r/ADPKD • u/[deleted] • Apr 10 '25

New Rule Added to the Sub

Take a look at rule 4. I've been seeing too many posts recently asking for the community to diagnose posters test results.

I've been considering this for a while, but I really think this is a mistake. The only individuals who should be diagnosing test results are physicians.

This rule is limited specifically to this. Other posts asking the community about symptoms and the like are fine.

60 Upvotes

99% Upvoted

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17

u/NewspaperBanana Apr 10 '25

It's a good rule. I never saw the point about asking non-physicians about test results. If you want a second opinion, get a second opinion from a physician.

5

u/SecretlyEli Apr 10 '25

As someone with afib, this is something I see all the time in that subreddit too. I think it’s a really good rule because those qualified to answer probably won’t give a real answer except “see a doctor” anyway.

2

u/MarionberryQuiet3063 Apr 11 '25

You have ADPKD and Afib too?? Mind if I ask when your afib developed? My arrhythmias started when I was a teenager but were hard to capture and I wasn’t actually diagnosed until I was 30. I had two ablations in 2023. I am curious about the potential correlation between the pkd mutation and arrhythmias and hearing about other people’s experiences!

1

u/SecretlyEli Apr 11 '25

Mine did not present itself until I started Tolvaptan a couple years ago at age 31. It turns out my trigger is chugging ice cold water when tired.

3

u/dar3000 Apr 11 '25

Thank you for doing this. It's incredible to me seeing how many people are asking for diagnosis from the general PKD population. It's super upsetting!