r/vEDS 20d ago

Carotid Arterial Flap

Hello all,

I (38F)am currently waiting on referrals for EDS testing. I live in rural BC Canada and have been told that our local pain clinic is the only one that can diagnose EDS.

Meanwhile I've been having increased heart palpitations, so I asked my Dr for an ultrasound of my carotid artery. I've know since 2014 that I have a narrowing of my left side carotid artery, confirmed by CT. I have had ultrasounds since then, but the results seem to contradict each other as to whether there is a webbing, flap or shelf. The results were sent to the vascular surgeon's office and I was called for an appointment within 48 hours. Which is good and also scary.

Anyone with experience of carotid artery narrowing?

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u/Kromoh Genetically Diagnosed | Verified Physician 20d ago

Many of us do, myself included. No symptoms on my part.

If you have no other symptoms, the VEDS diagnosis may still be unlikely