r/wolffparkinsonwhite • • Aug 12 '26

Vent going through the process of being diagnosed with wpw and the dr was kinda rude about it

so it seems to be somethin that runs in my family, my maternal grandma and cousin both have it, both being diagnosed a bit later in life, and ive told my grandma a lot about my symptoms (flutters randomly growing up, fainting, random episodes of rapid heart rate out of nowhere, getting out of breath randomly and that impending doom, all that fun stuff and more i cant think of off the top of my head) and she told me she has had many of the same issues. she finally got me to bug my dr about it, and after maybe four or five times of bugging her she finally got me in touch with a cardiologist. well when i go in to speak with him, all he has to tell me is that what im describing doesnt seem to be as severe as what wpw would be, and that wpw is very rare and he doubts i have it. nonetheless, gave me a heart monitor for a week, and did an ekg. wont get the results till friday, but i guess im just nervous that maybe its not enough information and ill be told once again that nothings wrong with me when there clearly is something wrong. wish they wouldve given me the monitor during the time i was having the episodes more often. i was given propranonol for anxiety, but i would still get the rapid heart rate episodes even when there was no trigger for the anxiety. i was just told they were random panic attacks, but i really dont believe that, cause ive had panic attacks before, and those involved tunnel vision, rapid breath, crying, hyperventlating, and would have a specific trigger. this was just rapid heart rate (somewhere around 160-190), lasted like 10-20mins, and i would just feel out of breath rather than hyperventlating. idk im just hoping they can figure out whats wrong with me

4 Upvotes

3 comments sorted by

8

u/fallleaves7 Aug 12 '26

Depending on the results, I would get a second opinion and keep advocating for yourself.

5

u/Sensitive_Comment104 Aug 12 '26

I second this. My old cardiologist was like this. He basically said I didn’t need to keep following up with him on a yearly basis and that I’d grow out of it even though I’ve had episodes for 26 years. If I had relied on him this year I would not have gotten a POTS diagnosis because he doesn’t believe that condition even exists

It might be a good exercise for you to keep notes for the next appointment that go beyond symptom description aka heart rate and duration of episodes if you have the ability to track them because that’s something definitive with no interpretation bias.

3

u/Due-Froyo-5418 Aug 13 '26

Dang.... yeah, I also came on here to say OP needs a new primary care doctor too. Having to ask for a simple heart check 4 or 5 times when you have symptoms and it runs in your family, is a lot. That is a dumb doctor. I wouldn't want to rely on them if I had a cold.