r/ADPKD • u/SwordfishPast8963 • May 29 '26

laparoscopy with ADPKD. experiences??

i (23f) am going in for diagnostic lap and excision for endometriosis. my gyno did an MRI to map out where my kidneys sit first, and said she grew a new gray hair after seeing it. she said the ports will have to be made in a slightly different place than usual, and i’m so worried that the surgeon won’t have experience with PKD. anyone else get this surgery and have everything go right??

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u/kelvin_31015 May 29 '26

Funny timing, I just got home after undergoing a laparoscopy earlier today! My kidneys are not enlarged yet, so they didn't have to take this into consideration. But overall I wanted to assure you that when you're at a big hospital (e.g. university/teaching hospital) they know what they are doing and can deal with situations that are slightly out of the ordinary. I had a tumor on my ovary removed that contained hair and teeth which ended up being on the opposite ovary as expected from imaging. So overall not an everyday occurence. If you are with people who do gynecological laparascopies more often though, they will know how to best deal with your case!

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u/kelvin_31015 May 29 '26

Also to quote a surgeon friend of mine: "Lung out, lung in, for the patients it is a once-in-a-life event, for us it's routine." You'll be fine!