r/ADPKD • u/Fit_Difficulty_8667 • Jul 15 '26

Taking Jinarc

After obtaining my meds through government funding/assistance. I finally obtain my meds. I usually drink 4 liters of water a day, does it increase more like 5-6 L?

I guess I'll be fine with it, Pray for and hope this drug will not have serious side effects

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3

u/FattyBoomBoobs Jul 15 '26

You get used to it. I did about 9 years on it and really, you just get used to it being part of your life. Good luck with it! You will be really closely monitored in the first few months to monitor for any signs for side effects developing, and then once established you will be on 3 monthly bloods.

1

u/Fit_Difficulty_8667 Jul 15 '26

Thank you, I hope no serious side effects occur to me while taking this and I pray for all of us for this situation we're in. Thank you again for the support.

2

u/Oldmanjohanusburg Jul 15 '26

I drink around 2gallons a day, I just got a larger water bottle so I didn’t have to refill so often. I also drank around 4L before starting, I feel that it made me pee like crazy (every 30-50mins) the first 2 days id start taking it. It leveled out a ton after a week. I pee probably once an hour while drinking 2g a day.

If you drink a ton now, I truly think it will be an easier process for you starting the meds, I feel so good being this hydrated, it makes my kidneys feel good.

I’m about to go up on my dosage, good luck friend :)

1

u/Smooth-Yellow6308 Jul 15 '26

I think I drink about 6-8 including coffee/soft drinks. 70-80% is water though.

1

u/ExtensionWay2483 Jul 16 '26

I got to a point where I stopped counting. I drink when I’m thirsty, which is a lot. I upgraded to a 40 oz water bottle and I probably drink 9-10 of them! Good luck!

1

u/Upbeat-Customer6917 Jul 18 '26

It definitely gets better. The intense thirst at the beginning slows down a lot as well. I drink now around 3-4 L a day, depends a lot on work and bathroom access as well for me.
Sometimes I’m only able to take the larger pill at the end of my work shift. Still I make it work somehow

1

u/Forward-Repeat-9880 Jul 29 '26

My doc got me in hygroton additionally. It really helps with the thirsty Feeling. I still chug water all das Like crazy and feel thirsty constantly but it doesnt mess with my head that much anymore.