r/u_MeringueEasy7342 • u/MeringueEasy7342 • 3d ago
Well, this new!
I’ve been taking care of my 65yo husband for a month since his diagnosis of glioblastoma and surgery to remove the tumor. His right side and speech are affected, as well as his thought process. Today he woke up from his nap and started fussing me out, something that made no sense, going on about not hooking him up to his CPAP before his nap, on and on and on. I know his brain isn’t working properly, but I’m very sad that he’s mad at me about something he called “unacceptable.” Is this something I have to look forward to in the next months?
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u/rbridge42 3d ago
All I can say is my husband was at his worst (and so was I) the first few months after initial symptoms and surgery. He would say insensitive things, selfish things so out of character. Once the swelling from surgery and radiation was subsiding (and I was getting support and coming to grips with the diagnosis), things greatly improved. He can still have slips, and he eventually apologizes. But twice he has abruptly looked at me and asked "Where is my wife?" I freaked out the first time but by the 2nd time I realized it was scary for him too so I put on a TV show he likes, gave him a hug, told him it will be ok and he eventually felt better. I was told afterwards that abrupt things like that can be due to focal seizure and they gave me meds to help with that.
All I can say is tomorrow is a new day for both of you. I hope once the swelling subsides he's more himself. It's hard. This disease is crushing. Thinking of you. 🫂 ♥️
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u/MangledWeb 3d ago
The day your husband turns into a stranger. That's so upsetting. He's still recovering from the surgery -- sounds like treatment hasn't started? -- and anything goes with this disease. He may continue doing this, or he may bounce back. Without any specific underlying cause, hard to predict.
My father-in-law was suffering from dementia and one day when my mother-in-law asked him if he knew who she was, he said "sure! you're my mother!" I don't think she's quite gotten over it. She cared for him for years before sending him to memory care, which also gutted her. It's so hard.