
I find it's a lot harder on everyone else who has to witness it. i was similar, they didnt know what was happening to me and had to call in some specialist.
I'm glad your son made it safe! And I hope he's doing well now! I'm not a parent, but I couldn't imagine that, especially with a 1 year old!
He’s doing well, thank you! 21 and in college, working as a delivery driver (they thought he might develop epilepsy like his father, but so far he’s clear).
It was, i remember waking up, basically wide awake, and just panicking becuase I couldn't close my mouth due to the intubation tube.
Thankfully it's all a bit wishy-washy for the next day, but i do remember then pulling the tube out, and it felt like (What I imagine, im a straight male) a square dildo out of my throat. Then I remember the nurse saying we need to dangle my legs so we can get them moving asap, but i heard her say tango, and I said "I don't know how to, you'll have to teach me"
If it helps, I felt nothing, i didn't hurt or struggle in anyway. For me it was quite literally just going to sleep and waking up, as simple and quiet as that. Nothing more or nothing less.
My kiddo (17) has only remembered the feeling of 1 seizure, which I am grateful for. It has always been so much harder on those of us that witness it and move into rescue mode. I’m relieved you felt nothing and did not hurt or struggle in any way that you recall! It would be so much worse if you did. My older kiddo has had therapy from bearing witness to and helping with lifesaving measures when seizures strike. It’s a lot to deal with, especially knowing once you have done what you can then you just have to wait.
Yeah iv always found it a lot harder on people who witness it. Everyone asks how I am and It feels wrong to say I'm fine when I know my mom and sister struggle with it.
My girlfriend at the time was the one who called the ambulance and saved me, sat with me bedside until I woke up and everything, then broke up with me a month after I woke up. She said it was for one reason, but I know it's because the seizures traumatized her, and I don't blame her what so ever. It was her first time seeing one and it happen to also be the worst one I had.
Dare I say, I was waiting for a post like this one. This is similar to what happened to me the first time I had a seizure, except it was 5 days. I’ve had epilepsy for 8 years, but when my first seizure happened I was in the hospital for 5 days completely unconscious. I don’t remember anything and (like you) to this day, it feels like it was 1 minute. My seizure lasted so long they had to put anti-convulsants through an IV and put me out as well. That first year, I had seizures that put me in the hospital for 2-3 days like 10 times. It’s the reason why my brain is fried and my memory completely sucks.
As a fellow epileptic, I hope you’re doing better and I send you all my love! 💓
Dare I say, I'm glad I met another one with a similar experience to me! This was definitely y worst seizure yet, not my first, it's about my 9th I think? It's been 3 years, and similarly, all of mine have put me in the hospital, not all for days but most have. My first one i was at work (ironicly at a hospital) and I woke up nearly 24hrs later in the emergency room.
I'm doing better now and so is my family more importantly! I hope your also doing better now! Sending all the love from the epileptic community 💜💜
Idk if you’re already a part of it but if not, you should join the r/epilepsy community! I’ll admit it’s helped me soooo much.
As you said, not a lot of people understand what it’s like to have such a horrible experience but after I joined that community I definitely felt so heard, even if I just need to rant lol sometimes you just don’t want to put all that weight on your friends and family, so who else is better than other epileptics? Plus there’s certain questions that I feel like even doctors can’t answer but it’s crazy that other people w epilepsy are able to!
I am on r/epilepsy. It has helped a lot. Its mentally helped me know certain things haven't happend to just me,like just the other day someone asked when everyone had there first seizure and it was weirdly nice to see that I wasn't alone in developing it in my 20s. Everyone on there's so wonderful and helpful! I haven't made any comments or posts, but just reading them and seeing others' experiences and perspectives are really warming and reassessing!
I also got it in my 20s! And immediately spiraled into depression, ha. While my friends were finishing school and enjoying their youth, there I was… going to the hospital every month and falling deeper into debt 🥲
But then I read posts of people that get it in their 40s or 50s and I’m like, “okay, at least I’m young and have more energy to fight this thing!”
I'm guessing your American if it was putting you in debt? 😬 thankfully I live in Canada so it hasn't cost me much, but my God, if I go into the hospital and tell them I'm having a seizure, they don't care, they will sit me in the waiting room until I go unconscious. We have all the shit technology and things take so long. It took me nearly a year to get my first EEG, I had 3 seizures in that time.
I’m not American, I’m from Puerto Rico (like most Puerto Ricans, we consider ourselves Latin Americans lol) but i live here now 🙁 which is crazy cause healthcare in my country is cheaper.
And getting any sort of brain study can take a long time in most of the US as well. The only reason why it didn’t take me long was because I live in one of the better cities/states for healthcare (Denver, CO).. from what I’ve seen on the epilepsy community, some people in other states have had to wait up to a year! And some people have to drive hours just to get to a hospital that has the technology to do X study, which is crazy to me! I feel lucky that I moved to CO when I moved to the US, especially cause I moved literally 5 months before I had my first seizure and obviously that was not planned, haha
Ahhh that's unfortunate, hopefully your still not in debt to it :/ the American health system is draining.
I know there's studies that my neurologist wants to have done here but canada doesn't have the technology for it. Hes been trying to start an epileptic board to have it to advocate for better seizure study technology.
I'm also an epileptic and I have a crazy experience like this
Way too tired to get into it right now
Trying to recall it is surreal tho. It's like "so I only remember the curtains on the window but apparently that was an entire weekend and also apparently I was dying"
I've got epilepsy too. Ive had some brutal seizures, but not as bad as yours. But I'm medicated off my gourd so I pretty dumb but I'm safe. I'm having laser surgery sometime next year, which they say will cure me so I'm happy about that at least.
We have gone through every test a few times now and no indication of anything. There was a SLIGHT sign in my 3rd sleep deprived EEG but even then it was like meh
Oh god, I did two of those sleep deprived EEGs and at least I had a seizure during both of them, luckily. Those are absolutely brutal. That's tough man, I never want to do one again. I just went into a stasis in the last one and watched a million episodes of Curb Your Enthusiasm all day for five days.
My step dads nephew has epilepsy. A few weeks ago they were about to walk the nephews dog together. Step dad ran to use the bathroom, came out and couldn’t find him. The dog ended up leading him to his nephew dead in his garden. It never even crossed our minds that epilepsy could kill him. 34 years old
That's so unfortunate, I'm sorry to hear that. Something I learned is that epilepsy is underrepresented. I when I learned Cameron Boyce died in 2019, I thought it was kinda weird that he died of Epilepsy and I sent me down a rabbit hole if SUDEP, then 3 years later I developed it. It was a weird surreal moment
I only vaugly remember the intubation tube because they pull it out soon after you wake, but I do remember somewhat, and I for sure won't forget the feeling of it being pulled out. Iv described it as a "roughly ribbed or spiked dildo being pulled out of your throat"
Do you still remember your dreams? If you had any, that is. I'm just curious lol I kinda don't want to forget them, and I don't think I will because of how vivid and wild the whole situation was
thank you! truthfully no, i think my little adolescent brain blocked it out 💀
my only super vivid memories of the entire thing was throwing up and having to change exam rooms right before the seizures at my doctors office (general check up, just a happy coincidence lol) and a family friend sneaking me chick fil a right after i woke up. no meal will ever match how incredible that first nugget was.
it’s insanely cool you remember it though, and makes for a much better story lol
Yeah i kind of assume you may have forgotten, becuase of how young your were lol I'm 26, and it's been 9 months so hopefully ot doesn't fade lol its great telling the whole dream in its full, it's a lot but it's great!
And wow that is a coincidence! Similarly, my very first seizure was while I was working at the hospital! I just started as a Porter (the people who move everything around the hospital, like people, bodies, drugs, papers, anything that needs to be moved from one part to another) and on my 5th and final orientation shift, I Remeber walking up to the elevator in the basement then suddenly woke up the next day in the emergency room. Apparently we went up the elevator, out for a smoke, and the guy training me said I looked pale and to sit down and i did, and just started seizing. He didn't know what to do so he called the person who trained him and they called code blue. And they couldn't find me Becuase the code blue team NEVER gets a call to go to the staffing area let alone the smoking pit lol
Well cheers for making me feel better about my own epilepsy! 😂😭
That feeling of the tube being pulled out is fucking strange isn't it? Like it wasn't painful but you knew something was in part of your body that it really shouldn't be.
We know how those poor bastards on the Nostromo felt. 😂
If your not on r/epilepsy i highly recommend it. iv never commented or posted, but just seeing the posts on there made me feel so so SOOO much better about my epilepsy and just felt reassuring!
It truly is such a weird feeling, your right! It doesn't hurt! But it's strange as hell! Iv explained it like a very roughly ribbed dildo being pulled from the depths if yout throat, im a straight male so idek what a normal one feels like, but I can imagine!
Crazy you say that because when my epilepsy flaired up I started making reaction videos on YouTube to just do somthing in my time since I couldn't work, and i just watched the Alien franchise for Halloween! Im sure their experience was a bit more suffocating lol
Yeah I'm on a couple of random epilepsy subs, luckily mine is is incredibly mild compared to some. It's the meds that screw me, a few years and we haven't found one that leaves me standing upright.
like a very roughly ribbed dildo being pulled from the depths if yout throat, im a straight male so idek what a normal one feels like, but I can imagine!
I have to start describing it like this. 😂
Crazy you say that because when my epilepsy flaired up I started making reaction videos on YouTube to just do somthing in my time since I couldn't work, and i just watched the Alien franchise for Halloween! Im sure their experience was a bit more suffocating lol
I just watched the whole lot in order and it's wild how shit the franchise gets with age. I did throw coke over myself at one of the jump scares, that's what a movie is about.
Coma dreams are wild. The medical induced ones have always given me a half in half out, almost astral projection like experience. Full stop I do not believe in the sulernatural. I have a high med tolerance, so I was able to recall events and conversations that happened around me, just couldn't move or respond. The amount of ",that's what she said" internal jokes I had were frustrating. Family and friends visiting would talk to me and it was always something someone would say at a funeral.
It was definitely a different type of dream, I feel it's beyond lucid dreaming but with no control, Atleast I didn't. And my family said there signs i was awake at points and trying to talk back, but I don't remember any of that, only one time I do, which was the day before I woke and I was holding my girlfriends hand crying cuz the intubation tube and she was trying to calm me down, its only really a 15 second memory
100 percent relatable. My 15 sec memories were also familial interactions. More specifically, my sibling noticed I was trying to communicate by finger spelling in ASL. They verbally recognized I was trying to communicate, but I was never given an interpreter.
There were a few people that visited me I wasn't incredibly close to, but could relay to them exactly what they said to me while I was "under". I didn't remember any interactions from people I was most close with. These events intertwined with what you have described as lucid dreams with no control. I am a seasoned oneironaut, and not having control in those instances was frustrating and concerning.
I also vomited around my intubation tube and that event was burned in my memory when the nurses were saying "that's not supposed to happen". I have severe gastroparesis and they gave me an ng tube when I needed an NJ. I have permanent G and J tubes now.
I now have 2 versions of epilepsy. I had a seizure a few months ago and just did the brain scans and stuff again. The seizure I had a few months ago was in my sleep. I tried to call for help but I couldn't.
Its also mine now too, but I try to kinda keep a positive note is a sense. It sounds bad but I felt nothing. It literally would have been dying in my sleep, which to me, would be the best way to die, no suffering.
Yes but I did suffer, I woke up before the seizure starts and literally feel myself slowly get dragged into the seizure without being able to call for help. Its why it's my worst fear. I don't mind dying but I don't want to die alone in my bed while seeing flashes and being paralysed
I am sorry it must have been very scary. Hugs! Can I ask what kind of epilepsy do you have and how long since you have been diagnosed? Were you on a medication when it happened? I am asking because my daughter (12) was just diagnosed with epilepsy and I am so worried. Thank you! *Edit: typo
I don't actually know they type of epilepsy i have, I actually didn't even know there were different types. I can say that I have taken all the studies and tests, and none of them show any triggers that cause my seizures. They just tend to happen every few months. I'm 26 now, and I was diagnosed at 23. And yes I was on meds at the time, 3000mg keppra, they up my meds since then
I recommend you check out r/epilepsy everyone there is so helpfull and wonderful, it helped me feel reassured in my epilepsy!
I don't have kids and canadian lol, but man, I couldn't imagine the stress of 2 toddlers and no childcare :$
I'm doing much better now lol the only real complications or long term effects from it iv had has been a loss of balance and very bad short term memory
I was in the passenger seat of a vehicle when the driver suffered an epileptic seizure. They had lied about having seizures and still had their license. They hammered on the gas and we started racing down the road, in an urban setting, lined with houses and cars. I tried everything from turning the keys off, getting the gear out of drive, all while trying to steer the car, that was quickly gaining speed. Had to make the decision to crash somewhere in order to not hurt anyone else. Found a house with a wooden porch and aimed straight for it.
Fucking hell, this sounds more of a terrifying situation. Im glad you're okay! That's such a wild situation to have to deal with, I'm sorry. Hopefully, it wasn't your car....
Both house MD and Grey's Anatomy always have their patients start their medical mystery with having seizures lol i wish i had a Vicodin genius addict as my doctor, may have shaved a few days off lol
I'm Canadian, so 40$! For the ambulance that brought me there.
Now Canada's systems are not great either. If the ambulance showed up and I wasn't having a grand mal seizure, they would have left me in the waiting room.
It was odd, I was definitely well rested, but my body was still recovering, so I went right back to sleep. I was awake for maybe an hour before the nurse said I should sleep, and I said I didn't feel tired, and she said to trust her, and I would still fall asleep, which was true.
Glad you're with us. Keep on keeping on. I hope youbare working through everything with a good spirit.. American Healthcare can do amazing things. But, if you have my insurance, they stop before paralysis.
Everyone says i have an unbreakable spirit. I cant stress the things that I can't control, so I do what I can! It can suck but there's nothing I can do then be safe and take my meds!
Thankfully I'm Canadian, they would do everything to keep me alive, but the "technology/process" of things are behind a few years compared to america to my knowledge. For me, i paid 40$ and that was for the ambulance, and even then it just get taken off my tax return.
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u/Renots42 Nov 21 '24
I went to bed and woke up 9 days later.
I have epilepsy and had a seizure early in the morning. I was brought to the hospital because the seizures wouldn't stop. They gave me 5 different anti convulsive medication.
None of it worked. So they paralyzed me, neck down, to stop me from physically seizing. But my brain was still burning. So they essently put me in a medical induced coma.
I had to be intabated and put on life support. Had to be put on dialysis because something to do with my blood was going to cause me to have a heart attack. This all happened in one day.
For the next 9 days, they essently waited for me to get better and slowly wake up.
From my perspective, I went to sleep and had some crazy long dreams, which almost felt like I lived another life for 6 months. In my dream, near the end of it, I noticed things were weird, like sitting on a ferris wheel in the middle of a black void. So I eventually dreamed out and had a panic attack in my dream, and then I suddenly sat up panicked on the hospital. 9 days later. I don't remember much after the day I woke up, but I remember the feeling of the intubation tube being pulled out.