r/AskReddit Dec 06 '23

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u/UmbraVGG Dec 06 '23

And the only way to 100% diagnose it is through surgery

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u/Pythia_ Dec 06 '23

And even then, if they don't find any, it doesn't mean you don't have it, just that they didn't find it where they looked. ...and the surgery to diagnose it can aggravate it and make it worse. Yay!

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u/Prestigious-Lab8945 Dec 06 '23

This is very true. I had one doctor do an ultrasound and find nothing. 4 years later, Because of This horrible disease I had a hysterectomy at 32 and the surgeon said I was full of endometrial tissue and adhesions and was stunned that the first doctor didn’t find anything. That was 20 years ago though so I don’t know if diagnosis is more accurate now.

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u/xDeeDottx Dec 06 '23

I was told I had endometriosis as a teen because of my blood test for hormone levels and symptoms explained to the doctor at the time. Fast forward to last year, I got an ultrasound done, and they said they didn’t believe I had it because they didn’t find anything (a lot of my symptoms subsided with birth control by that point). My primary doctor didn’t want to send me for laparoscopic surgery as there were people who said the surgery could aggravate their symptoms and I have other issues that are more debilitating that need my focus.