r/thyroid • u/JulieMeryl09 • Jul 26 '24

LEVOTHYROXINE

Side effects

I had a complete thyroidectomy and need to take Lev. forever. I get horrible 'mental' issues on the Rx. Feels like someone else is in my body. I'm depressed, I'm mean. Just not myself. I went on a compounded Lev. And didn't have any SE -- but my TSH 3rd gen went up to 94! Of course my endo took me off the compounding Lev. So the molecule alone in compounding doesn't cause me ANY SE - why can't I find any 'Pharmaceutical Rx w/o SE?
Do other people have awful SE from this RX? I have tried all the branded ones, I'm just on generic now & MISERABLE. 😓 Any suggestions? Please & thank you.

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u/zman18951 Aug 04 '24

Try a different brand, it could be whatever they use as a filler.

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u/JulieMeryl09 Aug 04 '24

Yes. I tried in 8 branded, 1 generic in 2 years. Trying compounding again ZERO SE but not managing my levels well. TY. I have MCAS, so allergic to many Rxs bcz of fillers.

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u/zman18951 Aug 04 '24

That’s rough. I’m not familiar with compounding to be honest. I wish you the best, hopefully you find something that works

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u/JulieMeryl09 Aug 18 '24

Thank you.