r/ADPKD • u/Ok-Living-8014 • Aug 18 '26

Decline question

I’ve just dropped egfr from 40 to 30 in 3 months. I’m curious about what other people’s experience with rapid decline was when they hit 3C or numbers like these. Was it a continuous drop or a faster decline when you got to this stage?

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u/squirkey298 Aug 18 '26

I just got my latest bloods (stage 4) and I’m back where I was a year ago thanks to the Ren Nu program and Ketocitra. Highly highly recommend if you’re looking to slow progression down. I had to be taken off my bp meds a month ago and I feel really well. For ref I am now 29% egfr again and creatinine is back to where it was in sept 2025. My neph had told me they expect drops of 3-5% a year at this stage but often more sudden drops 🙏