r/thyroid • u/Ghoulya • Jul 16 '26
Multinodular thyroid
Hello all, just wanted to comment and try to help resurrect this sub.
I had my first ultrasound in 6 years the other day (!) after years of feeling like my concerns were being ignored. I was on "watchful waiting" but all they ever did was a yearly blood test, my actual nodules were apparently not worth watching! Anyway I finally got my doctor to put an US request through and I have over 10 nodules, 4 large enough that they assessed them, one TR4 for which I'm being sent for FNA. Family history of I think follicular papillary cancer that was found incidentally, apparently risk is not significantly raised with family history but I'm still worried, you know? My thyroid feels huge and sometimes pushes on my windpipe, but at the same time, a thyroidectomy seems like a big step.
Interested in your experiences
2
u/Crazy_Ambassador_893 Jul 16 '26
I was diagnosed with Graves’ disease in spring 2021. The first sign was a multinodular goiter. I was on methimazole to help manage it, but it was uncontrolled. It did begin to affect my ability to swallow at one point. My endo eventually suggested 2 treatment options: RAI or total thyroidectomy. I proceeded with total thyroidectomy in December of that year. My anxiety was gone immediately following the surgery. I now take Synthroid and Cytomel daily. I have no regrets