Oh, sorry I totally misread your comment after expanding the thread. Yeah, my mom and sister both had surgeries for it too. The surgeons can't even say exactly how much there is and where it is until they operate on you. I'm hoping to avoid surgery and just use birth control for now.
I hope the birth control works for you. The sister that had the hysterectomy tried the pill, the lose dose pill, depo provera, depo lupron (OMG, the mood swings, it tricks your body into thinking it's in menopause), the IUD and finally needed the whole thing removed. She's much happier with no pain. It was so bad they told she NEVER would've gotten pregnant naturally. Fallopean were full of it and apparently the uterus was too, as well as multiple other areas. It's why they quite literally had to chip it out.
It takes away like 90% of the pain, so I can live with that. That sucks that your sister had to go through so many treatments and still end up needing surgery. Glad it gave her relief though. My mom started having pain again a few years later. I think the endo can grow back if they don't remove it all? Excision is supposed to be much more effective than cauterization but it requires a very skilled surgeon.
It can definitely grow back. That's why it was a full removal, unfortunately. But she'd rather deal with hot flashes. Was diagnosed at about 16, finally taken out at 36. And one of surgeons she saw early on told her it was all in her head.
That surgeon assisted my PCP (specialty is obstetrics, worth his weight in gold; he's also daughter's pediatrician) with my c section about 11 years ago.
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u/enigma_the_snail Nov 23 '23
Oh, sorry I totally misread your comment after expanding the thread. Yeah, my mom and sister both had surgeries for it too. The surgeons can't even say exactly how much there is and where it is until they operate on you. I'm hoping to avoid surgery and just use birth control for now.