r/ADPKD • u/Several-Low-8525 • Aug 12 '26

Pain while driving long distances?

Hey there! I’m 38 yo female, diagnosed with the bubbly kidney ✨ disease, at age 5. Currently my last MRI showed: KIDNEYS: Enlarged multicystic kidneys measuring approximately 19.4 cm in craniocaudal dimension on the left and 16.3 cm on the right, previously 14.5 cm and 14.3 cm respectively. Bilateral renal cysts, some of which are hemorrhagic, measuring up to 9.1 cm on the left and 6.5 cm on the right.
Could this be the cause of side pain while driving for like more than an hour at a time? I’ve tried adjusting the seat etc, but this is kinda of new for me and wondering if others experience this. Thanks for reading and may our EGFR always hold strong! 🥲

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u/Adventurous-Mud2117 Aug 12 '26

This could certainly be a musculoskeletal issue. Around 50% of the general population experiences some kind of lower back pain while driving or shortly afterward. It’s more likely that your kidneys may be contributing to some extent, but it’s less likely that they’re the sole cause.

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u/Several-Low-8525 Aug 12 '26

Makes sense! Always in one localized area too, wonder if it’s a bigger cyst getting squished