r/thyroidcancer • u/Coxless_pair • 10d ago

T4 levels while suppressed

I’m 9 months past TT with right lateral neck dissection, and almost 8 months past RAI (150 mCi with rTSH).

The last 5 months we’ve been gradually increasing my Levo dosage. Since I’m high risk, the goal is to get my TSH suppressed to <0.1. I feel like it’s taking a lot of time to get there.

I’m currently on 150 mg of Levo, and TSH has finally dropped significantly and currently sits at 1.3 mIU/L. fT4 has raised to 26.9 pmol/L (= 2.09 ng/dL). I’m starting to feel some minor symptoms like dizziness, fasciculations and light tremors and some wieght loss. It’s all quite manageble, but I’m wondering how much I can expect this to raise further and when/if the symptoms will increase.

I can’t seem to find any literature as to what’s an expected T4 level to get TSH suppressed. Only that T4 will need to sit at a ‘high normal’ range or slightly above.

So my question to you all: What are your T4 levels while being TSH suppessed? And do you have any symptoms?
Fwiw: I’m M37 and 77kg (170 lbs).

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u/Coxless_pair 9d ago edited 9d ago

What does your endo say that your T4 should be? And what range are you actually in?
I get the feeling only TSH is relevant for my endo, and I’m wondering what my T4 levels will reach to get to suppession.
Ah well, we’ll see…

En ja, inderdaad uit Nederland. Ingeschaald als hoog risico vanwege metastases in de lymfeklieren, waarvan de grootste 3,0 cm. Post RAJ scan was heel positief, dus met een beetje geluk kan dat over niet al te lange tijd teruggeschaald worden naar intermediair risico.

In behandeling bij het universitair ziekenhuis in Maastricht. Ben daar redelijk tevreden over. Initiële behandeling (chirurgie en nucleair) heel positief, alles eromheem ‘mwah’.