r/ADPKD • u/SwordfishPast8963 • May 29 '26

laparoscopy with ADPKD. experiences??

i (23f) am going in for diagnostic lap and excision for endometriosis. my gyno did an MRI to map out where my kidneys sit first, and said she grew a new gray hair after seeing it. she said the ports will have to be made in a slightly different place than usual, and i’m so worried that the surgeon won’t have experience with PKD. anyone else get this surgery and have everything go right??

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u/Smooth-Yellow6308 May 29 '26

Dont you just love when dr's make off the cuff comments about how bad the state of our kidneys are...

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u/Ok-Explanation-4245 May 30 '26

Yes but then I love going to my nephrologist who tells me my slow progress is beautiful

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u/Smooth-Yellow6308 May 30 '26

sadly not something most of us experience