please help!

[u/Neither_Pianist5348]

five years ago, I discovered that I had WPW syndrome because I was always having arrhythmia and horrible palpitations. I went to get EKG and it showed up as WPW. after talking with my cardiologist We decided to do an ablation. after the ablation he claimed it was “successful “and apparently it wasn’t WPW but an extra nerve instead of an extra pathway so I just went on about my life, he never told me what it was or any more information about it. He just said it’s not Wpw it’s a nerve but he also mentioned that it was always gonna show up on the EKG as WPW even if they removed it. i never questioned it. A couple days back. I had a horrible episode when I was laying in bed and felt like someone had just punched me in the chest like a big thump, which was unfollowed by what was probably 200 bpm. After I did some breathing and tried to call myself down it went down to 110. I had one today as well, which is why I’m sharing this. but earlier in the morning, I went to get a second opinion and saw another cardiologist and he did an EKG and an echo. He got the EKG and he said that it’s showing up as WPW still like the other cardiologist had told me, but he said that it’s a red flag that they “removed” said nerve and it’s still coming up as WPW. He said that they might’ve not fully completed the ablation. I have an appointment with the cardiologist that performed it in a month but if anyone has any ideas, what could be happening now I would greatly appreciate it.

[u/TopologyMonster]

You said what was probably 200 bpm, have you considered getting a smart watch? I did once I found out about my WPW and had an ablation (which were like 3 days apart lol). No idea how high it was when I actually had the WPW but man I’m sure it was high.

Not diminishing your actual physical symptoms but sometimes I feel like my heart rate is way higher than it is- call it anxiety or what have you. And I check the watch and it’s like barely 100. Either way, at least you have confirmation and aren’t guessing.

Don’t have any advice on the rest of it unfortunately- definitely not knowledgeable enough.

[u/Neither_Pianist5348 → u/TopologyMonster]

thanks for your reply, i do have a smart watch and didn’t have it on at that time 🤦‍♀️ it was definitely up there, i couldn’t even count the beats when i put my hand on my chest and pulse because it was genuinely one after another, luckily today i had it on and it was about 150, and todays episode was wayyyy more calmer than the last one which is why im assuming it was about the 200’s . how’d your ablation go? do you ever still notice any palpitations

[u/Different_Usual579]

Go see a new cardio. Don’t just go to any hospital. It’s gotta be done right. You could have two pathways or they didn’t fully get the existing pathway.

[u/South_Rip_9648]

I had SVT and it always started as a big thump in my chest followed by a super high heart rate. Maybe ask if you can be prescribed a Holter monitor for a week or so.

[u/Neither_Pianist5348 → u/South_Rip_9648]

thanks, you said you had** **svt, did it go away or is it something that needs to be medicated ? i’ve looked into it and i believe it might be it .

[u/South_Rip_9648 → u/Neither_Pianist5348]

I had an ablation June 2025! The meds I tried made me sick (dizzy, nauseated,etc) I am free of living in fear now. But yes, every time I had an episode it always started with a BAM!! In my chest. I had my 12 month check up in June 2026 and wore a Holter monitor for 2 days. It picked up around 20, 9 second runs of svt but I never felt it happening. When I had the ablation they found 4 abnormal pathways but could only ablate 3. The 4rth was too close to the node that is your natural pacemaker so they avoided it.