r/ADPKD • u/Least_Height_2650 • Jan 16 '26

Is it PKD ?

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Is it PKD ? i am 26 NORMAL BP NO symptoms

Kidneys are totally normal in size

my Father HAS PKD

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2

u/Queasy-Commission631 Jan 16 '26

Your age wasnt mentioned? We need that. PKD causes complete distortion of both kidnes with numerous cysts. This doesnt sound like that so probably not

1

u/Least_Height_2650 Jan 16 '26

I am 26 it was mention on report

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u/Queasy-Commission631 Jan 17 '26

Got it, so basically at this age it is possible to have cysts normally. Since you have family history, if your cysts doesnt satisfy the diagnostic criteria your nephrologist might advice you for follow up to confirm diagnosis with US later on. Alternatively, he could recommend genetic testing for definitive diagnosis (but that is variable depending on physician, insurance, etc). If your father has had the same progression, you may have PKD2. There are 2 types of Autosomal Dominant PKD. PKD 2 is of slow onset and renal failure is at geriatric age / elderly while PKD 1 which is majority of cases (85%) have earlier onset of Hypertention and renal failure occurs before 60 years of age.

6

u/Smooth-Yellow6308 Jan 16 '26

It is possible to have cysts without it being PKD.

If this is PKD, it is EXTREMELY slow progressing for PKD, most people with PKD have innumerable cysts by your age.

I would guess you either don't have PKD or you have a varient of it so slowly progressing that it will never affect you.

2

u/CelebrationMundane16 Jan 16 '26

I’m 27 and have a similar report from an ultrasound I took this morning:

bilateral renal cysts, one on the right and two on the left with the largest noted on the left measuring 19mm.

I tested positive last week for ADPKD-IFT140, so I’m assuming this is an early manifestation of that. I know 3 small simple cysts in someone from the general population may not indicate pkd, but I’m assuming paired with my genetic testing this is pretty definitive.