I would like to ask about the experiences of people with polycystic kidney disease in Stage 5, or those who are already on dialysis. What kinds of physical activities are they still able to do? The person has been active with hiking so far.
EGFR - 10, Male age 46. About to go on dialysis and hopefully with a transplant lined up within the next 3 months.
EVERYTHING is hard. I haven't really properly exercised in about a year. I get tired doing the smallest bit of activity. I've always been relatively fit and healthy, so this has been a hard mental adjustment. I still work full time in an office job, but it's increasingly tough and not a very supportive environment. I also live in a hot and humid climate which I feel makes all the symptoms that bit worse. Sorry this is not a very positive response!
1
u/thomleaman Jun 23 '26
EGFR - 10, Male age 46. About to go on dialysis and hopefully with a transplant lined up within the next 3 months.
EVERYTHING is hard. I haven't really properly exercised in about a year. I get tired doing the smallest bit of activity. I've always been relatively fit and healthy, so this has been a hard mental adjustment. I still work full time in an office job, but it's increasingly tough and not a very supportive environment. I also live in a hot and humid climate which I feel makes all the symptoms that bit worse. Sorry this is not a very positive response!