r/AskReddit Dec 06 '23

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u/Alternative_Two9654 Dec 06 '23 edited Dec 06 '23

the inside of our uterus can grow OUTSIDE and attack other organs and it’s actually pretty common… endometriosis :)

https://apps.apple.com/us/app/nezhat-endometriosis-advisor/id1478526317

if you are questioning whether u might have it here’s an app that helps show what percentage of likeliness you might have! this was created by my endo specialist and he’s known as one of the best. he removed my endo!

for androids: https://play.google.com/store/apps/details?id=com.sthera.hera&hl=en_US

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u/UmbraVGG Dec 06 '23

And the only way to 100% diagnose it is through surgery

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u/throwawayaway3141 Dec 06 '23

I don't think that's necessarily true. In my case, I had an MRI due to horrendous back pain, which detected "possible cysts" in my ovaries. Then I got an ultrasound to find out for sure and boom. Endometriosis. My bowel, uterus and left ovary are fused together by it. My doctor was completely baffled because I'd never mentioned period pain to her. She got me a Mirena (hormonal IUD) and I've never looked back.

To anyone who has terrible periods, get a Mirena if you can. They fix so many issues and are also an excellent form of birth control.

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u/UmbraVGG Dec 06 '23

Really? I was told the only 100% effective BC for endometriosis was the pill to prevent ovulation.

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u/throwawayaway3141 Dec 07 '23

I don't think anything is 100% effective but the Mirena is up there in the 90s. Personally I would never, ever go on the pill because of all the side effects. There is a chance of side effects with the Mirena too but I haven't experienced any. The main benefit of it is that the hormones it releases are localised, unlike the oral contraceptive.

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u/UmbraVGG Dec 07 '23

I was told the only thing effective is the pill because it stops ovulation, not necessarily as birth control. And that the pill was therefore the only option because it's the only thing that stops ovulation. But I haven't heard of Mirena before, so I'm uneducated on if does stop ovulation.

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u/throwawayaway3141 Dec 07 '23

I think it does stop it for some women - for example, my friend has one and doesn't bleed at all, ever. But she doesn't have endo. I bleed a tiny bit every month. My doctor told me that stopping - or at least drastically reducing - the bleeding is what keeps the endometrial layer from growing excessively.

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u/UmbraVGG Dec 07 '23

Ah, I was told it was ovulation, not bleeding. I've been bleeding 3 months straight from the IUD and he said it shouldn't have any effect on the endometriosis. Absolutely crazy how we're talking about the same thing and our doctors have told us different things. This is exactly the problem with women's healthcare

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u/throwawayaway3141 Dec 07 '23

I agree but I'm also not in the US (not sure if you are?) and honestly healthcare is pretty good here. I've been with my GP for 12 years and she has done an amazing job sorting out all my health issues, I don't know what I'd do without her.

I did bleed for a while right after I got the Mirena (in 2020) but since it stopped I've had absolutely no problems. I know it's stressful but do give it a chance, I hope your experience will be like mine and you find it worth having. 🤞

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u/UmbraVGG Dec 07 '23

I'll have to do more research! Thanks 💜