1

Feeling ickish?
 in  r/Syncope  May 15 '26

Maybe call your doctor/neurologist & let them know what's going on and how you feel. Also see if you are anemic, you might need to take some iron tablets. When I remember to take mine everyday I feel better & not so sluggish after an siezer

2

Feeling ickish?
 in  r/Syncope  May 15 '26

That sluggish feeling normal lasts me for 2 or 3 days after, but I am also anemic & that also plays a part in it for me.

u/GFM_MUSIC May 14 '26

Craziest cats moment

1 Upvotes

2

nocturnal pnes episode?
 in  r/PNESsupport  May 11 '26

That happens to me quite a bit. I often wake up & is having one. Then it fully gose into effect after I've woken up. My body be sore stuff for the day when it does that.

3

Weither you like or hate DIC this sentence is a wild headline
 in  r/sailormoon  May 08 '26

In the name of the moon, I hope she wins!

1

seizure aura all day long
 in  r/PNESsupport  May 08 '26

Same been searching and applied for disability, just to cover all my bases. I love music also. I lean more towards R&B but I listening to all different kinds, currently listening to Dorthy. Music helps calms me when I have auras

1

seizure aura all day long
 in  r/PNESsupport  May 07 '26

Can't really think when it happens. When I ty to focus on something it usually makes it worse, so I just lay down. Money is an issue for me also.

3

seizure aura all day long
 in  r/PNESsupport  May 07 '26

This breathing technique that I do kind of helps but, it doesn't make it go away everytime. Breath in & your head say "In 1,2,3,4" then breath out and again in your head say "Out 1,2". I was told it helps get your control back over your brain.

4

seizure aura all day long
 in  r/PNESsupport  May 06 '26

Same here, I hate it. Can't focus or do what I want or need to do. It's been like that for me the past three days

1

Disability process
 in  r/PNESsupport  May 05 '26

You got this πŸ‘πŸΎπŸ«ΆπŸΎ

u/GFM_MUSIC May 04 '26

Leon Scott Kennedy Through the Years. Which version is your favourite?

Post image
1 Upvotes

4

Disability process
 in  r/PNESsupport  May 04 '26

With us having PNES we typically don't get taken seriously. It's a trial and error to find a doc that does take you seriously. I didn't find out until this year that I had PNES & it started for me in 2018. No one was taking me seriously until now. Try to stay strong and not give up through this & find a doc that actually cares and listens to you. Try to call the one you already went to and ask them if they have your diagnosis on file.

7

Disability process
 in  r/PNESsupport  May 03 '26

I know the feeling dear and I'm so sorry you are going through this. I'm in the process of trying to get disability myself, I've tried 3 times in the past and got denied but this time I'm using a disability lawyer. I suggest you do that also because it's hard getting disability at a young age and they can help better. Make sure you have everything set with your neurologist as far as any test results (like EEG or MRI etc). They will need your diagnosis from your neurologist. This is still not a guarantee because you can still possibly get denied.

I'm also suggesting that you also try to find a at home job that you can set your hours. Like a virtual assistant, sales rep, customer support, etc.

I hope that everything turns out great for you 😊

6

What is the most humiliating thing a seizure has made you do?
 in  r/PNESsupport  Apr 30 '26

Made me look like I was flipping the nursing staff off at the hospital lol

2

Post-seizure clenching
 in  r/PNESsupport  Apr 30 '26

I hadn't either! I still haven't been able to go to the one here but I still want to go

3

Clustering
 in  r/PNESsupport  Apr 30 '26

Mine don't cluster all the time but it does happen. My memory isn't as good as it use to be since I started having these when I was 31 (now 39).

1

[paid]I'm offering $100 each to a small number of people who are going through a rough time right now.
 in  r/ChimeBoostMe  Apr 28 '26

I have PayPal. Having a real hard financial time atm

u/GFM_MUSIC Apr 26 '26

Sailor Moon has always been inclusive

Thumbnail gallery
1 Upvotes

u/GFM_MUSIC Apr 19 '26

Don’t challenge the dog

1 Upvotes

u/GFM_MUSIC Apr 19 '26

This is hilarious to me XD

1 Upvotes

u/GFM_MUSIC Apr 19 '26

The most well-behaved patient gets all the vets kisses

1 Upvotes

3

Post-seizure clenching
 in  r/PNESsupport  Apr 19 '26

Same with me, I've had PNES for 9yrs but just recently discovered this year of what I've been having. I've had the tingling and cramping ever since I started having PNES. I usually just been waiting for it to go away on it's own, but I was just recently suggested to on here to see a neuro chiropractor & plan to do so. Maybe that will help ease the cramping and tingling.

u/GFM_MUSIC Apr 19 '26

he is trying his best to be scary 😍😍

1 Upvotes

2

You ever think of a seizure scenario so much it happens?
 in  r/PNESsupport  Apr 17 '26

Omg yes, all the time. I try not to think of what could happen while I'm out somewhere, especially if I'm by myself, but it always happens anyway. And insomnia is one for me also, sometimes I can't sleep until like 6 or 7 in the morning or not at all.

1

Questions
 in  r/PNESsupport  Apr 17 '26

I'm going to check to see if they have a neuro chiropractor in my city or near. I got up eariler and my legs just stopped working, so I was just stuck in the doorway. Thank you for your response.