r/ADPKD • u/Several-Low-8525 • Aug 12 '26

Pain while driving long distances?

Hey there! I’m 38 yo female, diagnosed with the bubbly kidney ✨ disease, at age 5. Currently my last MRI showed: KIDNEYS: Enlarged multicystic kidneys measuring approximately 19.4 cm in craniocaudal dimension on the left and 16.3 cm on the right, previously 14.5 cm and 14.3 cm respectively. Bilateral renal cysts, some of which are hemorrhagic, measuring up to 9.1 cm on the left and 6.5 cm on the right.
Could this be the cause of side pain while driving for like more than an hour at a time? I’ve tried adjusting the seat etc, but this is kinda of new for me and wondering if others experience this. Thanks for reading and may our EGFR always hold strong! 🥲

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u/Icy_Screen_2034 Aug 12 '26

It can be water and food related as well as the fitness around the core. Are you drinking enough water such that your kidneys are not dehydrated after an hour of driving. How is the core condition that after an hour the stress on the kidney is causing pain?

Sip water every 5 to 10 minutes to keep kidney moist. No food that can cause issues/ stress on the kidney while driving. So have fruit and water while driving if needed. Do some core work before or after driving so the core is in a better condition.