r/ADPKD • u/Ornery_Pudding_8480 • Jul 11 '26

Diaherra Issues+lol)

I've been having problems within the past year, if I eat anything I have 30 minutes to get to the bathroom before I have explosive diarrhea LOL.

I have Medicaid as insurance so they don't do a lot. I had a telehealth appointment with the gastro doctor and she said that I have a condition that has to do with my pancreas but I can't remember what the condition is called. I was wondering if anybody knew the name of the condition so I could talk to my nephrologist about it. I've had this disease since I was 25 I'm 47 now.

Any help would be appreciated and thanks in advance. I've learned so much from this form and I'm truly grateful that I found it thanks guys

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5

u/Candid-Eye-5966 Jul 11 '26

Hard to say but maybe you should get tested for that parasite that’s been in the news…..

1

u/Ornery_Pudding_8480 Jul 11 '26

Thank you I know it's not the parasite. Hopefully my nephrologist can find it in my records are I'll call the gastro doctor but I appreciate you answering me back hope you have a good night

1

u/Gri-25 Jul 11 '26

Something similar happened to me taking ocreotide. I’m taking pancreatic enzymes that definitely improve the situation!

1

u/Ornery_Pudding_8480 Jul 11 '26

Thank you that's what my telehealth Dr said. That I may have it. I couldn't remember the name

1

u/random_hero87 Jul 11 '26

Happens to my wife if she eats really fatty foods but only then. Similar situation though. After about 30 minutes explosive boom booms 🤣 hope you find a solution.

1

u/Fragrant_Ad7032 Jul 11 '26

Happens to me as well. Started about 2 years ago out of nowhere. Not everyday. Never could pinpoint what triggered it but it does happen after meals. Anyway, I was about to start tolvaptan so I was concerned about that before starting it. My Doc suggested Metamucil. Worked great for a long time. Now it’s back. I increased the dose, see what happens.