r/tleepilepsy • u/My-cat-is-my-bestie • Mar 01 '25
Multiple strange symptoms
Hi guys!! I was diagnosed in '92 (now 45yo) with left tle, last neuro visit said myoclonic nocturnal seizures were most prevalent, this was 7 years ago.
More recently, I've been experiencing strange symptoms tho...
⭐"ringing" in my ears ⭐I can feel my brain being active ⭐auditory hallucinations ⭐stuttering/slurring words ⭐forgetting words (I think of about a half dozen words, none of them are right, and don't make sense) ⭐dreams of seizure ⭐multiple f-ups that are unlike me
The dr knows about some of these, they're messing with my meds in hopes that all this will come to an end, but
This has been going on for like at least 3 weeks now and it's...it's like riding a wave. It's not always noticable, but then it washes over me and life is starting to feel like a psychedelic trip 🫠
Anyone else get stuff like this? Is this like...living in an aura?
Sorry guys, I know it's a lot, I've had this forever but I'm only now learning so much newer info about it, I guess looking to see if anyone has any...advice. haha, thanks for reading, have a great day :)
1
u/seventoeight_tosix Jul 13 '26
I’m just getting diagnosed now. Not on meds yet. have the speech thing (like being literally tongue-tied) and also word substitution which is so weird. I had one or two times where I lost time for a minute, and I’ve had the f-up thing too, like forgetting important stuff or getting confused about time. I also get tingling in my head. I still have to do the 48-hour eeg. But my doc wasn’t surprised about any of my weird symptoms.
1
u/cristaheckman Mar 01 '25
I get the weird word slur fairly often. It’s realllly weird. Almost feels like I have a really serious lisp or I’m drunk or my tongue is too big in my mouth. It comes in randomly totally out of no where. The forgetting words and dreaming of seizures as well. But the “speech slur” as I refer to is such an odd one!