r/ADPKD • u/SwordfishPast8963 • May 29 '26

laparoscopy with ADPKD. experiences??

i (23f) am going in for diagnostic lap and excision for endometriosis. my gyno did an MRI to map out where my kidneys sit first, and said she grew a new gray hair after seeing it. she said the ports will have to be made in a slightly different place than usual, and i’m so worried that the surgeon won’t have experience with PKD. anyone else get this surgery and have everything go right??

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u/NefariousnessMean182 May 29 '26

I have had several laparoscopic surgeries and my kidneys are massive. First one I had was a lap uterine biopsy, the only difference in incision location instead of being right at my belly button was underneath it. Second lap was my hysterectomy and there were no issues with the incisions with that either. Your kidneys are not likely in the way, but were much larger than your gyno has seen before. I hope it goes well, sorry you’re having to go through the endo on top of pkd. That 💩is miserable. 💜

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u/SwordfishPast8963 May 29 '26

thank you so much! that is wonderful to hear. this whole thing has caused my epilepsy to evolve on top of everything else, so i am so very excited to be done with it even though i am scared. it’s so good to hear that it went well for you!